Imuran - side effects

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Regular Member

Date Joined Sep 2007
Total Posts : 219
   Posted 11/5/2007 11:19 PM (GMT -6)   
I just got the prescription for the imuran filled but am worried to start taking it.  Can anyone tell me if they are on it and have any side effects?  Does your white blood cell count drop low ?  How often do you go for blood work to check this?  Any hair loss?  I hope this will take care of the rest of the inflammation that the pentasa and entocort have not been able to help with.

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 11/6/2007 6:07 AM (GMT -6)   
Hi Chris, I have been on Imuran for over 2 years and have no-side effects. My Gi doctor does blood
work on me and everything is fine.

Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007

Regular Member

Date Joined Oct 2007
Total Posts : 289
   Posted 11/6/2007 7:58 AM (GMT -6)   
Hello,I have been on Imuron for a little over a year and have had no side effects,my GI checks my blood wrok every month. I was scared to death to start taking it also. Good Luck!! :-)

Veteran Member

Date Joined Jan 2006
Total Posts : 3129
   Posted 11/6/2007 11:07 AM (GMT -6)   
Chris...I feel the same insecurity you feel. I have to commit or not commit to Imuran on Thursday. From all the things I have read here and some great support from my local CCFA group last month, I think I am ready to take the meds. Keep me up to date on how you are doing!
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....

Veteran Member

Date Joined Dec 2006
Total Posts : 1986
   Posted 11/6/2007 11:46 AM (GMT -6)   
My doctor's protocol is a blood test 2 weeks after I start the drug, then every month for 6 months or so, then maybe every couple of months after that. Usually if you're going to have issues with the drug it will show up in the beginning, but not always. My doctor's been great about it, if we have any question whether something I'm going through may be caused by the drug, I'm off the drug, but so far it's always been temporary. We have had to reduce the dosage in the past because of my liver panels, but I was still able to stay on it.

We're still testing my liver for problems, but I'm still on 6MP (Imuran sister drug) until/unless we find a reason to take me off. I take it as a maintenance drug.
49 years old, Crohn's Disease   
Six resection surgeries, permanent ostomy, adverse reactions to Remicadeback on 6MP for maintenance, hoping for a long remission from this last surgery. 

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