? C-tons and Fistualas

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HuskerFan
Regular Member


Date Joined May 2007
Total Posts : 79
   Posted 11/4/2007 5:43 PM (GMT -7)   
OK...for those of you that have had C-ton's put in your fistula's...have you ever had them come out??

I did today..both of them in my 1 fistula....which scared the hell out of me...because I was bleeding quite a bit...and scared because my first thought was "Darn it...I am going to have to have surgery again!". And unless you have had surgery on your "butt"..it is not fun....and telling people what you are having surgery for....well that is always interesting.

I did talk with my surgeon today and he seems to think it is a positive sign that it might be closing up...etc.

I just wanted to know if this happened to anyone else.
Mis-diagnosed for two years--doctors thought I had RA!

Fistua surgeries in Sept 2006,Dec 2006 and Aug 2007
Centon placed in fistula track during last surgery..permanent open wound
Finally diagnosed w/CD & Fistulizing Disease in Jan 2007
Currently taking Remicade since May 2007


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/4/2007 6:17 PM (GMT -7)   
Hi I found bleeding a good thing when I had my Fistula I did not have theC_tons as mine was abd. so sure hope yours close up give it a little time .Best Wishes. lol gail

chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 11/4/2007 7:02 PM (GMT -7)   
No, mine hasn't fallen out, but my dr. did say that it could happen and you actually might not even know it when it does, and it isn't a big deal....

HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 11/5/2007 6:49 AM (GMT -7)   
First of all...I can't figure out how to spell these things. Some folks spell it C-ton like you did and others seton like my doc did. If the medical world can't agree on how to spell it, we'll never get people to spell crohns correctly :-)

I had a seton in a rectal fistula. It was in for quite a long time as the infection and size was quite large. After almost twelve months, the seton came out on it's own. I didn't even really feel it. There was a little blood, but I had little muscle involvement so there was very little pain. My surgeon said that the blood was a good sign when I called their office---basically it was in the final stages of healing. I swear that within a day after it fell out, I had no symptoms of ever having had a fistula. Thank goodness I am one of the lucky ones...I hope you have as positive an experience.
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


HuskerFan
Regular Member


Date Joined May 2007
Total Posts : 79
   Posted 11/5/2007 3:46 PM (GMT -7)   
Great news!!!

A few months ago my doc was telling me that I would need to get use to the idea of having a permanent open wound..aka fistula. I hated that answer but have learned to live with it.

Well..yesterday the C-tons fell out...and I saw my doc today.....Looks as though my fistula is hopefully healing up!!! (crossing fingers) I see him in a month....and I will have a better idea then.....but I am on the verge of having a party if this thing closes up! No more pads..no more draining....etc! After a year and half...of this...and 3 surgeries....(I am already dancing in my mind!)

Will keep you posted on what happens
Mis-diagnosed for two years--doctors thought I had RA!

Fistua surgeries in Sept 2006,Dec 2006 and Aug 2007
Centon placed in fistula track during last surgery..permanent open wound
Finally diagnosed w/CD & Fistulizing Disease in Jan 2007
Currently taking Remicade since May 2007


chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 11/5/2007 5:19 PM (GMT -7)   
You should definitely have a party!!!!! :)

ukwildcatfan
New Member


Date Joined Sep 2009
Total Posts : 2
   Posted 9/15/2009 5:55 PM (GMT -7)   
I have a c-ton and the doctor told me that unless i waned to have surgery again to close it off and there would be a chance i would lose control of my bowels. but i could live with the c-ton for the rest of my life the only thing bad about it is that there is the discharge and the odor.is there anything i can do about it???

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 9/15/2009 8:39 PM (GMT -7)   
UKWildcat, please check the "living with your seton" links in the fistulas link in my sig.

*Please* start a new thread with your own questions. This will enable you to get the help and attention you need. A lot of people ignore old threads that have been bumped up, but will pay attention to a new thread.

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

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