Low residue diet and possible problems

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Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/8/2007 11:33 AM (GMT -7)   
I had 3 obstructive episodes back in February and March and spent about 3 1/2 weeks in that time in the hospital.  I finally figured out on my own of course, that I needed to modify my diet.  So since then I have been on a low residue diet.  It has for the most part helped. I have also started probiotics.  My problem now is that I am getting constipated a little more often.  In fact lastweek I didn't go one day and my stool got so hard that I past a fair amount of blood because I was so constipated. 
Took stool softners for a few days and that helped to get things moving again.  But I have also missed the past three days of work because my stomach has been upset.  I think because my system is so slowed down. 
 
My question is this, should I ease up on the low residue diet?  Do you think it is causing the C?  I know on this diet I do feel better but because of my type of Crohns (stricturing) I worry when i start getting C again.  Thats usually a sign that something is going on inside again.  Most of the time I feel okay, but this C is concerning me.  Any thoughts appreciated.
 
God Bless,
Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/8/2007 12:25 PM (GMT -7)   
Hi Nanners I am on it too and like you find I get C. If you could put something in your diet that helps get things going I am just becoming aware of this problem myself and like you I don't want to get obs. I am finding I have to drink apple auce more often when I get not moving. I drink a glass in the am. ,and up my apple sauce and banana. I ate some baked beans in molasses last night. That helps me get the air flowing better. I was thinking a fibre supplement and trying just a little. They also suggest several small meals for slow moving systems. I find for the first time in years that I am learning what constipation is so know better when to not get that way after last week. I am hoping that knowledge will help me. Let us know what you decide and what you will do to loosen up things. Just remember to go slow on your changes. lol gail

inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 11/8/2007 8:47 PM (GMT -7)   
I've been a low residue diet for years. I have stricturing CD too, but haven't found the C to be a reason to worry (it doesn't seem to correlate with obstructions for me, but my strictures are in the ileum where everything is liquid anyway). C with blood, though, is no good. Keeping very hydrated helps. And I do sometimes add in a breakfast cereal with some dietary fiber. I think a supplement might be an easier/safer route to take first. I think if you experiment slowly you can find a balance between the relief the low res diet gives you and the C.
Currently in remission!


Marie-Claire
Veteran Member


Date Joined Mar 2007
Total Posts : 900
   Posted 11/11/2007 12:05 AM (GMT -7)   
Hi, I have strictures and cannot tolerate a high or even normal fiber diet. It has me screaming in pain...so I am on a low residue diet. When I do get C, it is usually because I haven't been drinking enough water. You can try Boost with Fiber as well. Bananas are great for me or a bowl of cheerios usually get things moving. ...but the water is key, which is why i'm always sucking on ice cubes , instead of munching of potato chips or junk at night, I fill up a large glass with ice cubes.
Of course, my CD has always been more C than D.
50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.
 
 


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 11/11/2007 11:27 AM (GMT -7)   
Nanners,

How have things been going? I can't help you with the diet because I don't think I've ever had C in my life unless I was having an obstruction. I hope you can get things under control. I didn't realize you'd been having problems, has your doctor mentioned going to stronger meds at all? Do they think your narrowing (that caused the obstructions) was caused by inflammation?

Keep us updated on how you're doing.
Judy
49 years old, Crohn's Disease   
Six resection surgeries, permanent ostomy, adverse reactions to Remicadeback on 6MP for maintenance, hoping for a long remission from this last surgery. 
 
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/11/2007 12:18 PM (GMT -7)   

Thanks everyone for their replies.  Have had a pretty rough week.  I think the C started it, but I missed Tues thru Fri of this week because I haven't felt well at all.  Really, really nauseous.  Tell the truth I don't think its because of the Crohns but because of anxiety and stress.  When I miss work I get stressed that everyone is going to think bad about me, or my family will think I am weak, you all can understand, because I am sure you all have felt that way one way or another.  And then of course the stress etc just makes you feel worse.  And now it looks like I won't have any family other than my husband for Thanksgiving.  And he doesn't really celebrate holidays.  Not for any religious reasons, but because he never grew up with those customs. (He's Mexican).  I was feeling a little better this morning, but had a family argument and now I feel bad again.  I think I need to look into seeing some kind of therapist, because this anxiety is really tearing me up.  I have Valium and it helps some, but being pulled in all kind of directions is about to kill me.  Sorry to be such a downer, but my heart hurts so bad today, its one of those days where everything else seems to be winning.  I hate this f'g disease and weak stomach of mine.  Thanks for letting me rant.  Hope all are having a better day!

