Should I taper off of Entocort, Imuran, Pentasa?

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john's girl
Regular Member


Date Joined Jun 2007
Total Posts : 75
   Posted 11/9/2007 9:29 AM (GMT -7)   
Hi everyone!

I should be starting Humira next week, and I was wondering if anyone's tapered off of Entocort, Imuran, or Pentasa before. My GI told me to take two pills of the Entocort instead of my usual three until next week, but I'm not sure what to do about the Imuran or the Pentasa. Does anyone have experience tapering off these drugs?

Thanks!!!

bektold
Regular Member


Date Joined Jul 2007
Total Posts : 456
   Posted 11/9/2007 10:12 AM (GMT -7)   
You're doctor probably wants you to stay on those.  I'd call and ask.

teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 11/10/2007 3:35 AM (GMT -7)   
Hi I would ask my doctor before doing any of that.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 11/10/2007 6:16 AM (GMT -7)   

I agree to ask your Doc. Mine wants me to stay on Entocort long term.  I decided I would try to go down to 2 pills of entocort a day and at about day 3 I got very bad D and all the signs of a flare. I went back up but I still don't feel right. I think it threw me out of whack or something.

Just make sure your Doc is aware what you want to change etc... He/she might let you taper off one at a time or something.

 

good luck

Karen


 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On Azathioprine (generic Imuran), Pentasa, & ENTOCORT

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also have Arthritis, and feel like I am falling apart sometimes...


njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 11/12/2007 12:01 AM (GMT -7)   

My daughter took 9 mg Entocort for 6 weeks, then 6 mg for 4 weeks, then 3 mg for 4 weeks, then 3 mg every other day...the third of the "off" days landed in hospital. Failed taper.

After using pred to recover, had to start all over again. 9 mg Entocort for 8 weeks, 6 mg for about six months, then 3 mg for the past five months...not going off Entocort any time, soon, because prefers to stay out of hospitals. 

 

 


john's girl
Regular Member


Date Joined Jun 2007
Total Posts : 75
   Posted 11/14/2007 9:20 PM (GMT -7)   
Ok ,my GI doctor said that I could stop the Imuran and the Pentasa immediately, no taper necessary. He said to go down to 2 mg of Entocort (from 3 mg) for the next week. I've been on Entocort for the past 4 1/2 month - is 2 pills per day for a week too fast of a taper?

karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 11/15/2007 12:55 PM (GMT -7)   
john's girl, I guess you can just see how your body reacts. when I tried to taper of entocort to 2 pills from my 3 a day on the 5th day I was very sick.... but we are all different!

Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also have Arthritis, and feel like I am falling apart sometimes...


Jenn4dex
Regular Member


Date Joined Mar 2006
Total Posts : 494
   Posted 11/15/2007 3:59 PM (GMT -7)   
When I tried tapering Entocort from 3-2 to the 1 pill a day I went into a crazy flare, I even got insomnia, felt like withdrawals. But I stayed on one for 3 more months and then one day was able to just stop!
Jennifer
Diagnosed 1/06
CD of Terminal Ileum
Taking Pentasa, Prograf, adverse reactions to Remicade, Forteo Injections, Actonel, Calcium and Vitamin D, B12 injections.

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