Iron injections, anyone?

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*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 11/10/2007 9:55 PM (GMT -7)   

Hi all, I hope you are all well. I was just wondering whether anyone on the forum has had iron shots. For over a year and a half I’ve been taking iron supplements to treat my anemia and the doc believes the reason I'm not absorbing it properly is because of scarring in my intestines from my Crohn’s. So he has (finally) given me the option of getting iron shots. Whenever I’d mentioned them before the doctors had pulled a pained expression, and I've heard that they are very painful and can ‘tattoo’’ the skin or leave marks …

 

Just wondering if any one else has had iron injections? My GP says you can get them in your bottom? I don’t want marked skin or intense pain though! Just wondering what you’re experiences have been.

 

Cheers

 

Ps86


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 11/10/2007 10:27 PM (GMT -7)   
I had iron shots many many years ago when I was pregnant with my daughter. All I remember is that they were very painful as they had to scrape the needle along the muscle? I had bruises on my butt for about a year or so, lol.

I think they do something different these days for iron deficiencies. My doctor mentioned a series of 9 shots if I needed it. Thankfully my iron was back to normal my last blood test.
Judy
49 years old, Crohn's Disease   
Six resection surgeries, permanent ostomy, adverse reactions to Remicadeback on 6MP for maintenance, hoping for a long remission from this last surgery. 
 
 


Dave D
Regular Member


Date Joined Aug 2005
Total Posts : 404
   Posted 11/11/2007 5:43 AM (GMT -7)   
Have your Dr. refer you to a Hematologist for an iron infusion. It's an IV where it goes directly into your blood. You will feel great in about 3 days.
No more scars than any other IV.
Dave D

Retired male in late 60's. Perforated Colon in 92. Diagnosed as Ulcerative Colitis in 93. Uncontrolled flareup in 97 dictated J-pouch surgery. 04 Capsule endoscopy diagnosed as Crohns not UC. Emergency surgery in 05 to remove lodged camera capsule. Biopsies positively diagnosed Crohns at that time. 12/06 Unsucessfully tried Naltrexone(LDN). 2/07 developed scleritis of the eye, tearing and detaching the retina. Treated with high doses of Prednisone. 6/07 Eye is healing and currently taking Entocort counting on the residual (non-systemic portion) treating the eye. In October if eye is stabilized, will need cataract removal (obviously old steroid associated). Then surgey to the back of the eye to remove scare tissue caused by the detachment.  11/07 Started Remicade to try and reduce the ocular inflamation of the Scleritis since I have been requiring more and more Prednisone to keep the eye quiet.
Married with 4 grandkids.


sanfran
Regular Member


Date Joined Jul 2007
Total Posts : 56
   Posted 11/11/2007 11:19 AM (GMT -7)   
I had iron infusions when I was hospitilized. One was through a syringe and the other was a diluted IV. The good news is that I was able to get my iron levels up very quickly. The bad news is that it was very painful. I preferred the injection over the IV as the IV even though it was diluted just prolonged the pain. They had to go very slow and my whole arm hurt. My GI finally stopped the treatment because I was out of immediate danger and it wasn't worth making me so uncomfortable. I didn't have any scarring but I did have sore arms (got one infusion in each) for about 2 days.
Dx with Crohn's Colitis July 2007
37 yr old working Mom with two beautiful little girls (2 and 4)
Prednisone (20mg), 50 mg Mercaptopurine (6MP), 4.8g Asacol, Vicadin, Imitrex and Ambien as needed
Other stuff: probiotics and folic acid


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 11/11/2007 11:35 AM (GMT -7)   
Yikes, glad I didn't have to have it done. I hope I can keep my levels up. Phoebesky, let us know what you end up doing.
Judy
49 years old, Crohn's Disease   
Six resection surgeries, permanent ostomy, adverse reactions to Remicadeback on 6MP for maintenance, hoping for a long remission from this last surgery. 
 
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/11/2007 3:48 PM (GMT -7)   
Gee I sure am glad I went on a multivittie had iron shots when a teen and sounds like it doesn't get better with age . Hope you can get your iron up and although it hurts for awhile thank goodness a person doesn't have to get them every day. I did bruise but did not leave permanent marks. lol gail

*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 11/11/2007 4:00 PM (GMT -7)   
Thanks everyone for your speedy replys. I'm still not sure what I will do but the way things are going it doesn't look like the iron levels in my blood will go up anytime soon so I'll weight up the options and perhaps ask for a reference to a haemotologist...

Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 11/11/2007 4:04 PM (GMT -7)   
I did an iron infusion about 2 months ago and it doesn't hurt at all - just a regular old IV. Takes awhile to drip but worth the effort!

