Pancreatic malfunction.

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dunny2
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Date Joined Jan 2007
Total Posts : 3200
   Posted 11/15/2007 4:46 PM (GMT -7)   
Well, so far the tests I've had done so far, are showing the above problem. The hospital called today, and are bringing
the MRCP, colonoscopy and endoscopy forward. Which I'm extremely happy about. The pains in my stomach seem to
worsen by the day. The DX of chronic pancreatitis is scaring me, as well as knowing that my cd is flaring as well.
I thought Id bring you up to date. Hope you're all well. LOL.
Vicky

Too many years with CD
Two bowel resections, several obstructions.


Laughter is the brush that sweeps the cobwebs from our hearts


JudyK89
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Date Joined Dec 2006
Total Posts : 1986
   Posted 11/15/2007 5:06 PM (GMT -7)   
Vicky,

What tests, the blood tests? At least they're moving the test up, do you know when yet? What do they do for pancreatitis (aside from taking you off drugs, which I'm assuming they've already done)?

I hope they can get this under control quickly, keep us posted.
Judy
Crohn's Disease   
Too many surgeries, ileostomy6MP for maintenance.
 
 


dunny2
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Date Joined Jan 2007
Total Posts : 3200
   Posted 11/15/2007 5:32 PM (GMT -7)   
Hi Judy,

The tests were stool samples, which showed an abnormally high fat content, which indicates pancreatic insufficiency. They are
putting me on pancreatic enzymes, which hopefully, will help with digestion. I am off all meds apart from pain medication.
Depending on how my bad my malabsorption is, I may need some IV help. I presume they mean TPN.
As far as treating cd, I guess that's going to depend on what the scopes find, but he has already told me, that because of
my reaction to remicade, I won't be given Humira. 6mp has already destroyed my pancreas. So I guess I'm stuck between
a rock and a hard place, I either have to hope the disease is fairly mild, so I can take something like Entecort, or if it's bad
it needs to be bad enough for more surgery.

I tell ya!! I'm getting so tired. Not just physically, but with all the "what ifs" and the "maybe's". I'm about ready for a whole
body transplant!!!

BTW, did you just become an EMT, if you did, many, many congrats.LOL
Vicky

Too many years with CD
Two bowel resections, several obstructions.


Laughter is the brush that sweeps the cobwebs from our hearts


gemini kiwi
Veteran Member


Date Joined Nov 2006
Total Posts : 1136
   Posted 11/15/2007 6:24 PM (GMT -7)   
Vicky,
{{{hugs}}}}}}} Just about to email you.
Tess

JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 11/15/2007 6:42 PM (GMT -7)   
Vicky,

I'm so sorry for everything you're going through, my abdominal pain has really gotten a lot better (not gone), but I'm still going through all the same sh!t. I'm still waiting for my test results, though I imagine if anything "big" showed up I would have heard by now. I don't have a Dr. appointment until the end of the month.

When I had to stop Remicade, I was unable to go back on 6MP because of my liver enzymes also, so I ended up getting so sick that I did have to have the surgery. Sometimes no matter what you do you can't win.

I had the darned liver biopsy which was "inconclusive" and when I had my MRCP, my doctor said it would probably also be inconclusive. I'm not sure why I keep having these tests.

Now I'm having joint pains again. It's starting out very similar to my antibody reaction I had with Remicade. The problem is, I'm not on Remicade, I'm on 6MP (have been on it now for a full 2 weeks, I went back on it because my doctor told me we had to try something to try to control this disease because I can't afford another surgery and/or to lose any more intestine). 6MP is supposed to prevent antibody reactions, but it's also supposed to help arthritis pain, so I have no idea what's going on, or even what doctor to see if this continues.

I just want someone to say, "okay this is exactly what's wrong and here's what we're going to do to fix it", lol.

I've been told in the past that I have fat malabsorption, I'm not sure how my doctor figured that out because I certainly didn't give a stool sample, and I'd remember that, lol.

Anyway, I'm really sorry you're still in pain, and it's getting worse. I hope they can do SOMETHING to help, at least to alleviate your pain. Keep me posted as you feel up to it.

P.S. I became an EMT at the beginning of the year. I did it so I could work in the ER as a tech and get some patient care experience under my belt (which one of the nursing schools requires it), but I've been sick ever since. I keep telling myself I'll apply for a new job when I know what's going on so I won't have to miss too much work at a new job, HUH!!
Judy
Crohn's Disease   
Too many surgeries, ileostomy6MP for maintenance.
 
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/15/2007 7:25 PM (GMT -7)   
Hi Sorry to hear that you have pancreatic problems and just give yourself some rest to see where things go I know it isn't easy at times. Hopefully they will get on to things soon for you .Wishing you the Best and we"re here for you .lol gail

tinglebell
Veteran Member


Date Joined Apr 2007
Total Posts : 531
   Posted 11/15/2007 7:33 PM (GMT -7)   
Wow, good time for this post. I have also been experiencing some problems in this area. I went to to er last wednes for ruq pain and fever. Fever gone but RUQ nagging pain persists. My U/S of the abd showed dilated common bile duct. My labs revealed an elevated wbc 13.5 and elevated sgpt of 38. Borderline lipase elavation. I had a ct abd on Fri and finally got the results on Tues. My common bile duct is dilated to 15 mm, normal being 3 mm, (my gall bladder was removed 20 yrs ago) I saw my GI this AM and am having an ERCP on Tues. I was on remicade and then recently started humira, 2 weeks before problems started. I was hoping it wasn't the humira. The doc thinks I need a dilatation of the bile duct. I went to the hospital where I had the tests done to get the results, I was so upset I had to wait so long. You could die waiting for them otherwise. I do know that bile helps fat absorption, so maybe you have a stone/stricture like me.
DIANNE
Diagnosed at age 19 with CD.
3 small bowel resections, 1 for perforation, 2 for strictures 
 


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 11/15/2007 7:57 PM (GMT -7)   
Thanks guys for your replies, it really does help to know people listen and care.

