For the women.... stomach cramps/menstrual cramps???

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descrapster
Regular Member


Date Joined Jun 2007
Total Posts : 155
   Posted 11/7/2007 9:13 AM (GMT -7)   
Ok I hope this is not just me.  Everytime I get my period and I have cramps, I get stomach cramps.  I have been on Pentasa and my stomach cramps are pretty much gone except on that lovely time of the month.  My period lasts 6 days so you can imagine how I feel with 4-5 days of cramps!  Everytime my cramps start, I have to run to the bathroom.  I'm going for the third time today and it's not even watery.  Geezes Bageezes! =)
Descrapster
Diagnosed with CD June 15, 2007
Currently 2 Fissures and 1 Fistula...YAY! Seton Drain currently in.
8 Pentasa/day
Had to stop Flagyl because of numbness in my toes!
 


bektold
Regular Member


Date Joined Jul 2007
Total Posts : 456
   Posted 11/7/2007 9:35 AM (GMT -7)   
Yeah, my Crohn's always goes a little nuts during that time of the month.  I never really enjoyed my period before, but I absolutely dread it now.

there's Hope
Regular Member


Date Joined Nov 2006
Total Posts : 145
   Posted 11/7/2007 10:09 AM (GMT -7)   
I had such a bad time with my cramping and pain around my period, it felt like every period started a flare! The doctor had to put me on seasonale birth control to minimize my periods- it's the 4 periods a year pill. Since then I have only had one period- this was in jan of this year. I highly recommend it to any woman suffering with bad periods ESP to those with Crohn's!!!!
26 year old female. Dx with UC in June 2003. Flare up in June 2006 led to CD dx.
Current Meds: Remicade, Asacol, Bentyl, Phenergan, Reglan, Ultram, Celexa and Seaonale, Fish Oil, Lacto and a Multi Vitamin

"There's Hope. It doesn't cost a thing to smile; You don't have to pay to laugh; You better thank God for that!"


dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 11/7/2007 11:28 AM (GMT -7)   
i am also on seasonale, actually it's generic called quasense. i wonder if there is a conenction because man, i have been having d for 5 days now no matter what i am eating. i am still not sure if that's WHY the d has come back or because i am tapering down on prednisone. i also have had headaches and wicked anxiety/mood as all hell the past few days (finally on day 2 of the p). crohn's seems to always keep me guessing what the heck is going on now?!
.: stephanie :.
32 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
currently taking 20mg prednisone, 4000mg pentasa daily & vicodin for pain


rootsmith
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Date Joined Jan 2004
Total Posts : 598
   Posted 11/7/2007 11:37 AM (GMT -7)   
When I first presented 10 years ago with pain that felt exactly like menstrual pain my gyn told me that most menstrual pain is really bowel pain. He told me he was sure I had "something like crohn's" Unfortunately he has since died so I can't tell him it looks like he was right. The reason I consulted him was because it *did* feel exactly like menstrual pain so that was what I thought - don't laugh- even though I no longer had a uterus. That is what it felt like (minus the nausea)

I'm wondering if it is prostaglandins attacking the bowel, causing diarrhea etc. My daughter has terrible problems from this. Her doctor put her on the Seasonale type pill also. If she isn't on them she has to take NSAIDS by the handful and they work on prostaglandins.
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin and now trying good ol' zoloft


athensgirl
Regular Member


Date Joined Apr 2007
Total Posts : 254
   Posted 11/8/2007 1:03 AM (GMT -7)   

My worse days of each month is when I have my period.  I have stomach cramps too, my intestines are gurgling and making funny noises, I have D and I feel awful.  But I have discussed it with many other women who don't have CD, and they also have D for 1-2 days when they have their period.  I know for sure that my sister who is not a CD patient, spends the first day of her period in the bathroom with watery D.  I think it's because the period cramps are so bad that they irritate the bowels.  So, if healthy women get D when they have their period, imagine us poor Crohn's patients!!!

