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mightiemouse
Regular Member


Date Joined May 2006
Total Posts : 109
   Posted 11/8/2007 9:21 AM (GMT -7)   
so i've been in remission for a year and a half.  i'm not on any meds and i've felt great until recently.  i'm so tired!  i sleep 10-12 hours at night and take a nap whenever possible.  i'm having a hard time going to work and school.  it sucks.  i've had a little bit of D here and there, but not anything to be too concerned with.  i'm just bummed...how can i possibly be THIS tired?
 
i guess i don't need any answers, i just wanted to share with people who can relate.
 
ps.  oh yeah, and i blacked out in the shower yesterday morning.  what's up with that?
22 yrs.  grad student in so cal.  diagnosed summer '05, symptoms since '03.  asacol, endocort, bad reaction to 6mp.  currently med free!  many abcesses and fistulas, minor stomach pain, occasional D.
                               
 
i will not let this disease define who i am or where i'm going in my life.


chelsea_doll
Regular Member


Date Joined May 2006
Total Posts : 229
   Posted 11/8/2007 9:22 AM (GMT -7)   
I felt like this until I started getting B-12 injections,maybe you should have your dr check your levels

Clcaj
Regular Member


Date Joined Oct 2007
Total Posts : 82
   Posted 11/8/2007 10:51 AM (GMT -7)   

I would strongly encourage you to have your blood levels checked for anemia, B12 deficiency and an underactive thyroid.   All of these conditions can make you tired and are treatable.  I'm sure there's several other things your doctor should check for too, but you definitely need to go to the doctor if you're blacking out in the shower.

Good luck to you!


flutterby26
Regular Member


Date Joined Feb 2003
Total Posts : 401
   Posted 11/8/2007 12:06 PM (GMT -7)   
Im sorry you have been feeling so zapped. I know how it feels to just want to sleep all day. When it feels like work just to get into the shower. I agree with everyone else about the B12 and other tests to get. I have one more suggestion. I have a big problem with my potassium. It makes you feel pretty worn out and can cause you blackout. Your heartbeats really fast. Its pretty dangerous because you can have a heart attack similar to when people have too much potassium. They can check it in a BMP I believe. It might be worth looking into. I hope you get your energy back and don't blackout anymore. That is scary! Keep us posted on how your doing.

Clcaj
Regular Member


Date Joined Oct 2007
Total Posts : 82
   Posted 11/8/2007 12:09 PM (GMT -7)   
Were you in pain when you blacked out?  I've blacked many times from cramps/pain, but never without pain. 
DX: mild to moderate Crohn's for 34 years
Additional benefits: chronic anemia, B12 deficient, peripheral neuropathy, facial mylagsia, joint pain, underactive thyriod
Current meds: Colozal, Nexium, Entocort, Flagyl, steriod cream, monthly B12 injections, Neurontin, Synthroid, Effexor ER, pain meds as needed


mightiemouse
Regular Member


Date Joined May 2006
Total Posts : 109
   Posted 11/8/2007 12:10 PM (GMT -7)   
Thanks everyone. I have an appointment on tuesday and they did a bunch of blood work so i'll get the results next week. if anything is low, i'll be glad to figure it out to stop this rediculous fatigue.

thanks for the suggestions! i'll bring those things up.
22 yrs.  grad student in so cal.  diagnosed summer '05, symptoms since '03.  asacol, endocort, bad reaction to 6mp.  currently med free!  many abcesses and fistulas, minor stomach pain, occasional D.
                               
 
i will not let this disease define who i am or where i'm going in my life.


KayDee
New Member


Date Joined Nov 2007
Total Posts : 12
   Posted 11/10/2007 8:30 PM (GMT -7)   
I suffer from extreme exhaustion as well.  Have had CD 30 years and always had some level of fatigue.  In the last 5 years has gotten progressively worse.  Have B12 injections.  Have regular checks for anemia.  about once every 18 months my iron is slightly low and I get an infusion.  The past 2 years I've slept 10-12 hours a night too.  I'm always lethargic.  Had resection surgery in Aug.  Still suffer from fatigue, to the point where I'm not sure if I can return to work.  The surgery did not help this aspect and I'm thinking something else is wrong.  Always just related it to Crohns.  I can totally relate to your problem.  It's debilitating and I don't think any of my DR.s really understand the level of fatigue. Good luck with the battle.   I'd be interested in hearing how you make out. 

inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 11/10/2007 9:46 PM (GMT -7)   
I can really relate. As others said, even if you are in remission, you may not be taking in the nutrients you need. I go through bouts of similar exhaustion. I don't know what it is about showers, but that is one place it hits me most. Several times over the years I've grown weak and almost blacked out in the shower. I end up sitting on the floor of the shower or bathroom too weak to turn the water off. Maybe the heat exacerbates things...

Hope you get answers and help after the results from your lab work.
Currently in remission!

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