Over 20 years ago i was told that i have IBS but have never had any tests or investigations to rule out anything else. I can't have a colonoscopy due to other medical conditions. I suspect i may actually have some kind of IBD because i have diarrhea more often than not, have bowel pain - something in my rectum and lower right of my abdomen feels sore and irritated, not just intestinal cramps although i have those as well - and pass lots of mucus, sometimes pink and other times yellowish. Also, usually my stools, whether diarrhea or "normal", are lumpy, pale and floaty (sorry, TMI).
Considering all that, when my 20-year-old developed similar symptoms we thought it was IBS. However, her GP sent her to see a gastro-enterologist and he performed an endoscopy and colonoscopy. He told her that he saw signs of ulcers in her intestinal tract and decided that she had either Crohns or damage from taking too much ibuprofen (for pain relief following a severe injury). Since then she's had 2 follow-up colonoscopies, the first one showing no ulceration but the second one showing some inflammation. Can Crohn's come and go like that? Her doctor also said something about problems with her eyes and her joints, and talked about a link to her bowel problems, but still he won't give a definite diagnosis. She was also tested for Celiac disease but that came back negative. Maybe her doctor is waiting to see if things get worse over time, but wouldn't he be able to tell if it was definitely Crohns from a blood test or biopsy? Also, is Crohns a hereditary thing? Her father also supposedly has IBS - what a family!
~~~I learn by going where I have to go~~~