Does anyone suffer from fatigue?

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peaches3
Regular Member


Date Joined Jun 2003
Total Posts : 103
   Posted 11/15/2007 8:41 PM (GMT -7)   
Hello Everyone:
 
I find myself tired on a regular basis and I hate it.  Does anyone have any suggestions for fatigue?

Krysta
Regular Member


Date Joined Jun 2007
Total Posts : 340
   Posted 11/15/2007 8:45 PM (GMT -7)   
Fatigue comes with the territory. I am sure everyone here will say they have had experience with it. Try to allow yourself time for rest in between activity. I know that can seem hard when working, but try to pace yourself in everything you do. If you can, do things in the morning when our bodies naturally have more energy. Eat a healthy balanced diet, drink enough water, try to get at least 6-8 hours of sleep a night (or more if you need it), and allow yourself time for things you enjoy. Also, cutting out refined sugar and caffeine actually can give you more energy once it is out of your system.

Good luck.
Finally Dx- April 13 2007 (age 26) ilio-crohn's-colitis. Surgeries:appendectomy, cholecystectomy, tonsillectomy, pinidal cyst removed,emergency abdominal surgery for hemorrhaging ovary from burst ovarian cyst, LEEPcervix, emergency abdominal surgery for grapefruit sized ovarian cyst removal, D and C of uterus, lumpectomy of breast.
MEDS: remicade, prednisone, Asacol TID, protonix, metformin, buspar, trazodone, multi V, B complex, flaxseed. Vegetarian, leaning towards vegan. no nuts, seeds, or wheat.
Many allergies. Polycystic ovarian syndrome, anxiety, depression, ITP 
Every tool is a weapon if you hold it right ~ Ani Difranco
 
 


peaches3
Regular Member


Date Joined Jun 2003
Total Posts : 103
   Posted 11/15/2007 9:01 PM (GMT -7)   
Thanks Krysta

gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4101
   Posted 11/15/2007 10:21 PM (GMT -7)   
Here I am after midnight, unable to sleep with terrible gas pains and insomnia, yet I was exhausted all day long! I'm only on 12.5 mg of Prednisone, but it must be enough to keep me awake. Awake and exhausted...what a combination!!!!
48 yr. old female, diagnosed with Crohn's Sept-Oct. 2007


Ltordo
Regular Member


Date Joined Feb 2007
Total Posts : 33
   Posted 11/16/2007 3:52 AM (GMT -7)   
My GI told me that fatigue is from the inflammation.
When you have inflammation, it is like a fire burning inside you,
sucking up all your energy.

58 yr old female
Dx with Crohn's-Colitis January 2007
Meds: Remicade, Aciphex


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/16/2007 7:43 AM (GMT -7)   
I am always fatigued. It is part and parcel of this disease. Have you had your B12 checked lately? Sometimes we can get low on that and it can cause more extreme fatigue. Good Luck and know your not alone.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


clavman
Regular Member


Date Joined Sep 2007
Total Posts : 39
   Posted 11/16/2007 8:10 AM (GMT -7)   
Before I was diagnosed with CD, I found myself extremely tired all the time. I thought it was just a bad case of the flu until it never went away. One of the blood tests showed I was anemic(from the bleeding ulcers in my intestine I guess) One of the things my doctor told me to take was iron which slowly brought back my energy and reduced the fatigue. I have stopped that since my anemia has gone away with the remission(more or less) of my CD, but my doc still wants me to take B-12 supplement for now. Will see what the next blood tests show. Hope you get your energy back.
Bob
47 years old
Dx 3/07 Moderate Crohn's in terminal ileum-Probably had it for years earlier
Rx Prednisone initially for 8 weeks-40mg/day then tapered down to 0
    Currently on Pentasa-2000mg/day


Lauren21
Regular Member


Date Joined Jan 2007
Total Posts : 200
   Posted 11/16/2007 8:19 AM (GMT -7)   

You're not the only one who is tired! No matter how much sleep I get or how I take care of my body, I am always tired. When I wake up in the morning I feel like I got run over by a truck. There are a lot of factors that combine together to cause fatigue, especially with crohns. Some people take B12 shots and they say they really help.

