weight loss!!!!!

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there's Hope
Regular Member

Date Joined Nov 2006
Total Posts : 145
   Posted 11/4/2007 2:47 PM (GMT -6)   
I gained 80 pounds from the steroids and am having a very difficult time losing the weight. I am on birth control and Remicade- both of which can make you gain weight. But I try to eat well and I work out a lot and am not seeing results like I expected. I am so frustrated! I want to be back in my cute clothes! I miss my jeans!
For those of you who have shed the weight- How did you do it?! confused Is there any suggestion you could give me and the other struggling overweight people here? What was your plan and how long did it take you to lose the weight?
I read a post about some prescription diet pills and at this point am seriously considering asking my doctor if I can start them. I would really appreciate any advice!! Thank you!
25 year old female. Dx with UC in June 2003. Flare up in June 2006 led to CD dx.
"There's Hope. It doesn't cost a thing to smile; You don't have to pay to laugh; You better thank God for that!"

gemini kiwi
Veteran Member

Date Joined Nov 2006
Total Posts : 1136
   Posted 11/4/2007 3:07 PM (GMT -6)   
Perhaps it will take a little more work and you'll loose it slower, but I'm sure you'll get there in the end, if you watch your diet and keep up the exercise.. I have the opposite problem now, although I used to be "chubby". Last week I wasn't feeling too well and I lost more weight, I'm trying to maintain it, as its no fun really trying on new clothes and the smallest womens sizes hang off you, then you start looking in the kids section. We still had snow on the mountain tops after yet another cold snap and I shivered all last weekend when we went to the local A & P show, I don't have much insulation and this Spring weather has yet to warm up.

Veteran Member

Date Joined Dec 2006
Total Posts : 1986
   Posted 11/4/2007 3:24 PM (GMT -6)   
If you find a magic pill, let me know. I've been gaining weight steadily for years now, after 20+ years of not being able to put weight on no matter what I did.
49 years old, Crohn's Disease   
Six resection surgeries, permanent ostomy, adverse reactions to Remicadeback on 6MP for maintenance, hoping for a long remission from this last surgery. 

Veteran Member

Date Joined Apr 2005
Total Posts : 2346
   Posted 11/4/2007 3:39 PM (GMT -6)   
Eat more protein. Once I started doing this, I started to lose weight. I worked out 4-5 days a week, and I would eat lots of protein, and good carbs in moderation.

Regular Member

Date Joined May 2007
Total Posts : 79
   Posted 11/4/2007 7:50 PM (GMT -6)   
I hope someone has an answer for this! I was on steroids for the first 3 months this year ..I gained like 25 pounds...I have been eating well for months...it just seems that in the past month it has started to work. My sister in law is a doctor and she states that it can take up to a year to have the "steroids" out of your system depending on how hi the dose was etc...and that loosing that type of weight gain is difficult...

I cant really work out because of my fistula......but believe me I want to.
Mis-diagnosed for two years--doctors thought I had RA!

Fistua surgeries in Sept 2006,Dec 2006 and Aug 2007
Centon placed in fistula track during last surgery..permanent open wound
Finally diagnosed w/CD & Fistulizing Disease in Jan 2007
Currently taking Remicade since May 2007

Veteran Member

Date Joined Mar 2005
Total Posts : 4305
   Posted 11/4/2007 10:24 PM (GMT -6)   
Hi,please don't give up,I know how frustraiting it can be.I was on steroids for over a year and it took another six months of winging off of them so for a year and a half I gained a little over a 100 pounds.Well I was like you no matter what I tried nothing was helping.HuskerFan sister in law is right I was told the same thing as well.I have lost 54 pounds so fare.From the time that I got off of the steroids to the time I finally started loosing weight was about thirteen months.So know that you are not alone and you will loose the weight.

Veteran Member

Date Joined Mar 2007
Total Posts : 1642
   Posted 11/5/2007 11:16 AM (GMT -6)   

there's Hope,

I am in the same boat! I need to lose a lot of weight and I am having a hard time. I swear Entocort is doing it. (or at least making it worse)

I was overweight to begin with so now I am very miserable. I am really not sure how to do it this time.

on my way to work I actually thought about it and decided I might join a weight loss group or try to keep better track of what I eat etc... Although I have not been eating that bad recently.



Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On Azathioprine (generic Imuran), Pentasa, & ENTOCORT

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also have Arthritis, and feel like I am falling apart sometimes...

Becoming undone
Veteran Member

Date Joined Jul 2007
Total Posts : 927
   Posted 11/5/2007 11:33 AM (GMT -6)   
Are you still on the sterioids? How high? I know that I'm only on 2.5 mg from 40 mg February to June. In only the last month my face has lost some of that swelling. My face is starting to look familiar in the mirror. I am swimming and doing elliptical now and when I can. Oh and last week I was able to sit on a bicycle seat the first time since my surgery (I'M SO HAPPY!!!!), so I'll be doing that.
Anyway, it is said that it can take six months to a year for the effects of the predinisone to wear off. Wishing you all the best.

