Anyone from the GLBT community with Crohns or Colitis?

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Doc2007
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Date Joined Oct 2007
Total Posts : 294
   Posted 11/13/2007 4:36 PM (GMT -7)   
Just asking?

pb4
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Date Joined Feb 2004
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   Posted 11/13/2007 5:28 PM (GMT -7)   
What is GLBT?

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


MMMNAVY
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Date Joined Jul 2006
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   Posted 11/13/2007 5:30 PM (GMT -7)   
Gay Lesbian Bisexual and Transgendered=GLBT

 


Forum Moderator 
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...

Post Edited (MMMNAVY) : 11/14/2007 6:59:47 AM (GMT-7)


pb4
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   Posted 11/13/2007 10:18 PM (GMT -7)   
hmmm, then why would it matter if there were any GLBT community members here or not?

If you visit here enough you'd know that there are people from that community that do share that here about themselves on occassion in posts and no one has ever expressed any issues with it...and none of them even posed the question as you did regarding if there were any GLBT community members here...so was exactly was the purpose of being so specific about it?

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


huckleberry
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Date Joined Sep 2007
Total Posts : 317
   Posted 11/14/2007 5:32 AM (GMT -7)   
I am not GBLT but was also really surprised to see the warning about sexual content. It does seem discriminatory to me.

I think the poster was just asking to find others like him/her -- just as others post to find those with similar medical issues, or women post to find out who else is having female problems.

Welcome to all.
Official dx September 2007.
Medications: 6 mp, Pentasa, Prednisone (tapering), Prilosec, Synthroid.
Supplements: probiotics, calcium, vitamin C, vitamin E and a multi-vitamin.
History of hypothyroid (dx 2004), and gall bladder surgery (1997).
44 years old; single mom to three wonderful kids, ages 9 to 15.


MMMNAVY
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Date Joined Jul 2006
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   Posted 11/14/2007 6:59 AM (GMT -7)   
I am absolutely sorry it was not my intention to be offensive. I am absolutely horrified that it was taken in that way. My bad.  I am so sorry. I will remove it right away.  I should have explained myself better. (I asked his permission to explain my position) One of my friends is gay and has crohns and my heart breaks for him, because this illness does put a such a strain on his intimate relationship. (and that is what was on my brain when I answered your question since I just talked to him about it 5 minutes before)  My intent was to be inculsive, not offesive and I am so sorry. I did not mean to hurt.  My intent was to be inclusive that you can ask about stuff like anal intercourse and it is ok to talk about just be aware that we are not all over 18 here so it has to be spoken of in a more clinical nature. I can certainly see how it could be offensive now that you have pointed out to me, but I want to assure you that was not my intent. My frame is that most of my classes have to do with sex right now and so that is just what is on my brain.  Once again I apologize from the bottom of my heart.  I am so very sorry.  As far as I am concerned this is an LGBT friendly forum. 
Thanks,
(Red Faced in embarrassment) Navy


Forum Moderator 
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...

Post Edited (MMMNAVY) : 11/14/2007 9:12:14 AM (GMT-7)


Clcaj
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Date Joined Oct 2007
Total Posts : 82
   Posted 11/14/2007 7:28 AM (GMT -7)   
I'm 'family', but I'm not sure what difference it makes when it comes to Crohns.  I've had the same partner for 27 years and we've raised 3 wonderful children together.   I think we've gone thru the same cycles most couples go thru when it comes to me being sick.  Sometimes, she's very sympathetic and patient, sometimes she's angry and impatient and sometimes she's very worried and stressed.   I do think it's harder on your loved ones than it is on you, in many ways.   I was absolutely crushed one day when we asked our youngest daughter what she thought of each of us (she was about 5 at the time) and her response about me was 'you're always in the bathroom'.   It's times like that when it really hits you how others perceive you and how much it affects them too.  
 
