totally freaked out

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megamax
Regular Member


Date Joined Apr 2007
Total Posts : 217
   Posted 11/9/2007 2:08 AM (GMT -7)   
I am totally freak out!!!!!
 
firts my crohn's then I have a white mass under my tongue ( going to get a biopsy next week)  and now my research nurse called because I have acute or crohnic atelectasis( part of my lungs are collapsing)going for another xray  what the h...l is going on with me....don't know what to do anymore I am so scarde I
I quit smoking as of now
can't sleep right now...it's 1 am
I feel like I am falling a part....
 
just needed to vent
and need prayers please.
 
 
Jackie
 
 
Megamax
 
 
35 yrs female, dx with crohn's on july 13th 07 increasing my  entocort 9mg 6mg 3mg    . starting imuran 250 mg had a allergic reaction  can no longer take it .  pariet ,dx with depression in 2002 ,effexor tappering off, welbutrin,resperidone and lemotrogine.
 
 


malakai
Regular Member


Date Joined Aug 2007
Total Posts : 277
   Posted 11/9/2007 2:49 AM (GMT -7)   
I will say a prayer for you tonight and keep you in my prayers..... Keep us posted.

<virtual hug>

Jessica
Newbie - 35 yrs old Diagnosed: 08/03/07
Meds:
Asacol 3x day
Imuran 50MG 3 x day
Lamictal 125 MG/day for bioloar II


Marie-Claire
Veteran Member


Date Joined Mar 2007
Total Posts : 900
   Posted 11/9/2007 3:41 AM (GMT -7)   

Dear Jackie,

This must be so frightening for you. Fortunately you will be getting answers soon...Not knowing what is happening to us can be so scarry. Once they know exactly what is going on they will find the right treatment , and you will be better soon. In the meantime , my love and prayers are with you. Come to us often o.k. we will be worried about you and will want to know how you are doing. Your virtual family is behind you 100%.

Much love

Mary


50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.
 
 


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 11/9/2007 3:59 AM (GMT -7)   
Hi Jackie,
My prayers are with you.

TBW
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/9/2007 5:20 AM (GMT -7)   
Hi Jackie I am glad that they found this out at least now you can get on the way to getting better.I have lung issues too so I can understand how worried you are .Hopefully it will be a small area that has collasped. Please take care and keep in touch. I did look it up and it does say some things on how to help it. What is your Dr. suggesting to do for it? Best Wishes going your way. lol gail

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/9/2007 5:29 AM (GMT -7)   
Hi again just wanted to say that QuitNet seems to be a good site where there are forums to read so it might help with the quit smoking I read some yesterday. lol gail

dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 11/9/2007 6:57 AM (GMT -7)   
aww jackie. my thoughts are with you *big giant hugs*
.: stephanie :.
32 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
currently taking 20mg prednisone, 4000mg pentasa daily & vicodin for pain


megamax
Regular Member


Date Joined Apr 2007
Total Posts : 217
   Posted 11/9/2007 2:16 PM (GMT -7)   

thnak you so much....I was reading the post and started to cry....good cry knowing I have you guys support...

I went to the hospital and got another chest xray...at this point the dr doesn't if I will still be a candidate for abatacept...

 

so by the end of next week I will know about my xray and the mass under my tongue....

 

thank you for your prayers it means a lot to me....

 

jackie

 

 


Megamax
 
 
35 yrs female, dx with crohn's on july 13th 07 increasing my  entocort 9mg 6mg 3mg    . starting imuran 250 mg had a allergic reaction  can no longer take it .  pariet ,dx with depression in 2002 ,effexor tappering off, welbutrin,resperidone and lemotrogine.
 
 


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 11/9/2007 8:03 PM (GMT -7)   
Just sending more prayers. Keep us posted!!!!
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!
 
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/11/2007 5:16 PM (GMT -7)   
Hi Just wanted to drop a line and see how you are doing now.Hope you are not feeling too stressed. How are things going .I haven't herad from anyone this week about meds or GI so feeling in limbo I guess. Just wanted you to know I think about you often. lol gail

megamax
Regular Member


Date Joined Apr 2007
Total Posts : 217
   Posted 11/13/2007 12:04 AM (GMT -7)   
Hi Gail....thank you for for asking :-)

I am seeing my ENT dr tuesay morning and I am waiting for my second chest xray this week AND I quit smoking since nov 9 with the nicotine patch and nicorette gum .....it;s weird... my stomach doesn't really hurt anymore and I only go 1 to the barthroom so I hope I still am a candidate for the abatacept I will find out all my reasult by the end of the week...


how are you doing? any news on the cimza?
Megamax
 
 
35 yrs female, dx with crohn's on july 13th 07 increasing my  entocort 9mg 6mg 3mg    . starting imuran 250 mg had a allergic reaction  can no longer take it .  pariet ,dx with depression in 2002 ,effexor tappering off, welbutrin,resperidone and lemotrogine.
 
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/13/2007 6:28 AM (GMT -7)   
Hi So glad to hear you managed to quit. No word yet on the meds but like you I have to quit and going to try this week am sheduled for lung funtion test this week .Having some teenage issues to deal with and about to pull my hair out why wait for the meds to do it eh! Still not cleared up from the cold and sporting a new puffer this week but not cleared out yet. Will be waiting to see if you do go on the abetacept .Snowing down here today so might take up Sniper's singing and do some cleaning .I'am waiting to see if he does us up a xmas song .Ha ha .Best Wishes lol gail

megamax
Regular Member


Date Joined Apr 2007
Total Posts : 217
   Posted 11/13/2007 9:34 AM (GMT -7)   
lol Gail.I know you can quit smoking...if I can you can. good luck ...let it snow! let it snow! let it snow!...here I sang for you....sorry I broke your window with my lovely voice...cath you later I am going to see my ENT ......hopefully its just a fungis
Megamax
 
 
35 yrs female, dx with crohn's on july 13th 07 increasing my  entocort 9mg 6mg 3mg    . starting imuran 250 mg had a allergic reaction  can no longer take it .  pariet ,dx with depression in 2002 ,effexor tappering off, welbutrin,resperidone and lemotrogine.
 
 


Erik45
Regular Member


Date Joined Oct 2007
Total Posts : 149
   Posted 11/13/2007 9:48 AM (GMT -7)   
Get well soon my prayers are with you..
Crohns for 11 years
1 surgery so far
2 times in hospital for blockages
MEDS:
Remicade
Imuran
B12 Injections

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