Found this at the CCFA, everyone should read...

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pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 11/2/2007 11:16 PM (GMT -7)   
This link can help many understand crohns a little better....
 
 
 
:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 11/3/2007 4:08 AM (GMT -7)   
Hi thanks, Very intresting story.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 11/3/2007 5:29 AM (GMT -7)   
Thanks, PB4, for posting that. So, according to what I read in the second bulleted paragraph, it supports what our doctor told us back in June....I think. He believes CD is NOT an autoimmune disease. So if it's not autoimmune, then doesn't that leave infectious? Here they seem to be supporting both possibilities, with the "or conversely" portion allowing infection:

"But if you're genetically predisposed to Crohn's disease, your immune system may get its signals crossed and overreact, leading to uncontrolled inflammation, or conversely, fail to kill the invader, leading to persistent infection."

So someone please help me understand why they're continuing to use immune-suppressing drugs to treat this? Because they're just not sure yet? Because they believe there are two (or more) different types of CD?

More and more I'm leaning toward believing this is infectious, coupled with an immune system deficit, unable to properly kill the invader...at least in our case...
EMom

Grateful for everyone's help here!

Mother to 15 year old boy just diagnosed in June, 2007.
Currently taking Asacol, omega 3s, digestive enzymes, probiotics, iron, vit. C, and a good multivitamin.

Started The Maker's Diet in early September.


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 11/3/2007 7:15 AM (GMT -7)   
I don't think that's what it's saying at all. I think it's supporting the theory that this disease is part autoimmune, part genetic, and part bacterial.

It's still saying our immune system overreacts, and that's the reason for the immunosuppressants. Of course if they could come up with an immunosuppressant that only targets the cells in the intestines that get out of control, we'd be golden ;0)
 
However, it's still leaving an opening for our immune systems not reacting enough in some cases, and not killing the bacteria. 
 
So in my humble opinion, they're repeating what they've been saying for a long, long time.  They've just found some new genes associated with the disease, but are still not sure how they tie in to any of it, and our disease could be bacterial, genetic, and/or autoimmune.
 
 
 
 


Judy
49 years old, Crohn's Disease   
Six resection surgeries, permanent ostomy, adverse reactions to Remicadeback on 6MP for maintenance, hoping for a long remission from this last surgery. 
 
 

Post Edited (JudyK89) : 11/3/2007 8:18:07 AM (GMT-6)


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 11/3/2007 10:54 AM (GMT -7)   

Hello Judy,

Is it ok if I copy this information you share here to the Ostomies forum?  

 


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 11/3/2007 10:57 AM (GMT -7)   
You can copy anything of mine you like, just remember it's all my OPINION based on my one rat study (me), lol ;0)
Judy
49 years old, Crohn's Disease   
Six resection surgeries, permanent ostomy, adverse reactions to Remicadeback on 6MP for maintenance, hoping for a long remission from this last surgery. 
 
 


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 11/3/2007 12:33 PM (GMT -7)   
Thanks Judy ---- I just posted it there - check it out. I thought your opinion was right on.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Spifficial
Regular Member


Date Joined Oct 2007
Total Posts : 33
   Posted 11/3/2007 1:56 PM (GMT -7)   
JudyK89 said...
I think it's supporting the theory that this disease is part autoimmune, part genetic, and part bacterial.


Lol, Lucky us! We won the what-can-go-wrong-with-your-body Lottery!
Diagnosed CD in Dec 06'
Currently on: Humira, 30 MG Prednisone (decreasing since starting Humira), Yasmin (9 week intervals), multivitamin, calcium +D & magnesium

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