Idea for the mods and admin

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FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 11/4/2007 9:16 AM (GMT -7)   
Often times we see some of the same questions come up over and over because new people come on after a topic has been discussed.  They often don't get the full answer because people who had just responded a few weeks back don't bother to respond again.  Sometimes it is hard to find the old posts even w/ the search.  You know how there are two locked threads from admin at the top?  What if in that section you put a third, "Crohns frequently asked questions" and then underneath each common question and a link to each thread talking about it.  A few off the top of my head would be babies and meds, Side effects of steroids, LDN, CCFA debate, SCD diet, Makers diet, probiotics, anxiety, pain meds etc.  Just an idea!
25 Year old married female.  Diagnosed w/ CD 2 years ago, IBS for over 10 years before that, which was probably the CD.
 
I started getting a ton of junkmail after putting my myspace profile link on here.  Im taking it off but if you want to contact me just email me and Ill give you a link to my myspace.  Sorry!


Irish Red
Regular Member


Date Joined Nov 2007
Total Posts : 54
   Posted 11/4/2007 9:48 AM (GMT -7)   
Being a new member I think that is a great idea. I have a question about Salofalk enema's which I am sure has come up in the past.

CD since 1988,

Cocktail of medications ( Remicade included) and have explored many herbal remedies.

Currently experiencing another flair up after 4 years of remission.

 

"Life is like a box of chocolates you never know what your going to get inside" 

Everyone knows that quote... how true how true.


april07
Regular Member


Date Joined Nov 2007
Total Posts : 30
   Posted 11/4/2007 9:53 AM (GMT -7)   
I agree I am sure that most of my issues have been adressed in the past. But thanks to the people who did respond!

JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 11/4/2007 9:55 AM (GMT -7)   
I make it a habit to do searches before I ask a question, but unless you word it exactly right, nothing comes up. Sometimes nothing comes up even if I do word it correctly, so I'm not sure how exactly this search engine works.
Judy
49 years old, Crohn's Disease   
Six resection surgeries, permanent ostomy, adverse reactions to Remicadeback on 6MP for maintenance, hoping for a long remission from this last surgery. 
 
 


Optymystic
Regular Member


Date Joined Apr 2007
Total Posts : 218
   Posted 11/4/2007 10:20 AM (GMT -7)   
I have had no luck with this search engine either. Is there a way to organize the topics so that we could do a one word search, and see a list of threads containing that one word, then pick the thread that most looks like what we were looking for?
Age 41 female.
dx'd in April 2007 - feeling better now
4000mg Pentasa and 75mg 6-MP
Primal Defense probiotic by Garden of Life


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 11/4/2007 10:45 AM (GMT -7)   
There is a way to sort by topic, top left,  but unless everyone gets on the ball about naming the topics correctly it won't work. I think the first zillion pages are "no subject."
 
Okay, "no subject" is only the first couple pages, but there are a zillion pages to wade through and no easy way to get to say, the letter R.


Judy
49 years old, Crohn's Disease   
Six resection surgeries, permanent ostomy, adverse reactions to Remicadeback on 6MP for maintenance, hoping for a long remission from this last surgery. 
 
 

Post Edited (JudyK89) : 11/4/2007 10:51:07 AM (GMT-7)


chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 11/4/2007 12:48 PM (GMT -7)   
I think it is a great idea!

teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 11/4/2007 3:03 PM (GMT -7)   
I to totally agree.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 11/4/2007 4:11 PM (GMT -7)   
Will ask Peter about this ....

I look on all back pages and bring most up

Went to page 65 67 for the pyoderma Thread and pics .....on a/p forum .......

Good ideas

LYN
    Contribute today to support Healing Well Forums...Donate @
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  CO-Moderator@ Crohns
       Anxiety/Panic
  Moderator@ Alzheimer's
DX @ Crohns, Pyoderma Gangrenosum ,Anxiety /Panic
 
        We Have Anxiety.....Anxiety Does NOT have Us
 
      
 
 
                            


Keah
Veteran Member


Date Joined Nov 2003
Total Posts : 7314
   Posted 11/4/2007 5:15 PM (GMT -7)   
This idea has come up in the past, however, I don't think it's really feasible. Crohn's is so different for each of us and there are just too many topics to address. If we made one "sticky" for each topic, we could end up with the first 3 pages being nothing but "sticky topics". If we put all of these posts together, it would be too large and unwieldy for anyone to benefit from.

What would be really helpful would be for members to be more specific in their topic lines, so that specific issues would be easier to identify without having to read the actual thread. So many have titles like "Help" or "Need Info/Opinions" etc.

Honestly, I'd love to see this work, I just don't think it's practical to do it with the way we are currently set up. I know that the search is not optimal and often makes it difficult to find threads that even I know are there.

Another helpful thing would be to at least scroll through the first page or two before posting a new topic. There have been several times where I have seen 2, 3 or even 4 topics that were essntially the same started by different members and all on the first page.

There have been times where I've posted links to previous threads that I knew were out there. For older memebrs, this is a good way to avoid having to repoeat the same info you've already posted to someone else, and still get the info to the member who is in need of a reply.
Keah a.k.a. Wormy
 God helps those who help themselves.
Please help us support this invaluable forum.
Crohn's Forum Moderator


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 11/4/2007 7:05 PM (GMT -7)   
Good point Keah. I got the "link to old thread" idea from the LDN guys and have used it before. I had something I posted on IBS about overcoming anxiety that I reposted the link to probably 5 times.  Oh, and I didn't mean to do it for everything.  Just the super super common questions, and we could still keep replying to the thread and new members could add to it etc.  but I see what you are saying.


25 Year old married female.  Diagnosed w/ CD 2 years ago, IBS for over 10 years before that, which was probably the CD.
 
I started getting a ton of junkmail after putting my myspace profile link on here.  Im taking it off but if you want to contact me just email me and Ill give you a link to my myspace.  Sorry!


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 11/5/2007 5:52 AM (GMT -7)   
You know, if they would find a cure for this crappy disease, we would not need to ask so many questions.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 11/5/2007 8:20 AM (GMT -7)   
So true Sniper........

Keah .........Ya I do see your point now that I have thought it thru from your post

Thanks for the great input

LYN
    Contribute today to support Healing Well Forums...Donate @
                          http://www.healingwell.com/donate/
 
  CO-Moderator@ Crohns
       Anxiety/Panic
  Moderator@ Alzheimer's
DX @ Crohns, Pyoderma Gangrenosum ,Anxiety /Panic
 
        We Have Anxiety.....Anxiety Does NOT have Us
 
      
 
 
                            


huckleberry
Regular Member


Date Joined Sep 2007
Total Posts : 317
   Posted 11/5/2007 7:10 PM (GMT -7)   
I too have had trouble with the search engine. For example, I posted a few days ago about dizziness and 6 mp. But, first I searched on "dizzy" "6 mp" and "side effects 6 mp." I came up with literally two or three results, and they were sort of random, while I know there have been pages and pages of posts about 6 mp side effects.
44 years old, newly diagnosed in September 2007 but symptoms for several years before that.
Medications: Pentasa, Prednisone (tapering), 6 mp, Prilosec, Synthroid.
Supplements: probiotics, calcium, vitamin C, vitamin E and a multi-vitamin.
History of hypothyroid (dx 2004), and gall bladder surgery (1997).
Single working mom to three wonderful kids, ages 9 to 15.

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