Judy, I swear these drugs they give us will end up killing us. I know I shouldn't really say things like that, because for some they do
work well, but for others, well that's another story. What irks me, is that no one tells you that 6mp can cause pancreatitis,or other nasty
things. It isn't until you have the problem, then the doctors will say. I think from now on I'm going to research every drug that's given to
me. For heavens sake, these side effects are not small things that will get better. For me this is a life altering slap in the face.
It was bad enough coping with one incurable condition, now another one and just as bloody painful.
Well girl, lets hope the day will come for us, when they say,"this is what we're doing, it's gonna work, and we'll harm you no further"
Lets try and keep our chins up. At least we still have our dignity and friends....
Vicky

Too many years with CD
Two bowel resections, several obstructions.


Laughter is the brush that sweeps the cobwebs from our hearts


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 11/17/2007 8:54 AM (GMT -7)   
The hospital called, I have to now do another stool sample called fecal fat, this will be no.8. They've also forward my scopes
to next week. I'm really interested to see shat they find, as this new guy thinks all my present problems are due to pancreatitis.
We shall see....
Vicky

Too many years with CD
Two bowel resections, several obstructions.


Laughter is the brush that sweeps the cobwebs from our hearts


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 11/17/2007 9:03 AM (GMT -7)   
Is your GI saying what they can/will do for it once it's diagnosed? Is there medications you can take? Does this make you more susceptible to diabetes? Good luck on the tests, not sure what I hope they find, something or nothing. Either way it stinks.
Judy
Crohn's Disease   
Too many surgeries, ileostomy6MP for maintenance.
 
 


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 11/17/2007 11:11 AM (GMT -7)   
The GI is going to treat me with enzymes to help breakdown fats and help with digestion, in fact to do what my pancreas is not
doing. My risk of getting type 1 diabetes is increased to about 50%, as the pancreas worsens, as do it's function, so the production
of insulin is affected. My main concerns right now is the pain!! I'm hoping by taking the enzymes, it will also help my pain levels.
Like you I'm really unsure of what the scopes might find, but I already know there is new thickening in the sigmoid area, from the
last MRI I had, and I'm still having LRQ pain, which is telling me, that, the ileum is still inflamed. I can only hope it's mild....
Vicky

Too many years with CD
Two bowel resections, several obstructions.


Laughter is the brush that sweeps the cobwebs from our hearts


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 11/17/2007 8:01 PM (GMT -7)   
How uttererly frustrating for you! This post has been of special interest to me as I had a gall bladder incident within 2 weeks of taking my first dose of Humira. As you can see, I take Imuran & was on remicade "which I built antibodies too". Keep us posted on how things are going....and I am sooo very sorry you are having to go through this!
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/18/2007 3:28 PM (GMT -7)   
Hi Vicky Hoping that the fat enzymes do the helping you need to get you working better perhaps it will also help with your intestines too . I am hoping the Best for you and stay in touch we are keeping our best thoughts going for you and care about you .lol gail

dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 11/18/2007 3:47 PM (GMT -7)   
Hilda and Gail, thanks so much for your thoughts. I would love to get all this testing over before Christmas, but it still won't alter
the fact, no more good eggnog or Baileys Irish cream for me. I'm not one for drink, but they used to be my Christmas treat.
I used to have a Baileys when I trimmed the tree. Aww..
Vicky

Too many years with CD
Two bowel resections, several obstructions.


Laughter is the brush that sweeps the cobwebs from our hearts


Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 11/18/2007 3:56 PM (GMT -7)   

Hey dunny,

I feel for you, girl.  I worry about you doing a fecal fat test with these problems you're having!  It can be pretty hard on you if you're having pancreatic or gallbladder issues.  You've had these in the past (was it seven of them you've had?!)  I don't recall your gallbladder history, have you had it removed?


Co-moderator - IBS Forum


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 11/18/2007 4:02 PM (GMT -7)   
Hi Sanita, yeh I'm a bit worried too. As far as I can understand I've got to over load on fat, up to 100mg a day. I know for sure that's
gonna cause lots of pain, but I've only got to collect stool for 3 days.
So far I've had no gall bladder problems. LOL
Vicky

Too many years with CD
Two bowel resections, several obstructions.


Laughter is the brush that sweeps the cobwebs from our hearts


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 11/19/2007 7:41 PM (GMT -7)   
Dunny have you ever used cholestyramine to control your fat mal-absorption?
Belleenstein:

30+ years living with Crohn's.


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 11/19/2007 9:22 PM (GMT -7)   
They put me on that a few years ago, after my first resection, when I had the ileo-cecal valve removed along with 12" of my
ileum. I could'nt tolerate it very well, and it didn't work all that great. With my pancreas not working correctly, I think the only
thing that may help now are the pancreatic enzymes. Actually I'm really bummed about this whole pancreatitis thing. It seems
that my life is changing for the worse yet again. Just another chronic disease. It feels like something out there is determined
to keep me down....
Vicky

Too many years with CD
Two bowel resections, several obstructions.


Laughter is the brush that sweeps the cobwebs from our hearts

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