I need to scream

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dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 11/9/2007 12:39 PM (GMT -7)   
Hi all I know it has been a while.  My husband and I moved in with my papa on the 28th of Oct.  My fistula had not gotten much better, my GI put me on Cipro and 2 week later there was no progress.  Keep in mind I was still going to work every day no matter the pain I was in and I work at a Hospital.  On Thursday the 1st my colorectal surgeon saw the fistula (since my GI scripted the cipro without seeing the fistula also my GI had me go for the MRI enterography).  He told me I had to be admitted to the hospital I asked for a note for work which I brought over before I went to admissions so they knew I would be out.
 
I have a picc line again  this time it is for TPN.  I am able to have clears but in the past cpl days my pain has increased so I am cutting down on the amoluont of clears I am taking in.  My BP this morning when the nurse came was 70 something over 40 something mine usually runs low but not that low anf my pulse was 88 and mine is normally 107.
 
I went out to the store to get a cpl of things since my Dr gave the okay for me to return to work Monday (the 12th)  I left a voice mail for the nurse manager that I owuld be returning Monday esp since the dept I was in was understaffed. 
 
I was in the store got a cell call from another nurse manager (there are a few some are managing larger groups than others) She informed me that since I am not considered a full time employee (on my papers it says temp and in the hospitals PC it says per diem) that since I have been out 6 or more days that I no longer have a job.
 
I am going in to HR on monday since I called them I was never informed of this 6 day rule when hired and in my hire packate I was given the medical forms with a sticky paper on it stating that they were the forms so when and if I get hired as a "full time" employee that these were my papers to full out.
 
 
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 11/9/2007 12:55 PM (GMT -7)   
I'll try this again, the web site's giving my fits today.

Hi Stef,

I've been wondering how you were doing, I'm glad you posted.

Sorry to hear about your job. This disease can really play havoc with our jobs/careers. I hope going to Human resources will straighten things out, if not they're cutting off their nose to spite their face, especially if they're shorthanded.

So why did they admit you exactly? For the TPN? Did it help? Obviously you're out of the hospital now, are you on home TPN? Are you on any other treatments for the fistula and is it working?
Judy
49 years old, Crohn's Disease   
Six resection surgeries, permanent ostomy, adverse reactions to Remicadeback on 6MP for maintenance, hoping for a long remission from this last surgery. 
 
 


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 11/9/2007 5:25 PM (GMT -7)   
I am doing home treatments of TPN. They placed a picc line last Friday. I started with just sips of water with pills and they found clears were ok and was not increasing the fistula output...also thatg was the weekend I did my HUmira, now that I dont do my Humira til next week I did notice an increase in output but not as much as there was when I was eating. Due to this I did decrease the amount of clears I am taking in (but I am not on IV fluids so I need to be careful). I again am having issues with my next script of humira...I informed the pharmacy I will need it in a week I changed locations of the phmarmacy but still the same pharmacy so the scripts are all accessable thru the intranet. They looked and it is saying it wont be covered til Dec...so here I go again...

to top it all off 1 of my cats has been losing weight, lethargic etc my hubby thought she stopped eating since she was depressed but I thought she had also started to lose weight before the move. I looked at her closer tonight since she is really boney and sje is jaundiced....skin and ears are yellow eyes, gums and footpads are still normal color but having no job I cannot afford treatment so I have a feeling she will be euthanised which I cant really fathom she is only 6....sry went off on a tangent.

TPN is much diff than when my parents hooked me up to it 20 yrs ago. the lipids and tpn are in 1 bag I just add vitamins. It has a pump that is preprogramed and there is no pole it is all in a bag that can be worn as a backpack.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 11/9/2007 5:47 PM (GMT -7)   
Sorry to hear they had to resort to TPN for you, especially so soon after surgery. I hope you don't have to be on it long, hopefully the Humira will help pretty quickly. I know no one wants to keep you on TPN long term, so they must be looking for a quick resolution. Have they talked about surgery again at all? My one and only abdominal fistula cleared up pretty quickly with the combination of 6MP and Remicade.