What I do is I put a heating pad in my abdomen it helps ease the cramps a little bit, and of course I take Immodium so I can get to work!!

greek hugs,

Christina tongue


rootsmith
Veteran Member


Date Joined Jan 2004
Total Posts : 598
   Posted 11/8/2007 5:40 AM (GMT -7)   
I just did some research on this and apparently it is "prostaglandin-2" that is the culprit. When the uterine lining first breaks down, it releases this stuff into the bloodstream. It affects the bowel causing cramping, diarrhea, and also fainting, sweating, etc. (there are other prostaglandins and some are beneficial like the ones that maintain the integrity of the stomach lining- that's why NSAIDS are so bad for the stomach, they block all prostaglandins) So, if you have an intestinal ailment i.e. CD to begin with, you can see why it would be even worse but even normal women can have this problem. (they use to tell us it was either in our heads or an adjustment problem)

It seems the only two drug options are NSAIDS which are out for CD patients and birth control pills which, by preventing ovulation, do not let the uterine lining build up the same way. With continuous pills, there would be no breakdown and with the seasonale type, infrequent but even those are different, without ovulation.

The really interesting part is what I read about the dietary approach to treatment. It seems that animal fats are involved in the process of making these prostaglandins and the recommendation is to cut out meat and dairy products. My daughter is already a vegetarian but eats a lot of dairy products, especially the full fat ones (she doesn't have a cholesterol or weight problem) There is also something about the Omega 3 vs Omega 6 fats that is involved- you should limit your Omega 6's?

Since so many CD people seem to have a problem with dairy, it might be helpful to try eliminating that and see if it helps if it is really bothersome. It would also be interesting to know if the women who already eliminate or reduce dairy have this problem to the same degree
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin and now trying good ol' zoloft


dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 11/8/2007 7:05 AM (GMT -7)   
rootsmith - nice work on the research! i had zero dairy the past 2 days and still, i had d twice this morning :/ was in the bathroom at least 7 or 8 times yesterday. this is the first time i have paid attention to the crohn's during my menstrual cycle, but since i am tapering down on the steroids i am not sure if that's why i am having problems?

...to be continued!
.: stephanie :.
32 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
currently taking 20mg prednisone, 4000mg pentasa daily & vicodin for pain


gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4100
   Posted 11/8/2007 7:42 AM (GMT -7)   
I am expecting my period today, and just went from terrible constipation to the dreaded diarrhea! I am also in the middle of tapering prednisone, and was also taking lots of metamucil for the constipation. The worst thing is, I'm analytical by nature, and try as I might, there are so many complicating variables, that it seems impossible to figure out!!! I know for sure though, that I've always had diarrhea before my menstrual cycle...long before I had the Crohn's disease. Good luck. It does help though to hear I'm not all alone out there!
48 yr. old female, diagnosed with Crohn's Sept-Oct. 2007


skeptical
Regular Member


Date Joined Jun 2005
Total Posts : 369
   Posted 11/8/2007 8:31 AM (GMT -7)   
Me too!!!
I was constipated my whole life and (believe it or not) only had a BM on the first day of my period. It was a painful, all-day ordeal. When I was first being diagnosed with Crohn's, all the doctors thought it was endometriosis or something related to my monthly hormones. My husband was the one that finally said, "Every time you come to the ER, you're on your period."

My GI has never been able to figure out the connection, though. I'm on my period now, can't eat anything and have lovely diarrhea.

Hey, does anyone else get monthly migraines? This bothers me more than the gut issues.

rootsmith
Veteran Member


Date Joined Jan 2004
Total Posts : 598
   Posted 11/8/2007 2:36 PM (GMT -7)   
I read that you can't just eliminate dairy for a few days before expected problems. You have to eliminate it entirely. Its similar with NSAIDS- you have to take them for up to a week before your period is due to start for them to have the desired effect. It may not work that well (eliminating dairy that is) because of other factors i.e. the amount of other animal fat you eat in meat etc. Then there's that omega-3 vs omega-6

Gumby, I analyze everything also. I also run experiments and research projects on myself and its very hard to control the variables. I haven't done too much experimenting with crohn's though.
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin and now trying good ol' zoloft


Trsora1
Regular Member


Date Joined Nov 2007
Total Posts : 111
   Posted 11/9/2007 11:14 AM (GMT -7)   
I too get really sick the week before my period and the week during my period. With gurgling noises, loose stools, headache, and nausea. Every time i was in the hospital i either just got it was the at the end of it. So it has def. something to do with crohns. Wish i didnt have to get my period you go two weeks with feeling good and then all of a sudden you feel like crap. I have noticed that when i due to get my period my BUTT burns down there in the rectum area? Does that happen to anyone else?? I have cream and proctofoam to put on there. But feels like there is a little papercut or tear or something. Anyone else with this problem?