I always try to plan things in the morning, when I actually have a little energy. If I plan to go out in the  evenings, I always have to take a nap first.


22 year old female
Crohn's Disease (diagnosed 2006) taking Humira & Pentasa
Polycystic Ovarian Syndrome
Anxiety Disorder
Psoriatic Arthritis
Costochondritis
Using Darvocet & Lortab for Pain
Tigan for nausea
 
 
 


there's Hope
Regular Member


Date Joined Nov 2006
Total Posts : 145
   Posted 11/16/2007 10:15 AM (GMT -7)   
I am suffering extreme fatigue, it started with the Crohn's dx. I do have anemia and take iron for that, I also take magnesium (VERY important supplement for us) and B-12 to try and help fight it from the inside. I am not working but some days running from doctor to doctor seems like a full time job! I try to get good sleep at night and nap when I have time to. I try not to stretch myself too thin and explain my fatigue to my family and friends so they understand when I have to leave early cuz I am tired. I push myself as hard as I can but LISTEN TO YOUR BODY. Some days you just need more rest to recoup and thats ok. It is not easy by any means. I try to do things that make me happy as they give me more energy. I work out to gain stamina and try to lose the darn steroid weight, and I find the more I work out the more energy I have. I am nowhere near the energetic person I was before but I am accepting that and working with what I got. You will find things that work for you, I think taking supplements helps a lot and if you haven't been tested for anemia get tested! Good luck!
26 year old female. Dx with UC in June 2003. Flare up in June 2006 led to CD dx.
Current Meds: Remicade, Asacol, Bentyl, Phenergan, Reglan, Ultram, Celexa and Seaonale, Fish Oil, Lacto and a Multi Vitamin

"There's Hope. It doesn't cost a thing to smile; You don't have to pay to laugh; You better thank God for that!"


CDdude
New Member


Date Joined Nov 2007
Total Posts : 3
   Posted 11/19/2007 8:04 PM (GMT -7)   
When I first got Crohn's disease I thought the medication made me tired and light headed. My doctors gave me blood tests and it showed that I was close to being anemic, (which I hear is common with Crohn's) so I started taking Iron supplements and it worked great and the tiredness went away! I suggest energizing Iron from Enzymatic Therapy it doesnt make me constipated like other Iron supplements. This is not a plug, I was tired and light headed for about a year and its helped me. Good luck to everyone with CD

jenngrl81
Regular Member


Date Joined Oct 2007
Total Posts : 208
   Posted 11/19/2007 8:16 PM (GMT -7)   
I'm also anemic and started an iron supplement about a month ago. I'm still extremely fatigued and don't know if it's working or not since i'm on a boatload of other drugs that make me tired and loopy. I nap in the mid-afternoon, if not, i'm useless for the rest of the night.

Pentasa 500mg/8x daily; Entocort 3mg/3x daily; Percocet/Ultram for pain; Protonix 40mg---was on Flagyl/Cipro for two weeks,(a few weeks ago), was supposed to be on it for three weeks but the cramping and diarrhea it caused made me stop


<FONT color=#0000ff>Neurontin 6 capsules/day[/color]


<FONT>Ferrous Sulfate 325mg/daily for anemia




<FONT color=#0000ff>Azathioprine 150mg


Zazucat
Regular Member


Date Joined Dec 2006
Total Posts : 177
   Posted 11/19/2007 10:54 PM (GMT -7)   
Good advice from everyone. I'd add that maybe you could try light exercise. And I mean light- maybe 10 minutes of walking at a moderate pace each day. Don't do more than your body can handle, but even though it sounds counterproductive, it might help. Just listen to your body and see how it goes. Good luck to you. Fatigue is awful.
 


malakai
Regular Member


Date Joined Aug 2007
Total Posts : 277
   Posted 11/20/2007 1:54 AM (GMT -7)   
I'm tired all the time too.  Some days are better than others but I totally have to agree that you have to listen to your body and REST.  If it means taking naps, if it means having to cancel some appts.  I tried to push past it and made myself sicker.
 
