Average dose of Prednisone? Or highest?

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Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 11/9/2007 9:29 PM (GMT -6)   
Just curious as to what most people take. Last year, my doc weaned me from the IV steroid to 50mg before leaving the hospital both times. Then I slowly weaned off that after awhile. GI wasn't comfortable with me taking more than 50mg.
 
I'm back on 20mg because I'm starting to flare but am not noticing the side effects (yet) that I had at 50mg.
 
I take 10mg when I'm struggling with asthma and it usually kicks it into shape.
 
What is the most you've taken? What is the "average" dose for someone with Crohns? What do YOU consider to be high doses of the evil stuff? ;)

Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 11/10/2007 6:14 PM (GMT -6)   
Friendly bump for more responses =)

Mac_Gyver
Regular Member


Date Joined Aug 2007
Total Posts : 350
   Posted 11/10/2007 7:03 PM (GMT -6)   
most I took was 40mg
Symptoms Of Crohn's June of '06 (21 years old 285lbs). Colonoscopy in Jan '07 no sign of Crohn's.
Surgery for a Fistula in April '07, diagnosed suggestive Crohn's in May '07. August '07 small bowel follow
through, diagnosed with Crohn's (22 years old 160lbs). On HUMIRA, Prednisone
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EmmyT
Regular Member


Date Joined Oct 2007
Total Posts : 75
   Posted 11/10/2007 7:21 PM (GMT -6)   
The most I have taken is 80 mg. Now, I've taken it so much that even when I am on 10mg side effects start.

chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 11/10/2007 8:51 PM (GMT -6)   
My highest was 60 mg.

paintedsongs
Regular Member


Date Joined Jul 2005
Total Posts : 207
   Posted 11/10/2007 9:41 PM (GMT -6)   
I am currently taking 60 mg, but I am being treated for Pyoderma Gangrenosa. The highest I was on related to Crohns was 40mg. I recently read that 60mg and over is considered a "high" dose but that was just one reference I found. On 40mg, I tapered down and remeber from the 20mg down it took me a while to get off of that.. I am fearing the "moon face" this time around.. did not get it in 40 and lower.. there have been several posts recently about prednisone..and the lovely side effects that we go through.. take care

tinglebell
Veteran Member


Date Joined Apr 2007
Total Posts : 530
   Posted 11/10/2007 10:00 PM (GMT -6)   
Hi. I have been on 40mg at the highest and am now down to 10 mg. I am also on entocort 6 mg so my moonface could be from that. I haven't gained as much weight this time on pred, I was on 20 and weaned down. My rheumy says I can start weaning down soon very slowly and can even stay at 5 mg if need be, once the humira kicks in.
DIANNE
Diagnosed at age 19 with CD.
3 small bowel resections, 1 for perforation, 2 for strictures 
 


*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 11/10/2007 11:57 PM (GMT -6)   
highest I had was 20mg, the GI said he didn't want to put me on any higher because i am thin (?)

EmmyT
Regular Member


Date Joined Oct 2007
Total Posts : 75
   Posted 11/11/2007 12:22 AM (GMT -6)   
I don't think weight matters. I am 5'3" and usually about 95 lbs when I need prednizone and have been on 80 mg.

potatoqwn
Regular Member


Date Joined Jan 2006
Total Posts : 355
   Posted 11/11/2007 12:53 AM (GMT -6)   
I was on 80 mg at the very beginning.  Later I read that 80 mg is too high to give a person for a one day total.  At first the side effects took a long time to occur.  The last time I was on it, I swear it was only like a week before I started having all the side effects.  It seemed to have a cumulative effect on me.     

Skjura
Regular Member


Date Joined Jun 2007
Total Posts : 210
   Posted 11/11/2007 11:13 AM (GMT -6)   
My son had 80 mg, and they used the weight to find out how much he could handle.

My highest dose was 40 mg for only two days....had pred just once. Loved it. Got so much energy and all the pain was blown away. No moonface either. But probs while lower doses. ALL my pain returned. :/

Ingrid
 
Diagnosed CD June 2007. Have been on a minor prednisone medication. Did make a difference while max dosed. Got my problems back when tapering.
 
Using Low Dose Naltrexone from sept. 2007. See yahoo.com. A member in the group "lowdosenaltrexone" at yahoo. A mixed group, members with MS, Crohns, Colitis Ulcerosa, psoriasis, other autoimmune diseases.
 