I saw results with a week and my labs looked great a month later. I was referred to a hematologist.

nawlinscate
Veteran Member


Date Joined Jan 2007
Total Posts : 656
   Posted 11/11/2007 4:51 PM (GMT -7)   
Because my hematologist was worried about the risk of anaphylactic shock with an all-at-one-time iron IV, she had me do 16 weekly infusions of small doses of Ferlecit. No side effects and no pain (as long as the IV nurse knew what she was doing). And no risk of anaphylactic shock. That's probably a safer way to go than one big dose of iron. I asked not to have the injections, once I saw photos of the lumpy brown iron stains that appear on your butt cheek and upper thigh--and that take a long, long time to go away.

belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 11/11/2007 5:06 PM (GMT -7)   
I give myself my iron injections. Painful? Stings for maybe 30 seconds, but painful? Not to me. As for tatooing? Giving them to myself since 1993 -- there's not a tattoo anywhere on me and I'm a celtic redhead you'd see them on my skin
Belleenstein:

30+ years living with Crohn's.


KayDee
New Member


Date Joined Nov 2007
Total Posts : 12
   Posted 11/11/2007 6:43 PM (GMT -7)   
I had iron shots for awile.  Not bad. Stung for a few seconds. They were not very effective though.  Also have had IV infusions.  Had a bad reaction to the iron that took 4 hours to infuse. The other one that takes about 6 hours is fine (can't remember the name of it) and I have that about every 18 months.

eljay1066
Veteran Member


Date Joined Jan 2003
Total Posts : 3166
   Posted 11/11/2007 6:50 PM (GMT -7)   
I had two days of iron infusions more than a year ago, and that worked. My levels are still in the acceptable range. Hallelujah! The eight hours were worth it.
Take care. Lois
 

ROSEKELLY
New Member


Date Joined Aug 2010
Total Posts : 2
   Posted 8/3/2010 6:46 PM (GMT -7)   
I have had iron injections for the past 3+ years. I used to give them to myself in the top of my leg area. Now I have a wonderful husband that gives them to me in the butt. I get them weekly. If I try to slip much past that I end up not feeling so well. And yes, I have tattooing. On both my legs and my buttocks. Finaly my PCP recommended longer needles. So my butt is not as bad as it used to be. I have not had an injection in my legs in well over a year. And they still look terrible. I had a Ferritin count that dropped down to 2. Yes, 2. I had a gastric bypass about 6 yrs ago. And low ferritin levels can be one of the side effects of that surgery. I felt to terrible. And thank God I had a Doctor that knew to look for it. My numbers are back up to the 170 range at last check. The side effcts for me of low ferritin was I could not remember things. I felt like someone just pulled the enregy right out of my toes sometimes. And I could not breath well. I would almost knd of gasp for air at times. My hair was also falling out. Lots of headaches. I never had time to sit at the Hemotoligists office for the 4-6 hour IV's. I was working and a single mom. My boss was cranky about me leaving for the Hemotoligist anyway. It took me about 18 months minimum to actually get my count any where near a normal range. Now I take the injections at home. And I take 120 mg of Bariatric Advantage iron a day. Bariatric Advantage makes pills special for the new stomaches of gastric bypass patients. But I couldn't take any of the OTC iron pills before either. They were so hard on my stoach and made me sick. Bariatric Advantage is good for anyone needed to take special supplements. I have friends with cancer that take Bariatric Advantage. And I had a girlfriend that was having iron issues while pregnant. I hooked her up with them also. Does it hurt? Well, you know, I walked into a Hemotologist office where people were actually dying from incurable cancers. And I figured any one of them would rather have a quick prick in the butt. And then be on with their lives. I guess it all depends on how your attitude is. I was so sick before them that I was glad they finally found something to help me. I think I do have a high pain tolerance. But it really doesn't hurt at all...just my oppinion.

Post Edited (ROSEKELLY) : 8/3/2010 7:49:27 PM (GMT-6)


bella3250
Regular Member


Date Joined Aug 2008
Total Posts : 351
   Posted 8/3/2010 9:15 PM (GMT -7)   
I've had iron infusions. I also cannot absorb the iron tablets. I was on the iv infusions for about 8 months then was off for a year. Recently my levels have dropped so it was recommended that I start the infusions again. They are a little bit of a pain b/c they do take about an hour to an hour and a half. but when it starts to work it's all worth it. Good luck.

Claudia111
New Member


Date Joined Mar 2016
Total Posts : 1
   Posted 3/10/2016 5:26 AM (GMT -7)   
belleenstein said...
I give myself my iron injections. Painful? Stings for maybe 30 seconds, but painful? Not to me. As for tatooing? Giving them to myself since 1993 -- there's not a tattoo anywhere on me and I'm a celtic redhead you'd see them on my skin


Where do you get your iron? What is it called? What dosage do you use?

I have lifetime gluten sensitivity and lifetime anemia. My doctor gives me iron infusions and they work, however, I can only get them every two years. I go in to my doctor semi-annually for blood work and if the iron saturation percent is not very low, I have to wait--for two years. This is unacceptable. At day 1 of the iron infusion I feel great, then there is this slow insidious decline for two years until I am way past acceptable daily-life function. I would like to give myself iron shots myself if I could get my doctor to prescribe something. Help me get on the path to injectable iron.
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