God Bless,

Gail *Nanners*


Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 11/11/2007 12:29 PM (GMT -7)   
I'm sorry to hear you're feeling so bad, but I do understand. I've never climbed out of the funk I've been in since before my surgery and I haven't been back to work yet, talk about feeling useless. I want to start seeing a therapist myself, but my old one has retired and I haven't looked into finding another one. I loved my therapist, I wish I could have cloned her. I've seen one other since and we just didn't click, I quit going.

Sorry I can't cheer you up, but know you're not alone.
Judy
49 years old, Crohn's Disease   
Six resection surgeries, permanent ostomy, adverse reactions to Remicadeback on 6MP for maintenance, hoping for a long remission from this last surgery. 
 
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/11/2007 12:32 PM (GMT -7)   
Thanks Judy. At least knowing that someone understands means alot to me. And it helps not to feel so alone.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/11/2007 3:32 PM (GMT -7)   
Hi Nanners I am thinking that sometimes we have one of those weeks and am having my share here with family issues. I know it can get us down at times and hoping I also get out of this funk!! Sure do hope you feel better soon and that you are doing better now. I know your strength will bring you around soon. Just tried some reading myself to get my mind off problems and it does help for awhile but still have things to get past. Sometimes it just takes a little time. Hope you do good with therapy if you decide to go . Hang in there and vent all you want besides it gives us help in dealing with our down days when we see others have some . lots love gail

Marie-Claire
Veteran Member


Date Joined Mar 2007
Total Posts : 900
   Posted 11/12/2007 1:51 AM (GMT -7)   
Hi girls, Funny I was just thinking tonite, that it may be time for me to seek a bit of counselling. My daughter is 9 and some pregnant....due any day now. I have been having nightmares about all the terible things we (and my beautiful girls) endured at the hands of their father. I keep having bad dreams about when they were little and I couldn't protect them...that is until I found out and moved us out here. The girls have been through 11 years of counselling and seem to be doing well. with the coming of this new innocent little girl, I am having a lot of flashbacks and anxiety. I have been crying for a week. I had to give up all family to keep my girls safe....so this little one is coming into the world without all the extended family that was the only part of my childhood that made me happy. I don't know....My CD is acting up...I'm crying every two minutes...I'm feeling awfully alone and terrified. Maybe its time I went for counseling myself after all those years. I'm going to have to do something because my grandbaby will be here any day now, and she and her mom will need grandma to be on the ball, and able to keep it together.
thanks for listening dear friends....I just feel so helpless sometimes and afraid for the future. My faith is usually very strong, but these memories have thrown me down in the gutter again. It was a hard climb up for all of us and It always catches me off guard when I 'm thrown off balance again. I guess that's life.
I so thankful that you are here....forgive me for ranting.
Tired old Mary
50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.
 
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/12/2007 6:03 AM (GMT -7)   
Hi Mary Sometimes we give too much of ourselves up to the past and it is hard letting go. Now you have had some crying I hope you are ready to put bad times behind you. Your right your little one will need your help and she won't be alone with some help from you. Try to think about the new things in life that you all will enjoy a child does bring lots of love and it is great to be able to share in that. Think of the postive things a person can do start a scrape book or something that will be a gift for the child when it grows up. I loved the pics over the years it can be fun, I have lots of things put away from when my child was small. Don't feel alone and talk more when you need to. Let us know when the little one gets here. lol gail

Marie-Claire
Veteran Member


Date Joined Mar 2007
Total Posts : 900
   Posted 11/13/2007 7:46 AM (GMT -7)   
Gail, thank you so much for reminding me that the past is the past. We have been thru a lot in the last 11 years, but we have grown stronger and closer as a family.
This little girl is being sent to us for a reason. she has much to teach us, as we do her...but most of all, she will be cherished and loved with all our hearts and soul.
I guess over the years, being so busy putting my two girls "back together again" . I haven't had much time to grieve myself. It's no wonder, the doctor says, I have CD and MS and arthritis among other things. Our tired old bodies take the brunt of our stresses and grief.
You are such a blessing ....thank you my friend for helping me re-focus on the positive!!
Mary
50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.
 
 


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 11/13/2007 7:52 AM (GMT -7)   
It still wouldn't hurt to see a therapist, you have a lot on your plate right now. I just did some research in my area and have a few calls/Emails into local therapists that specialize in chronic illness. I found them through a Medicine Net search engine for Psychologists:

http://therapists.psychologytoday.com/medicinenet/prof_search.php

Just in case anyone's interested ;0)
Judy
Crohn's Disease   
Too many surgeries, ileostomy6MP for maintenance.
 
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/13/2007 2:56 PM (GMT -7)   
Thanks Judy!!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

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