rkilcher25
Regular Member


Date Joined Jul 2006
Total Posts : 144
   Posted 11/9/2007 11:28 AM (GMT -7)   
i think for me the worse part is having the period cramps on top of crohn's crampy pain.  it's like a double whammy.  since the pains are both in the same area, it's twice as bad.  i'm just starting that seasonquie birth control that reduces your period's down to 4 a year.  maybe that will help i hope

26 years old
dx with crohn's at 23
Fistula seton surgery 2006
Advancment Rectal Flap surgery 2007
Fisula seton surgery 2007
 
 


malakai
Regular Member


Date Joined Aug 2007
Total Posts : 277
   Posted 11/10/2007 2:45 PM (GMT -7)   
sorry man. yep I feel god awful too when it is that time.

thanks rootsmith for doing that research. interesting.....

I'm there with dustpeck where you are always learning new things about this crohn's.
Newbie - 35 yrs old Diagnosed: 08/03/07
Meds:
Asacol 3x day
Imuran 50MG 3 x day
Lamictal 125 MG/day for bioloar II


rootsmith
Veteran Member


Date Joined Jan 2004
Total Posts : 598
   Posted 11/10/2007 9:55 PM (GMT -7)   
Coincidentally my daughter was telling me that she let her seasonique type bc pills run out and she was very sorry. She has a horrible problem with prostaglandins but she doesn't have crohn's (as far as she knows) She is already a vegetarian but eats a lot of full fat dairy. So, I did some research for her and it was just at the time this thread got going. I told her what I found and she said no way was she cutting out dairy, she'll stay on the seasonique.
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin and now trying good ol' zoloft


Robyn1973
Regular Member


Date Joined Nov 2005
Total Posts : 30
   Posted 11/11/2007 8:07 PM (GMT -7)   
To Skeptical:
Monthly migraines could be a surge in hormones. Hormone levels trigger migraines. Track the pattern, see if happens at the same time of your cycle.
34 yo, Diagnosed 6/2005.  Ileocolic resection.  Tried Asacol, Pentasa, & Imuran.  Crohn's fistulized, used Cipro & Flagyl (w/side effect of neuropathy).  Started Remicade 8/2005 & doing much better.  Upped to every 6 weeks due to breakthrough symptoms at 7 weeks.  Possible flareup from flu shot 11/06.  Occasional gallbladder issues. 


ddr030505
Regular Member


Date Joined Nov 2007
Total Posts : 68
   Posted 11/16/2007 8:16 PM (GMT -7)   
I was getting really bad cramps and i too was put on seasonique.. I just started because every month i risked a flare up.. and about every 3 periods i was getting one for months at a time. i felt like i had no relief. so now only 4 times a year im gonna have to risk it.. I think its really worth it to reduce that uncomfortable pain...
23 year old married female Diagnosed Sept '03 still fighting for remission longest break was 9 mths
Asacol 6 400mg tabs aday
Entecort 9mg aday
 
Live Laugh Love, Live by this and you can fight anything!!


Krysta
Regular Member


Date Joined Jun 2007
Total Posts : 340
   Posted 11/16/2007 10:39 PM (GMT -7)   
I have talked to friends and my GF and they all get the D when they are in the first couple days of the period. They call them the period poops. lol.

about the cutting out meat and dairy thing, I am pretty much vegan. I eat a little cheese every now and then. But I have no other animal products whatsoever and I still have HORRIBLE cramps. They are definitely menstrual cramps. They feel completely different than my crohn's pain. That said, I still have the crohn's pain in addition to the cramps sometimes. I also have PCOS so I get pain from that when I'm not on my period. It's just a barrel of fun in my belly!

:-P
Finally Dx- April 13 2007 (age 26) ilio-crohn's-colitis. Surgeries:appendectomy, cholecystectomy, tonsillectomy, pinidal cyst removed,emergency abdominal surgery for hemorrhaging ovary from burst ovarian cyst, LEEPcervix, emergency abdominal surgery for grapefruit sized ovarian cyst removal, D and C of uterus, lumpectomy of breast.
MEDS: remicade, prednisone, Asacol TID, protonix, metformin, buspar, trazodone, multi V, B complex, flaxseed. Vegetarian, leaning towards vegan. no nuts, seeds, or wheat.
Many allergies. Polycystic ovarian syndrome, anxiety, depression, ITP 
Every tool is a weapon if you hold it right ~ Ani Difranco
 
 

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