I'm sorry about your cat, sounds like she's in liver failure, hopefully she won't suffer much whatever route you have to take with her. I understand about not being able to afford it. My husband and I have had some pretty frank discussions about how much we're willing to spend to treat our animals over the years, just like human medical costs, veterinarian costs are skyrocketing. I always had insurance on my horses because treatment was usually way out of my price range.

Keep us posted on what happens at work and how you're making out with the TPN.
Judy
49 years old, Crohn's Disease   
Six resection surgeries, permanent ostomy, adverse reactions to Remicadeback on 6MP for maintenance, hoping for a long remission from this last surgery. 
 
 


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 11/9/2007 7:58 PM (GMT -7)   
dragonfly- It is absolutely INSANE that your job fired you for being in the hospital. I want to say that is illegal but if you were an "at will" employee I'm really not sure. I would suggest you speak to a lawyer, either one that works on contingency or one from a low cost or free clinic. Check with the local law schools for a referral. However, if you work in the medical field and jobs are plentiful it might not be worth the hassel. Maybe, just maybe, this is a blessing in disguise. I know you are broke. I know you need to put food on the table. But... if moving in with your Papa cut down your expenses some, maybe you can just get your body a little more healthy before you go back to work. Honestly, I have never had to deal with fistulas so I don't really feel experienced enough to counsel. But, it seems to me that if you can't even eat, you probably shouldn't be working. I know it is easier said then done but maybe the powers that be are giving you this as a blessing, to force you to recover. How about unemployment? That should help fill the gap for a little while. As far as your kitty, is there a vet school nearby? You might be able to get lower cost treatment there. You could check with your local humane society too. Some have programs to assist hurt or injured animals. Also, didn't you work for a vet in the past? Maybe they would be willing to give you cheaper care. I am so sorry you are going through so much and I honestly don't know how you handle it all. I hope you have someone to talk to... and you always at least have us!!!!!!!
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!
 
 


malakai
Regular Member


Date Joined Aug 2007
Total Posts : 277
   Posted 11/10/2007 2:37 PM (GMT -7)   
I'm sorry to hear that this had to happen to you dragonfly.

Yeah if you are a TPT or temp employee and at an at will state they can do that to you unless you were in a union. They would do that here in WA. Also if you were on a probationary period they can do that. I would definately go see HR when you are able to to see if they can enlighten you on why this happened and hopefully it was an error on their part.

Now that you and your husband moved in with your Papa are you guys able to pay bills without your salary? If you can afford it, I agree with the person that says to rest until you can get your strength back and body in balance.. I know that it sucks because you just want to take care of business. I live with my auntie and Uncle but I think it is a blessing in disguise. I hate being at home staring at my auntie since I had to drop out of school but if I would have stayed status quo, I probably would have lost my job too because I kept being absent pushing myself too hard and body was rebelling. I work part time (28 hrs) at a hospital too but I am in a union and I had FMLA so atleast that protects my job for a while.

<virtual hug>
Newbie - 35 yrs old Diagnosed: 08/03/07
Meds:
Asacol 3x day
Imuran 50MG 3 x day
Lamictal 125 MG/day for bioloar II

Post Edited (malakai) : 11/10/2007 2:43:40 PM (GMT-7)


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 11/10/2007 5:55 PM (GMT -7)   
Hi all

I do plan on going to HR on Monday so they can clarify my emploment status since in their PC it says I am a Per Diem employee which in term means I tell them when I can and cannot work and they would let me know if I was needed on the days I am available.

As for my cat I knew last night that it was fatty liver syndrome just from looking at her and knowing how she was before. Yes I had worked for a vet before and that is how I knew the Dx before I even brought her to the Vet today. Where I use to work would not have given me anything cheaper trust meon that one.

I paid for an exam at the vet just to see if it was too far gone to be inoperable (I felt it was too far but wanted to make sure) They gave me an estimate to keep her hospitalized till Monday to have her on IV fluids etc, he was surprised that she was eating wet food and treats when offered and not vomiting it back up. Most if they do eat (since mainly the cause of her ailment is lack of eating for 2 days to 2 weeks) and if they do they vomit it up. The estimate did not include xrays to rule out gall stones blocking the bile duct, or an ultrasound to check the liver. the Est amount was $560 for just the basics. My husband (who was at home )told me on the phone he knows how much I love her and spending that much would be okay he was also worried that even after spending that that she would still need to be put down.

