Keratoconus (eye disease)?

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Clcaj
Regular Member


Date Joined Oct 2007
Total Posts : 82
   Posted 11/13/2007 11:05 AM (GMT -7)   
I had an eye exam yesterday and the eye doctor told me I had Keratoconus something-or-other and that my eyes looked like those of a 70-year old (I'm 49).  He said I would need cornea transplants in 5 to 15 years.   He said it may be prednisone that has caused this, but he can't say for sure.
 
Has anyone had this?  Is it a side affect of Crohns or prednisone?  I've only taken Pred for maybe 6 months over 20 years and Entocort for about 1 1/2 years, off and on, over 10 years.
 
Has anyone had to have cornea transplants? 
DX: mild to moderate Crohn's for 34 years
Additional benefits: chronic anemia, B12 deficient, peripheral neuropathy, facial mylagsia, joint pain, underactive thyriod
Current meds: Colozal, Nexium, Entocort, Flagyl, steriod cream, monthly B12 injections, Neurontin, Synthroid, Effexor ER, pain meds as needed


UKpup
Regular Member


Date Joined May 2005
Total Posts : 213
   Posted 11/13/2007 12:14 PM (GMT -7)   
I just happened to ask my niece something about this just yesterday. Both she and my younger brother are Optometrists - she happened to be online, so I asked her.

Here is what she said:
patients who are on steroids for along time have an increase risk for one certain type
they should check you at each eye appointment

When I told her I was only on Pred for about 6 months, then she said I should be OK.

Now in the past I've asked my brother about eye conditions in crohn's patients and I've posted it on here a couple of times. It isn't directly related to what you have asked, but it might be helpful to post it again. BTW, if anyone needs a GOOD optometrist in Kentucky let me know :)

Crohn's disease can affect the eyes most commonly by a condition called
Posterior Uveitis. Posterior Uveitis will cause an increase in white bloods
cells in the vitreous (which is the jelly-like substance in the center of
our eye). This will cause symptoms such as blurred vision, floaters in you
vision (black squiggly lines), redness, pain and photophobia(senitivity to
light). Glaucoma and Cataracts are possible sign of this disease as well
various retinal problems. Retinal detachements can also occur, so if you
see a bright flash of light of a ton of floaters see an eye doctor
immediately. A dilated exam should be performed yearly to check for this by
an optometrist or ophthalmologist.
Unfortunately there isn't much you can do to prevent this from happening.
You can only treat the symptoms when they arise. The most common way to
treat this uveitis is with steroids by injection into the eye. Cataracts
will cause a decrease in vision slowly over time and the only way to treat
this is with surgery (a very simple surgery, but a surgury none the less).
The Glaucoma may be associated with the white bloods cells clogging up some
of the drainage systems that control the eye pressure. This can be easily
controlled by drops if the pressure becomes a problem. Glaucoma dosn't
usually occur in this type of uveitis, it is more common in anterior uveitis
which affects the iris (colored part of the eye). Glaucoma will have a
higher previlance in people with a family history. The blurred vision that
you may be experiencing could be due to some of the medications you are
taking. Several medications will cause a dryness problem that will blur
your vision that can be cleared with blinking. Artificial tears (not
visine, get the red out stuff) taken 2 or 3 times a day will help with the
dryness problems and hopefully improve your vision.
The funny story of my first abscess

The paper about the apheresis study

******************************************
"I've got a fever and the only prescription is more
cowbell." --Christopher Walken
******************************************


Clcaj
Regular Member


Date Joined Oct 2007
Total Posts : 82
   Posted 11/13/2007 1:15 PM (GMT -7)   
Thank you for the response.  For now, my eye doctor put me on some kind of eye drops with steriods (ironic, I know) for 2 weeks, then I'll switch to some other kind of drops for dry eyes.   This is to treat dry eyes only, not the Keratoconus problem, which he said can't be fixed other than with a cornea transplant. 
DX: mild to moderate Crohn's for 34 years
Additional benefits: chronic anemia, B12 deficient, peripheral neuropathy, facial mylagsia, joint pain, underactive thyriod
Current meds: Colozal, Nexium, Entocort, Flagyl, steriod cream, monthly B12 injections, Neurontin, Synthroid, Effexor ER, pain meds as needed


