Starting flagyl and probiotic-questions?

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Jusdebbie
Regular Member


Date Joined Jul 2007
Total Posts : 70
   Posted 11/8/2007 4:57 AM (GMT -7)   
Hi,
 
So 4 months on 6mp (now on 100mg) and no help really.  I have done 2 remicade treatments during that time also.  Just did a few weeks of cortifoam.  No real relief.  Im so inflamed that even air is trapped.  I cant hanlde the pressure.  Anyway doc now wants to start flagyl and a probiotic.  Please tell me what to expect and any suggestions you have to make it most tolerable.  I am only gonna give the 6mp 2 more months to start working.  Then, if no help, im going off it!  I am so exhausted and fatigued ALL the time and i think the 6mp really contributes to that.  Thank you guys.

teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 11/8/2007 6:30 AM (GMT -7)   
Hi Jusdebbie,
Well the Remicade with hopefully start really working for you after the 3-4 infusion. I also am
on Remicade and Imuran these 2 drugs works good for me. I have not be on Flagyl in a long time
and never probiotic. But I do hope these drugs help you feel better.
teddybear
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


descrapster
Regular Member


Date Joined Jun 2007
Total Posts : 155
   Posted 11/8/2007 7:07 AM (GMT -7)   
Just watch the Flagyl. It gave me numbness in my toes which has only gone away about 90% since I stopped it 4 months ago. I also developed a yeast infection on my toungue. I really felt better with it but unfortunately had to stop.
Descrapster
Diagnosed with CD June 15, 2007
Currently 2 Fissures and 1 Fistula...YAY! Seton Drain currently in.
8 Pentasa/day
Had to stop Flagyl because of numbness in my toes!
 


HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 11/8/2007 7:18 AM (GMT -7)   
Well, I can only speak to the flagyl. Pay attention to how you feel on it. Some people (NOT EVERYONE) develop tingling in extremities taht can become permanent if not caught early. I had tingling in my hands and around my mouth. Also, DO NOT DRINK alcohol when taking it. I have a long story about how one beer battered french fry sent me to the emergency room. Basically, falgyl is an alcohol anti-abuse drug....it makes you extremely nauseous with any alcohol. I also had a hard time concentrating while taking it. We tried a lower dose, but I still had issues of tingling.

That being said...while I was on it, it did wonders for my fistula. My digestive system was clearing up and everything was great. If I did not have the tingling, I would have stayed on it as long as I could. I wish I could find something like it. You may not have a problem when taking it and I hope that it works as well for you as it was for me. Follow directions from the doc and best of luck!!
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 11/8/2007 7:28 AM (GMT -7)   
Flagyl really helps me when I get to go on it. I was on it for about a year and a half once, and then I started getting the tingles (neuropathies) so had to quit. I still take it short term once in a while, and it does really help. I do understand it doesn't help everyone, but keep your hopes up, it may be what you need to get you over this hump.
Judy
49 years old, Crohn's Disease   
Six resection surgeries, permanent ostomy, adverse reactions to Remicadeback on 6MP for maintenance, hoping for a long remission from this last surgery. 
 
 


gypsy1
New Member


Date Joined Jul 2007
Total Posts : 18
   Posted 11/8/2007 7:44 AM (GMT -7)   
I also have only taken flagyl. I didn't get the numbness, but I had the most awful metallic taste from it. I couldn't eat for the 2 weeks I was on it. It was miserable, but it did wonders for the flare. Take care, hope you find relief soon.
Endometriosis and cervical cancer. Hysterectomy 2003
Crohns Disease dx 2006: Asacol 2 3x a day.


jenngrl81
Regular Member


Date Joined Oct 2007
Total Posts : 208
   Posted 11/8/2007 11:00 AM (GMT -7)   
I was supposed to be on Flagyl for 3 weeks to help with possible infections in my bowel; I could only make it 3 weeks. The only side effects I had were extreme and constant D. Other than tiredness-which who knows if that was from Flagyl--i didn't have any probs.
26 year old female  diagnosed with severe Crohn's in Sept. 2007-suspected that I've had it for at least 3 yrs; diagnosed with anemia Aug. 2007. Currently taking Pentasa 500mg/8x daily; Entocort 3mg/3x daily; Percocet/Ultram for pain; Protonix 40mg---was on Flagyl/Cipro for two weeks,(a few weeks ago), was supposed to be on it for three weeks but the cramping and diarrhea it caused made me stop
Now on Prednisone 40mg, stopped Entocort while on pred.
Ferrous Sulfate 325mg/daily for anemia


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 11/8/2007 11:15 AM (GMT -7)   

Here's a link, when it loads in, scroll to the top of the page to read the article about probiotics from the beginning...

http://www.cbc.ca/health/story/2006/10/12/probiotics.html#skip300x250

 

 

I've taken flagyl many times and never noticed any improvements from it, but everyone is different.

 

Always take your probiotics at least 2 hours AFTER you're done taking any antibiotic for the day.

 

:)


My bum is broken....there's a big crack down the middle of it!  LOL  :)

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