I had then run a liver panel with some other blds and the bilirubin is supposed to be 1 and hers was 17.5 her other values were raised too including her kidney values which can also be casued by liver disease. The vet told me that esp at her lvl of bilirubin it is even a lower % that she would live....the average that live after fatty liver disease is 35%...He said it would probably take at least a week or 2 to get her back to herself and that would be 1000 to 2000 a week. Obviously I cannot afford that. She hadnt been herself for a few days at home...not hiding when strangers came in ...the IV nurses...and purring thru the entire vet visit even when poked for blood...she is the type that you need the special gloves for etc. She was only 6 but it was her time. I told the vet since the outcome is very grave I would not want to put her through all of that.

When I spoke to my mom later tongiht (she came to the vet after I called her but she came after they had euthanized her na dstayed with me for a bit there) I told her that someone died 2 day after each time I got laid off this year. My nana passed the morning after I was laid off from the animal hospital and I got laid off from the memorial hospital yesterday and had to euthanize my cat today.

My other cat seems to be looking for her (they have been together all but 6 months of their lives) they were close but not all the time lol.
I really cannot handle anymore bad news this year
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 11/10/2007 8:57 PM (GMT -7)   
So sorry about your cat!! But, it really does sound like you made the right decision. I hope you get to feeling better soon and that whatever outcome you are hoping for happens at HR.
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!
 
 


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 11/10/2007 9:39 PM (GMT -7)   

Dragonfly,

I am so sorry to hear your having so many problems to deal with at one time.  I am not sure re your job situation as I dealt with the unions and even our per diem staff were union nurses. I believe you are doing the right thing in going to the HR department.

I was also surprised that with your BP at 70  the staff was not more concerned but that is just me. :)

As for your dear pet, I know that pain well and very recent as I had to put my best friend, my dog, to sleep just 10 days ago and it is such a huge loss.

You are in my prayers and I hope you will soon be on the uphill side of this road trip.
Gentle Hugs
Kitt
 
Moderator Anxiety ~ Panic Disorders
*~* Not a mental health professional at all *~*
Dx: Anxiety/Panic, Depression, GERD, Osteoarthritis
*Wife of a Crohnie*
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It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~
 


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 11/10/2007 10:33 PM (GMT -7)   
Stef,

I'm so sorry you had to put your cat down, it's a hard decision but a responsibility we all face with our beloved pets. I hope things start looking up for you soon. Look at it this way, this year's almost over, maybe 2008 will be a better year.
Judy
49 years old, Crohn's Disease   
Six resection surgeries, permanent ostomy, adverse reactions to Remicadeback on 6MP for maintenance, hoping for a long remission from this last surgery. 
 
 


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 11/11/2007 8:06 AM (GMT -7)   
I ttoo am so sorry for eveything you are facing and going thru

Really sad about your kitty hun

Everyone has given great input so I will end with the fact that we are here and we do care.........you know that

Keep us posted plz

LYN
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LynnRN
Regular Member


Date Joined Oct 2007
Total Posts : 289
   Posted 11/11/2007 4:28 PM (GMT -7)   
Just sending hugs :-)

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/11/2007 4:47 PM (GMT -7)   
Hi So how is your other cat? Hope she or he is getting lots of love. It is not so bad parting when you know you have something to cuddle. Have had lots of animals from sheep to cows goat, and even turkey's on the barn roof. Lost my rabbit this spring and she used to run around the house quite funny mind you with her jumps in the air. Hope you feel better soon .How is your Papa doing, bet he loves having someone around ? Take care and be well .lol gail

gemini kiwi
Veteran Member


Date Joined Nov 2006
Total Posts : 1136
   Posted 11/12/2007 12:14 PM (GMT -7)   
Stef, things will get better for you soon....................they have to.
{{{{hugs]]]]
Tess

Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 11/12/2007 5:37 PM (GMT -7)   
Dragonfly....the tough gets tougher for you....i admire your determination.. Keep on keeping on!

the other day my friend sent me a text message.

it said "when things life gets you down, and you feel like things are too tough, just think...if he can make it, then so can I"

the message included a smiling picture of good ol' O.J. Simpson...
"All we need is love....love is all we need"

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