I know this is a terribly sexist thing to say, but I think it's harder for gay men than for gay women.   I think gay men are much more focused on the physical aspects of a person, which probably makes it all that much harder to find someone willing to put up with your illness.
DX: mild to moderate Crohn's for 34 years
Additional benefits: chronic anemia, B12 deficient, peripheral neuropathy, facial mylagsia, joint pain, underactive thyriod
Current meds: Colozal, Nexium, Entocort, Flagyl, steriod cream, monthly B12 injections, Neurontin, Synthroid, Effexor ER, pain meds as needed


TalktomeHIV
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Date Joined Jun 2007
Total Posts : 1539
   Posted 11/14/2007 8:27 AM (GMT -7)   
As a G out of the GLBT, LGBT, BLGT, BLTG (or however the current acceptable phrasing is), and frequenter of many kinds of online community sites I thought I would toss in a couple of thoughts on this to ponder. None of this is addressed to or regarding any of the above posters- it's just something to think about.

People often have a sort of reflexive response to inquiries looking for GLBT people in these communities. "Why does it matter?" Whether it's relationship forums, health and wellness forums, gaming forums... there are those of us who are GLBT, and sometimes need to feel the reassurance that there are others like us out there. Camaraderie is important, and in much the same way organizations like churches and social groups can help to foster that, so can online forums. Is such a request divisive? Perhaps to some. But from my personal experience, I know that I have many heterosexual friends and family members who I love very dearly, as well as GLBT friends and family members I feel the same about. But sometimes it's nice to know you're not alone out there in a particular category.

My husband sometimes jokes when we go out to certain events about being "the only black guy" there. Nobody wants to be the "only one" of anything.

I hope that this was helpful.

ADDENDUM:

As a personal note, while I do not have Crohn's, I have suffered from GI related issues since I was a kid which I have since come to believe is IBS. As someone who has always been overly critical of "appearances" when it comes to myself, this was very difficult for me to come to terms with- particularly when I was also coming to terms with myself as a gay man. I cannot tell you how much a relief it was to me when I made a dear friend (also gay) who I would come to find out suffered similar problems to my own.
HealingWell.com HIV/AIDS Forum Moderator
HIV Hotline Counselor

Post Edited (TalktomeHIV) : 11/14/2007 8:32:23 AM (GMT-7)


Doc2007
Regular Member


Date Joined Oct 2007
Total Posts : 294
   Posted 11/14/2007 9:41 AM (GMT -7)   
Talktome Thank you so much for that note and the rest of you for your reply. MMMnavy no harm done and I really believe that you didnt meant any ill intent. All is good and merry!

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/14/2007 10:31 AM (GMT -7)   
I just have to say if your a fellow Crohns sufferer, it doesn't matter to me what your choice in life partner is. I am just glad to have you all here to commiserate and share our struggles. I love you all!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Glad Bag
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Date Joined Mar 2007
Total Posts : 699
   Posted 11/14/2007 10:36 AM (GMT -7)   
of course you didn't mean any harm Navy.....you are in the business of helping people feel better about themselves, right?

welcome d0c2007
"All we need is love....love is all we need"


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 11/14/2007 11:11 AM (GMT -7)   
I've been posting here for over 4 years now and I know I've come across posts where people have mentioned being gay or *** and the issues it poses for them with having IBD, it's just that no one (until now) has specifically posted asking if there were other gays or ***s here. Probably because to them it didn't matter and/or they expected that there likely would be others that are also gay or ***....BTW there are straight women who do participate in anal penatration that have IBD as well, I've seen this posted on other boards as well, so it's not only gay men that have that issue to deal with....IBD affects all of us in the same crappy way, gay, *** or straight...there shouldn't have been an issue about this to begin with.

And MMMNavy I read your post before you deleted it and it did NOT come across in a negative way by any means.

:)

Why the heck is it bleeping where I've typed the L word, it didn't do that in MMMNavy's post????