To get me through the tiredness aside from taking naps, I sometimes drink emergenc or have B12 shots and it'll work for a little while but the fatigue always comes back.
 
have you checked your thyroid and to see if you are anemic? I had both of those checked and unfortunately I was negative on both. 
 
 
good luck....  If you find any other solutions, please post. 
Newbie - 35 yrs old Diagnosed: 08/03/07
Meds:
Asacol 3x day
Imuran 50MG 3 x day
Lamictal 125 MG/day for bioloar II


want_2_be_well
Regular Member


Date Joined Sep 2006
Total Posts : 181
   Posted 11/20/2007 9:45 AM (GMT -7)   

Have your doctor check for both types of anemia, if you are lacking in iron or B12 you can suffer from anemia.  Prior to being treated for anemia, I always exhausted.  Good luck to you.


want_2_be_well AKA Mel
32 year old Female
Diagnosed with CD 2006, had been ill off and on for over 10 years.
Also have seasonal allergies, milk allergy, and asthma.
CD Meds: Remicade every 8 weeks, Imuran 50 mg, Pentasa
 
 


gemini kiwi
Veteran Member


Date Joined Nov 2006
Total Posts : 1136
   Posted 11/20/2007 1:03 PM (GMT -7)   
I hit the wall often, now I listen to my body more when it says rest.................. I rest. Some parts of my lifestyle are quite physical, so I am more conscious of pacing myself, always on my mind is the "Old Me" and how I could go all day, as if I was running on those everyready batteries, I mean I have moments when I'm really good but it doesn't last and I wilt.....................and rest..................then start all over again.
Tess

lovepink
Regular Member


Date Joined Sep 2007
Total Posts : 182
   Posted 11/22/2007 11:39 AM (GMT -7)   
Everyday all day and I to this day 6 years later have found nothing for Fatigue. Yuck!

killerzoey
Regular Member


Date Joined Jul 2007
Total Posts : 161
   Posted 11/22/2007 2:34 PM (GMT -7)   
I had been very, very tired for months before and after my Crohn's dx. I started Low Dose Naltrexone and find I have a much steadier and higher amount of energy during the day. I also started Zoloft and that had helped a bit with my energy, but I started that about 3 months prior to the LDN. I experienced a significant boost in energy after starting the LDN. It increases natural endorphins and for me that equals more energy. Sometimes I still take naps, but it's usually a choice - not an absolute necessity.
36 year old mother of a fabulous toddler. Major symptoms began after her birth, with widespread pain/stiffness and mucus in stool. Had seen blood in stool for years prior but believe (and still suspect) hemorrhoids and/or fissures for this particular manifestation.

Diagnosed with Crohn's July 2007. The only visible areas of inflammation via scope were my stomach, rectum, and somewhere in my colon. Pill Cam, SBFT, CT Scan all normal. I think I may mainly have colitis.

STARTED LOW DOSE NALTREXONE SEPT. 26TH www.lowdosenaltrexone.org. Also see: http://www.ncbi.nlm.nih.gov/sites/entrez?db=pubmed&cmd=Retrieve&list_uids=17222320

On Specific Carbohydrate Diet (SCD) since late July and seeing improvement in "output" quality and hopefully therefore absorption. Taking SCD legal supplements: B vitamins, Folonic Acid 800mg, EnZym Complete DPP IV Aid by Kirkman.

Current biggest complaints: LRQ fullness and burning now gone. Gastritis symptoms are also quiet now. What was horrible right hip and low back pain has subsided about 60%. I'm pretty much feeling normal but in no way think I do not have more symptoms in my future.


bkoach2
Regular Member


Date Joined Nov 2007
Total Posts : 24
   Posted 11/22/2007 2:36 PM (GMT -7)   
Fatigue. Absolutely, like many, I don't sleep well. Also trips to restroom can wear a person out.
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