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crohnie42
Regular Member


Date Joined Dec 2006
Total Posts : 371
   Posted 11/11/2007 7:40 PM (GMT -7)   
anyone have them?  Mine are starting and I am not happy.  I think the chemo and radiation started it earlier.  I am only 43 :(
Michele
~~~~~~~~~~~~~~~~~
 
Female Dx'ed with Crohns Disease in 1992
Been on every med for crohns that exists
Several Fistula surgeries
Dx'ed with Colon Rectal Cancer March 2007
Dx'ed with Stage 2 Vulvar VIN
On Chemo and Radiation for 6 weeks
Using Humira with excellent results
IN REMISSION~~~!!!!


rootsmith
Veteran Member


Date Joined Jan 2004
Total Posts : 598
   Posted 11/11/2007 7:59 PM (GMT -7)   
They stink. I took estrogen replacement therapy for 5 years because of them . No one told me that they could return when I stopped so what I was doing was just postponing them. Then I was on gabapentin for over a year and that also eliminated them. Went off gabapentin and they were back. 7 years since they first appeared. Now I am on zoloft and either they are finally resolving or zoloft is helping (SSRIs are also supposed to help with hot flashes) People joke about these but they are not a joking matter. They can be very disabling
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin and now trying good ol' zoloft


rootsmith
Veteran Member


Date Joined Jan 2004
Total Posts : 598
   Posted 11/11/2007 8:00 PM (GMT -7)   
I forgot to say that back in 1995 I was treated with Lupron (long story about that) which puts you in a menopausal state. I surprise people when I tell them that the hot flashes on Lupron were a picnic compared to the real thing.
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin and now trying good ol' zoloft


crohnie42
Regular Member


Date Joined Dec 2006
Total Posts : 371
   Posted 11/11/2007 8:24 PM (GMT -7)   
I was taking Gabapentin but it did nothing. I am on Celexa but may I need to have the dose upped. Thanks for the info :)
Michele
~~~~~~~~~~~~~~~~~
 
Female Dx'ed with Crohns Disease in 1992
Been on every med for crohns that exists
Several Fistula surgeries
Dx'ed with Colon Rectal Cancer March 2007
Dx'ed with Stage 2 Vulvar VIN
On Chemo and Radiation for 6 weeks
Using Humira with excellent results
IN REMISSION~~~!!!!


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 11/12/2007 1:31 AM (GMT -7)   
Michele,

I had to have a hysterectomy at a very young age and have had to deal with hot flashes since that time. Tried the HRT and was constantly messing around with doses, etc. Stress always made my HF worse. But several years ago, I had to take paxil... believe it or not, my HF nearly went away. I am currently on a very low dose just as maintenance for the hot flashes! Love that drug!!! HF are debilitating when they rob you of sleep thru the night. And who likes having to take a shower in the middle of the night anway?!
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 11/12/2007 8:09 AM (GMT -7)   
I also had to have a full hysterectomy pretty young. I was on HRT for a few year (the patch, worked great) but was ablt to wean myself off. I do pretty well until I have to take Prednisone, then everything starts over, and it takes many months to settle down again. I'm taking sleeping pills, but I still wake up during the night, at least I can get back to sleep now.
Judy
49 years old, Crohn's Disease   
Too many surgeries, ileostomy6MP for maintenance.
 
 


rootsmith
Veteran Member


Date Joined Jan 2004
Total Posts : 598
   Posted 11/12/2007 8:11 AM (GMT -7)   
Paxil is an SSRI so that effect would be expected. I was lucky in that I had no problems with Estrogen replacement therapy, although I'm sure the oral form elevated my triglycerides. I switched to the FemRing vaginal insert which bypasses the liver and my triglycerides improved but I was also taking other measures so who knows. But 5 years is a long time and every mammogram shows new calcifications which produces a lot of anxiety. I decided I had to come off and surprise, hot flashes were back.
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin and now trying good ol' zoloft


RedAdmin
Veteran Member


Date Joined Aug 2003
Total Posts : 1017
   Posted 11/12/2007 9:59 AM (GMT -7)   
My mother was done by 43, because of her meds. I am now on the same meds and I can only hope to be done soon as these are horrible hot flashes
Red (Lee Ann)
 Happy Bunny 
      When life gives you lemons, squirt juice in your enemy's eyes.


rootsmith
Veteran Member


Date Joined Jan 2004
Total Posts : 598
   Posted 11/12/2007 10:53 AM (GMT -7)   
The bad news is that (I have read) for 1 out of 20 women they are never done. That's hard to believe but it also means that for many more it isn't as bad. I don't know if I would have had them for 7 years if I hadn't "postponed" them by taking hormones. I don't think they really know for sure. Also, I was told by my gyn NP that there is no evidence that stopping cold turkey is harmful. For awhile we were told to wean gradually but she told me there is no evidence to prove that is successful.
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin and now trying good ol' zoloft


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 11/12/2007 10:58 AM (GMT -7)   
Well, I for one am glad I didn't stop cold turkey. I remember not being able to find a good dose of oral hormones after my surgery (duh, I have Crohn's and I wasn't absorbing them) and calling my GYN, crying, begging him to make it better, lol. I cried or raged at the drop of a hat. When I finally found a female doctor who believed in doing blood tests to see my hormone levels (duh again), she said although I was taking the maximum dose of oral hormones my body was screaming for them. We started using the patch and it was like night and day. I felt like a human again.

I eventually (after years) started keeping the patch on longer and longer until I weaned myself off. But I would never want to go through that again, lol, and I'm sure my husband wouldn't either.


Judy
Crohn's Disease   
Too many surgeries, ileostomy6MP for maintenance.
 
 


rootsmith
Veteran Member


Date Joined Jan 2004
Total Posts : 598
   Posted 11/12/2007 1:59 PM (GMT -7)   
The thing is that you don't know if that would happen that way again or not. I think that's what my NP was telling me. Also, the amount of hormone you take for replacement is much lower than what your body normally produced when you had your own source. They give just enough to ease the symptoms. (you had a complication in that you weren't absorbing it) So when you quit cold turkey from hormone replacement it could be a different situation than waking up from surgery without any ovarian function. I didn't have that situation. My ovaries weren't removed so I had natural menopause.
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin and now trying good ol' zoloft

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