New Member

Date Joined Feb 2006
Total Posts : 5
   Posted 11/5/2007 1:04 PM (GMT -6)   
I understand you being frustrated about the weight not coming off! I was on Prednisone and gained ~60 pounds. I've been off the steroids for about a year and a half, and have lost 20 of those 60 pounds. I sure do miss my old clothes, but I agree, watching what I eat and working out isn't doing it! If you find something that works, please share!

Regular Member

Date Joined May 2007
Total Posts : 76
   Posted 11/5/2007 1:14 PM (GMT -6)   
Its really hard to lose the weight I find, regardless of whether I gain it on steroids or because i just have to have that extra sleeve of cookies. I go up and down a lot because of crohns and my flares stopping me from eating sometimes. My last short stint with pred added 15 lbs.

I've got just about all of it off now, and I did it the old fashioned, sad to say...no miracle pill. I'd cut portion sizes way down and what I did eat was protien (for example for lunch today I had 5 ozs grilled chicken and a couple spoonfuls of white rice). I'm off diet sodas and diet this and that...I tend to overeat that kind of stuff. I also go to the gym 4 days a week - 1 hour on weights and 45 minutes cardio per session.

It'll come off, just dont give up.
Diagnosed with UC 8 years ago
Asacol / 12 per day
Canasa / 1 per day
Rowasa / 1 per day
Prednizone / 40 MG Day( finished taper!!!)
Azathioprine / 100 MG Day
Levaquin 1 per day
Flogyl 1 per day
Diagnosed with Crohn's 6/26/2007

there's Hope
Regular Member

Date Joined Nov 2006
Total Posts : 145
   Posted 11/5/2007 4:14 PM (GMT -6)   
Thank you all SO MUCH! The support feels really good. I was on 60mg and tapered down and flared up so back up to 60.. I stopped taking the Pred in June of this year. I still see it when I look in the mirror, my face is much more round than it used to be. I didn't realize how long they take to get out of your system and knowing that now I feel better!! I am just going to continue my exercise and increase my protein and veggie intake.
I see my PCP Thursday and plan on asking her advice - I will share whatever I learn!
I know there is no magical way to lose weight fast otherwise we would all be thin! I really appreciate the feedback!

<FONT color=#800080>

Regular Member

Date Joined May 2007
Total Posts : 148
   Posted 11/5/2007 8:34 PM (GMT -6)   
I gained 40 pounds after my first go-round with pred a few years ago (Fortunately or unfortunately, this time around, I was so sick, I didn't gain anything but lost weight). I finally went to see a nutritionist who put together a plan that gradually allowed me to add back foods as I could tolerate them while cutting back on the calories so I could start to lose the weight. It took about 8-10 months to lose the 40 pounds but I did not aggravate the Crohn's as I was trying new foods. This time around, while I did not gain the weight, I got a real moon face, which is only now starting to go down 2 months after I stopped the pred. I've struggled with weight all my life. It is so furstrating because when you are in a flare, you want comfort foods and sometimes all you can tolerate are the low-residue, refined processed to death foods. I've lived on white bread and white rice for months now, can only tolerate bananas and really well cooked carrots. I've been on Humira for about 2 months and I think its beginning to kick in. Its only the fear of triggering the D and the cramping that stops me from eating mega amounts of anything.

Regular Member

Date Joined Sep 2007
Total Posts : 317
   Posted 11/5/2007 9:06 PM (GMT -6)   
I'm having that problem with the low residue processed foods too -- I haven't had fresh vegetables or a salad in months! And, because bread is OK, I've been eating more carbs -- toast, bagels, rice, etc. I've managed to stay about the same weight on the steroids, I think because I've been so sick with D, but I'm retaining water and my face is puffy and red so I look as if I've gained (which is bad for me -- already overweight).

Have completely given up Diet Coke -- I was an addict before being diagnosed -- and I think that will help. I'm sure I was in some sort of sweet/craving cycle as a result. I'm drinking tons of water too, which I know is a good thing. Haven't added much exercise -- seeing how much everyone on the forum is working out makes me realize I have to get moving, even when I'm not feeling great.

But, in the meantime, would love to lose 40 pounds or so and finding it hard to imagine given the diet and the steroids.
44 years old, newly diagnosed in September 2007 but symptoms for several years before that.
Medications: Pentasa, Prednisone (tapering), 6 mp, Prilosec, Synthroid.
Supplements: probiotics, calcium, vitamin C, vitamin E and a multi-vitamin.
History of hypothyroid (dx 2004), and gall bladder surgery (1997).
Single working mom to three wonderful kids, ages 9 to 15.

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