My bum is broken....there's a big crack down the middle of it!  LOL  :)

Post Edited (pb4) : 11/14/2007 11:14:52 AM (GMT-7)


Doc2007
Regular Member


Date Joined Oct 2007
Total Posts : 294
   Posted 11/14/2007 2:39 PM (GMT -7)   
Thank you Pb4 for your reply...The post may not have come across negative at all, however it did offend me...I let MMMnavy know that (although I preferred to do it in a privat pm, but didnt know how) MMMNavy apologized and I accepted and now we have moved on.

onebloodonelife
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Date Joined Feb 2006
Total Posts : 842
   Posted 11/14/2007 3:53 PM (GMT -7)   
I'm bisexual, and my last girlfriend was so understanding about my Crohn's; she actually knew quite a bit about the disease and straight out asked me if I was on Remicade when I first mentioned it to her (for the record, I was on Remicade at the time.)
Crohn's Disease for a year and counting
Imuran: 150mg
Humira:finally got approval on 9/21, done with loading doses, starting biweekly schedule on 10/10
Dicyclomine and hyoscamine for intestinal cramping and spasms
www.myspace.com/onebloodonelife
http://studentwebs.winona.edu/catraun4902 <--This link will be changing, but for now it works!


thenay
Regular Member


Date Joined May 2006
Total Posts : 167
   Posted 11/14/2007 4:34 PM (GMT -7)   
@onebloodonelife: That's a true GF who cares! Nice!  Sorry to hear you didn't stay together tho, all the best! :)

I'm gay :) Been with the same guy for almost 8 yrs and he's seen me thru the good and the bad times with CD.
Thankfully he's understanding about it all.


Male DX with CD May 2006 @ age 22, Colonoscopy and SBT
Taking Prednisone 25mg (tapering), Imuran 75mg (eventually 150mg I was told), Atenolol 25mg for fast heartbeat and Restoril 30mg for the sleepless nights (thanks Pred!)


Doc2007
Regular Member


Date Joined Oct 2007
Total Posts : 294
   Posted 11/14/2007 4:42 PM (GMT -7)   
My bf is understanding for the most part he knows when I am not feeling well and gives me that space...and he is patient when the meds have me on a pendelum of moods! LOL I guess I cant ask for more than that. He really wont talk to me about it in any great length or detail though which sometimes bothers me because I really want him to just know about this integral part of my life. But i see it is difficult because when we met I was healthy and have been for most of our relationship and hadnt gotten sick until recently. I did tell him upfront about my Crohns though.

randynoguts
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Date Joined Jan 2003
Total Posts : 6050
   Posted 11/14/2007 5:48 PM (GMT -7)   
i agree, who cares if your on the Great Lakes Boating Team? we are all friends here.
randynoguts 



     http://www.geocities.com/randynogutsweb/


Howlyncat
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Date Joined Jan 2005
Total Posts : 24909
   Posted 11/15/2007 5:45 AM (GMT -7)   
Friends / family is right Randy .....thanks ........
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onebloodonelife
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Date Joined Feb 2006
Total Posts : 842
   Posted 11/15/2007 10:11 PM (GMT -7)   
thenay said...
@onebloodonelife: That's a true GF who cares! Nice! Sorry to hear you didn't stay together tho, all the best! :)

I'm gay :) Been with the same guy for almost 8 yrs and he's seen me thru the good and the bad times with CD.
Thankfully he's understanding about it all.


Thanks :-) She was amazing, just wasn't the right time in both our lives.

It sounds like you have a great boyfriend too! Hang on to him, it's hard to find someone who's so understanding about the disease.
Crohn's Disease for a year and counting
Imuran: 150mg
Humira:finally got approval on 9/21, done with loading doses, starting biweekly schedule on 10/10
Dicyclomine and hyoscamine for intestinal cramping and spasms
www.myspace.com/onebloodonelife
http://studentwebs.winona.edu/catraun4902 <--This link will be changing, but for now it works!


gumby44
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Date Joined Nov 2007
Total Posts : 4100
   Posted 11/15/2007 10:45 PM (GMT -7)   
I'm heterosexual, but I sure hope everyone feels welcome here. It seems perfectly understandable to me that you might want to find others from the GLBT community with Crohn's. It helps when you find others who go through similar things. This is a great community
48 yr. old female, diagnosed with Crohn's Sept-Oct. 2007


Doc2007
Regular Member


Date Joined Oct 2007
Total Posts : 294
   Posted 11/16/2007 12:59 PM (GMT -7)   
Yes it is a great community...!

Krysta
Regular Member


Date Joined Jun 2007
Total Posts : 340
   Posted 11/16/2007 2:57 PM (GMT -7)   
I am a L. I guess you can't type the full word or it gets bleeped out... which seems a little messed up, but in any case...

