Salofolk Enema's

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Irish Red
Regular Member


Date Joined Nov 2007
Total Posts : 54
   Posted 11/4/2007 8:27 AM (GMT -7)   

I have been symptom free for 4 years and in the last 3 months I have seen various amounts of blood in stool and constant bathroom visit, visit classic signs of a flair up.  As each week passes I just keep hoping it will go away.  I went to a specialist because my husband and I are also working on having a child.  The specialist put me on Salofolk enema's for 4 weeks.  I haven't had Salofolk since I was a kid.  All I remember is how much I hated it and how invasive it can be on your personal life especially since you trying for a child.  I would love to hear anyone’s success stories on this treatment to help me stick with it for the next four weeks.

 

Shannon

Crohns Victim for 20 years

Remicade for Fistula

Prednisone/ Asacol ect...

Tried many herbal remedies


Irish Red
Regular Member


Date Joined Nov 2007
Total Posts : 54
   Posted 11/4/2007 10:20 AM (GMT -7)   
Correction I think the proper name is Salofalk.

CD since 1988,

Cocktail of medications ( Remicade included) and have explored many herbal remedies.

Currently experiencing another flair up after 4 years of remission.

 

"Life is like a box of chocolates you never know what your going to get inside" 

Everyone knows that quote... how true how true.


killerzoey
Regular Member


Date Joined Jul 2007
Total Posts : 161
   Posted 11/4/2007 2:39 PM (GMT -7)   
Hi

Is that the same thing as mesalamine rectal suspension enemas? If so I am taking those nightly too, and have been for nearly 2 weeks. Cause of my RX was a feeling of fullness in rectal area, and confirmed inflammation via biopsy. I have no blood or mucus now but have in the past.

Anyway, I bet everyone has a different experience with suspension enemas. I have read posts of people who cannot hold them in for long. But me? I seem to never see them again, other than a white streak in my next BM. Most of the time I am able to be upright after administering the enema without fear of losing it. Much different from a conventional enema for me. I don't know what your experience is so far but given that you are TTC, could you simply put off administering the enema until afterward?

As far as success I think other people here (and at the Ulcerative Colitis website for sure) could attest to its efficacy better than I as I've only been on it a short while. However I do think it is helping. And from what I've read, it is notoriously effective for rectal and lower colon inflammation.

Good luck to you in all regards!
36 year old mother of a fabulous toddler. Major symptoms began after her birth, with widespread pain/stiffness and mucus in stool. Had seen blood in stool for years prior but believe (and still suspect) hemorrhoids and/or fissures for this particular manifestation.

Diagnosed with Crohn's July 2007. The only visible areas of inflammation via scope were my stomach, rectum, and somewhere in my colon. Pill Cam, SBFT, CT Scan all normal. I think I may mainly have colitis.

STARTED LOW DOSE NALTREXONE SEPT. 26TH www.lowdosenaltrexone.org. Also see: http://www.ncbi.nlm.nih.gov/sites/entrez?db=pubmed&cmd=Retrieve&list_uids=17222320

On Specific Carbohydrate Diet (SCD) since late July and seeing improvement in "output" quality and hopefully therefore absorption. Taking SCD legal supplements: B vitamins, Folonic Acid 800mg, EnZym Complete DPP IV Aid by Kirkman.

Current biggest complaints: LRQ fullness and burning now gone. Gastritis symptoms are also quiet now. What was horrible right hip and low back pain has subsided about 60%. I'm pretty much feeling normal but in no way think I do not have more symptoms in my future.


Irish Red
Regular Member


Date Joined Nov 2007
Total Posts : 54
   Posted 11/4/2007 3:47 PM (GMT -7)   
I probably could put it off since I am TTC however if I do get prego then I would like to go into the pregnancy as symptom free as possible. The specialist did confirm that there is no absorption or risk to a child so I feel comfortable using this under his advice. I just found out that in the US this product is actually called "Rowasa" .

Thank you for your comments as this does make me feel more confident in sticking with the 4 weeks.

CD since 1988,

Cocktail of medications ( Remicade included) and have explored many herbal remedies.

Currently experiencing another flair up after 4 years of remission.

 

"Life is like a box of chocolates you never know what your going to get inside" 

Everyone knows that quote... how true how true.

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