Robyn1973
Regular Member


Date Joined Nov 2005
Total Posts : 30
   Posted 11/18/2007 12:42 PM (GMT -7)   
Clcaj: I see you suffer from peripheral neuropathy. I had the same problem after taking flagyl, it is a known side effect. Did you have this problem prior to starting that medication?
34 yo, Diagnosed 6/2005.  Ileocolic resection.  Tried Asacol, Pentasa, & Imuran.  Crohn's fistulized, used Cipro & Flagyl (w/side effect of neuropathy).  Started Remicade 8/2005 & doing much better.  Upped to every 6 weeks due to breakthrough symptoms at 7 weeks.  Possible flareup from flu shot 11/06.  Occasional gallbladder issues. 


mycropht
New Member


Date Joined Nov 2007
Total Posts : 7
   Posted 11/18/2007 3:04 PM (GMT -7)   
The only thing I know about keratoconus is that Mandy Patinkin had it and eventually had both corneas replaced.

tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 11/18/2007 10:28 PM (GMT -7)   
I was diagnosed with Keratoconus about a year ago and still am totally confused about what to do.  I have always had perfect eyesight until I was diagnosed with Crohn's and have wondered if it has anything to do with it.  I was referred to neuropthomologist when I started getting double vision.

Dave D
Regular Member


Date Joined Aug 2005
Total Posts : 404
   Posted 11/19/2007 6:38 AM (GMT -7)   

Here is something different:

I have posterior scleritis of the eye. It is another autoimmune syndrome probably related to Crohns. This was diagnosed 2/07 when I was experiencing flashing lights, blurred vision, and lots of pain. It seems inflamation had (has) built up behind the retina, pushing it forward until it tore and detached. The treatment has been Prednisone....tons of Prednisone. I thought last summer it had slowed to the point that I could have the cataract (from Pred of course) removed, then have the scar tissue removed. No such luck. It flaired again and my eysight is even worse, now 20/300.

My research says that Remicade is effective against ocular inflamation in people who don't respond to steroids. My retina specialist argues that I DO respond. I just have to take a bunch....forever. Meanwhile, last week marked my second Remicade infusion to treat my Crohns (Wink Wink). I am praying that it works for the eye because I'm bummed out with all the Prednisone and being blind in that eye.

Dave D


Retired male in late 60's. Perforated Colon in 92. Diagnosed as Ulcerative Colitis in 93. Uncontrolled flareup in 97 dictated J-pouch surgery. 04 Capsule endoscopy diagnosed as Crohns not UC. Emergency surgery in 05 to remove lodged camera capsule. Biopsies positively diagnosed Crohns at that time. 12/06 Unsucessfully tried Naltrexone(LDN). 2/07 developed scleritis of the eye, tearing and detaching the retina. Treated with high doses of Prednisone. 6/07 Eye is healing and currently taking Entocort counting on the residual (non-systemic portion) treating the eye. In October if eye is stabilized, will need cataract removal (obviously old steroid associated). Then surgey to the back of the eye to remove scare tissue caused by the detachment.  11/07 Started Remicade to try and reduce the ocular inflamation of the Scleritis since I have been requiring more and more Prednisone to keep the eye quiet.
Married with 4 grandkids.


Clcaj
Regular Member


Date Joined Oct 2007
Total Posts : 82
   Posted 11/19/2007 9:24 AM (GMT -7)   
To Robyn1973:
 
Until this past month, I hadn't taken Flagyl in many years.   I don't think the peripheral neuropathy is related to Flagyl, but who knows.  
 
Dave D:
 
I'm so sorry to hear about your eye problems.  Mine sound very minor in comparison to yours.  Good luck to you!
DX: mild to moderate Crohn's for 34 years
Additional benefits: chronic anemia, B12 deficient, peripheral neuropathy, facial mylagsia, joint pain, underactive thyriod
Current meds: Colozal, Nexium, Entocort, Flagyl, steriod cream, monthly B12 injections, Neurontin, Synthroid, Effexor ER, pain meds as needed

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