It's hard for other people to understand that sometimes we just feel like having the comradarie of our community. Of course I love the community here and I am not saying it in a negative way towards the heterosexual community. For example: Sometimes women like to have a night out with just the girls or the same for the guys (usually in heterosexual communities although I am not saying everyone is like that). Just like we like to talk to other Crohnies for support. You know?

I love everyone, but its nice to feel like you aren't the only gay person everywhere. lol!

My partner is wonderful about my Crohn's. She is a social worker in the ED at Strong Memorial Hospital, and now that she has been through this with me she is very considerate and compassionate of people who come in with IBD. She advocates for them a lot. Not that she wasn't compassionate before! But you know what I mean! We plan to get pregnant in about a year when I'm 28 and she's 25. We will have been together for 5 years at that point. I can't wait!!

Well, that's my personal bit. :-)

Welcome!
Finally Dx- April 13 2007 (age 26) ilio-crohn's-colitis. Surgeries:appendectomy, cholecystectomy, tonsillectomy, pinidal cyst removed,emergency abdominal surgery for hemorrhaging ovary from burst ovarian cyst, LEEPcervix, emergency abdominal surgery for grapefruit sized ovarian cyst removal, D and C of uterus, lumpectomy of breast.
MEDS: remicade, prednisone, Asacol TID, protonix, metformin, buspar, trazodone, multi V, B complex, flaxseed. Vegetarian, leaning towards vegan. no nuts, seeds, or wheat.
Many allergies. Polycystic ovarian syndrome, anxiety, depression, ITP 
Every tool is a weapon if you hold it right ~ Ani Difranco
 
 


Krysta
Regular Member


Date Joined Jun 2007
Total Posts : 340
   Posted 11/16/2007 2:58 PM (GMT -7)   
Oops I spelled Camaraderie wrong. lol.
Finally Dx- April 13 2007 (age 26) ilio-crohn's-colitis. Surgeries:appendectomy, cholecystectomy, tonsillectomy, pinidal cyst removed,emergency abdominal surgery for hemorrhaging ovary from burst ovarian cyst, LEEPcervix, emergency abdominal surgery for grapefruit sized ovarian cyst removal, D and C of uterus, lumpectomy of breast.
MEDS: remicade, prednisone, Asacol TID, protonix, metformin, buspar, trazodone, multi V, B complex, flaxseed. Vegetarian, leaning towards vegan. no nuts, seeds, or wheat.
Many allergies. Polycystic ovarian syndrome, anxiety, depression, ITP 
Every tool is a weapon if you hold it right ~ Ani Difranco
 
 


JasonCPhT
Veteran Member


Date Joined Jun 2006
Total Posts : 619
   Posted 11/16/2007 7:08 PM (GMT -7)   
I am a member if the GLBT community.  Do I get a prize?  I like 'em shiny . . .

whippetmom
Regular Member


Date Joined Oct 2007
Total Posts : 22
   Posted 11/16/2007 8:59 PM (GMT -7)   

Hi.  I'm an L too.  (That just sounds too funny! :-) )  Howdy to my clan out there! 

I have CD and have a very supportive girlfriend because she coincidently has UC.  In the fall of 2001 (before we were together), she had to have her colon removed in an emergency surgery when she almost bled to death.  Two weeks later she had another emergency surgery because of a severe abdominal infection.  Two surgeries later, to construct a J-pouch, she is good as new (with the exception of occasional pouchitis) and has an incredibly beautiful scar all the way up her belly. 

And, of course, since you can never have too many of these things, she has fibromyalgia and I have some as of yet undetermined type of spondy and enthesitis (still undergoing tests) ....  What a pair we make!

Beats the heck out of the last GF.  While I was in surgery having my gall bladder out she went across the street to the brew pub (even though she promised she'd stay at the hospital).  When I came out of anesthesia I called her and asked her to come see me.  She said she had just gotten a new beer!

It's great to be a part of both of my communities.  The camaraderie is definitely important.  Everybody wants to be understood and be a part of the whole.

And, not that this has anything to do with anything ... I love my two whippets, Jack and Rosie!  They're sitting at my feet as I type this and I just want to say how much I love them! :-)

 

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