Use home made scd yoghurt containing a lot of probiotics - a benefit for the intestines. I don't use white sugar. No yeast in glutenfree, homemade breads.


dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 11/11/2007 2:12 PM (GMT -6)   
my highest was 40mgs. which reminds me i need to change my signature line ...i am down to 15mgs as of yesterday :)
.: stephanie :.
32 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
currently taking 20mg prednisone, 4000mg pentasa daily & vicodin for pain


thenay
Regular Member


Date Joined May 2006
Total Posts : 167
   Posted 11/11/2007 3:20 PM (GMT -6)   
Highest i've been on was 50mb for a few days, then down to 40mg for 4 weeks.
I gained 10 pounds in a month, got the moonface, sleeping problems, and fast heartbeat.
 
I'm down to 25mg now, should be off pred by early Jan if all goes well.  I noticed the moonface has gone down in the last week and my friends too, so good news for me! :)
 
Glad your not feelin the side effects (yet at least and hopefully you don't) I hate this horrible drug.
Male DX with CD May 2006 @ age 22, Colonoscopy and SBT
Taking Prednisone 25mg, Imuran 75mg (eventually 150mg I was told), Atenolol 25mg for fast heartbeat and Restoril 30mg for the sleepless nights (thanks Pred!)


njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1883
   Posted 11/12/2007 1:37 AM (GMT -6)   
daughter given 60 mg solumedrol

Trsora1
Regular Member


Date Joined Nov 2007
Total Posts : 111
   Posted 11/12/2007 9:20 AM (GMT -6)   
80 sol medrol iv steriod in hospital for a week, then 60mg of predisone when come out of hospital taking months to taper off. Every single time i would get to 15 mg or 10 everything would slowly very slowly start to return. I would lose weight on steriods being on the high dosage but only till i would drop off them get to a low dosage then would put on about 5-7 pounds and side effects would hit.

gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 2919
   Posted 11/12/2007 11:54 PM (GMT 0)   
Highest for me was 40mg. so far. I'm now at 10mg, and all my symptoms are coming back! I've been steadily losing weight, even on the Prednisone...I guess I'm just having a hard time eating
48 yr. old female, diagnosed with Crohn's Sept-Oct. 2007


Curly9878
Regular Member


Date Joined Apr 2007
Total Posts : 165
   Posted 11/13/2007 9:41 PM (GMT -6)   

40mg Was my highest dose...

Gained weight and grew a beard...    Oh yeah...   Good times for the single fat hairy girl that poops a lot.


28 Yrs
Michigan
Newly diagnosed with Crohns


MDdave
Regular Member


Date Joined Nov 2007
Total Posts : 74
   Posted 11/13/2007 9:58 PM (GMT -6)   
20mg to 80mg...80 was for flare ups then backed down to maintain around 20-25

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 17901
   Posted 11/13/2007 10:07 PM (GMT -6)   
40mg is the typical amount and weight has nothing to do with the dosage, 20mg is nothing and wouldn't have the effect needed phoebeskye86, I don't know what your doc is thinking telling you that...I was 95lbs first time I ever went on it and I'm 5'5" so that's pretty thin for my height.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


malakai
Regular Member


Date Joined Aug 2007
Total Posts : 277
   Posted 11/20/2007 3:10 AM (GMT -6)   
Highest I have ever been given was 60mg but it made me ill so they bumped it down to 40mg and weaned me off from there

Newbie - 35 yrs old Diagnosed: 08/03/07
Meds:
Asacol 3x day
Imuran 50MG 3 x day
Lamictal 125 MG/day for bioloar II


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3926
   Posted 11/20/2007 2:56 PM (GMT -6)   
+ or - 40 mg, except on quick tapers, where it might be 80 for 1 day ( do those count?).

Matthew

clavman
Regular Member


Date Joined Sep 2007
Total Posts : 39
   Posted 11/20/2007 6:34 PM (GMT -6)   
40 mg for 2 weeks, then tapered down. Side effects started after began taper. Very happy it worked and made joint pain go away also.
Bob
47 years old
Dx 3/07 Moderate Crohn's in terminal ileum-Probably had it for years earlier
Rx Prednisone initially for 8 weeks-40mg/day then tapered down to 0
    Currently on Pentasa-2000mg/day


croony
Regular Member


Date Joined Aug 2006
Total Posts : 177
   Posted 11/20/2007 6:39 PM (GMT -6)   
most i was on was 60mg.

38 yrs old male. dx with cd of ileum June 2006.
3 feet of large intestine and 1 1/2 feet of small intestine removed because of complications from diverticulitis (fall '03) i.e. hartman's surgery(starting to wonder if i was misdiagonized and was actually CD)
med. : 100mg imuran ,remicade Dec.06 every 6 weeks
 arthritis in fingers and knees


Smrtgrl96x
Regular Member


Date Joined Nov 2007
Total Posts : 47
   Posted 11/20/2007 10:29 PM (GMT -6)   
I don't know how much the dosage was when I had it in an IV, but orally, I typically take a 40 mg taper dose.
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