Crohn's and ovarian cysts

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gumby44
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Date Joined Nov 2007
Total Posts : 3103
   Posted 11/15/2007 9:53 PM (GMT -7)   
Is there a relationship between Crohn's and ovarian cysts? My CT scan indicated a recent burst ovarian cyst. I often have pain on my right side and I can't tell if it is my ovary or my illeum.
48 yr. old female, diagnosed with Crohn's Sept-Oct. 2007


Krysta
Regular Member


Date Joined Jun 2007
Total Posts : 340
   Posted 11/15/2007 10:01 PM (GMT -7)   
I have PCOS (poly cystic ovary syndrome) but not sure if it has any correlation to Crohn's. There are probably the same percentage of people in the non-crohn's population with it. But I am not sure.

It sucks either way! :-)
Finally Dx- April 13 2007 (age 26) ilio-crohn's-colitis. Surgeries:appendectomy, cholecystectomy, tonsillectomy, pinidal cyst removed,emergency abdominal surgery for hemorrhaging ovary from burst ovarian cyst, LEEPcervix, emergency abdominal surgery for grapefruit sized ovarian cyst removal, D and C of uterus, lumpectomy of breast.
MEDS: remicade, prednisone, Asacol TID, protonix, metformin, buspar, trazodone, multi V, B complex, flaxseed. Vegetarian, leaning towards vegan. no nuts, seeds, or wheat.
Many allergies. Polycystic ovarian syndrome, anxiety, depression, ITP 
Every tool is a weapon if you hold it right ~ Ani Difranco
 
 


onebloodonelife
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Date Joined Feb 2006
Total Posts : 842
   Posted 11/15/2007 11:13 PM (GMT -7)   
I don't know of a specific relationship, but I recently had a few cysts removed, in August actually. It was thought that they might have been contributing to my mini-flare, but alas, they weren't. It was hard for me to tell what pain was coming from where too, but since I was still having other symptoms, I was assuming a majority of the pain was coming from my ileum.
Crohn's Disease for a year and counting
Imuran: 150mg
Humira:finally got approval on 9/21, done with loading doses, starting biweekly schedule on 10/10
Dicyclomine and hyoscamine for intestinal cramping and spasms
www.myspace.com/onebloodonelife
http://studentwebs.winona.edu/catraun4902 <--This link will be changing, but for now it works!


gumby44
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Date Joined Nov 2007
Total Posts : 3103
   Posted 11/15/2007 11:17 PM (GMT -7)   
It looks like you've been through a lot..so sorry! I am 48 now, but back in my 20's I was diagnosed with PCOD and went thru infertilitiy treatments to have my two kids, but then after my daughter was born, I had an ultrasound and my ovaries looked normal and my periods became regular. Maybe it's all coming back now. It does suck...I'm trying to manage this Crohn's flare and I'm in no mood to manage going to a gynecologist too! Thanks Krysta for your reply
48 yr. old female, diagnosed with Crohn's Sept-Oct. 2007


caras
Regular Member


Date Joined Apr 2006
Total Posts : 59
   Posted 11/15/2007 11:29 PM (GMT -7)   
i have endometriosis as well as crohns. back in 2000 i had a dermoid cyst removed from my right ovary, and now i have another growing on my left.
just one thing after another.

potatoqwn
Regular Member


Date Joined Jan 2006
Total Posts : 355
   Posted 11/15/2007 11:54 PM (GMT -7)   
I get ovarian cysts a lot.  This summer I felt lots of right sided pain.  I wasn't sure if it was the Crohn's or what.  Gyno said it was a cyst.  The pain kept getting worse and worse.  I was told to just wait until it burst and then the pain would go away.  After about a month of this nonsense, the pain bacame unbearable and I had to go to the ER.  I had to have a my very inflamed appendix and a large ovarian cyst removed that day. 

Lauren21
Regular Member


Date Joined Jan 2007
Total Posts : 200
   Posted 11/16/2007 9:21 AM (GMT -7)   
I also have PCOS plus Crohns. I know what you mean about not being able to tell whether its your ovaries or your crohn's acting up. If you think you have PCOS there is a medicine they can give you to try to regulate it.

I am starting to think there might be some connection between PCOS and Crohn's with all the women on this board that have both. At least we are not alone!!!! :)
22 year old female
Crohn's Disease (diagnosed 2006) taking Humira & Pentasa
Polycystic Ovarian Syndrome
Anxiety Disorder
Psoriatic Arthritis
Costochondritis
Using Darvocet & Lortab for Pain
Tigan for nausea
 
 
 


gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 3103
   Posted 11/16/2007 11:53 AM (GMT -7)   
Thanks for the input..I guess it's time to head to the gynecologist. I sure am sick of myself!!
48 yr. old female, diagnosed with Crohn's Sept-Oct. 2007


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2205
   Posted 11/16/2007 12:21 PM (GMT -7)   
I also have PCOS, and have to take birth control pills to control the cysts and pain. I don't know if they are connected, but it wouldn't surprise me.
~Jennifer
 
Diagnosed with mild Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Asacol and Questran.


Krysta
Regular Member


Date Joined Jun 2007
Total Posts : 340
   Posted 11/16/2007 4:08 PM (GMT -7)   
Potatoqwn:

That sounds exactly like my last emergency surgery! I have had 4 emergency surgeries, 3 of which were ovarian cysts. One of them was exactly like yours. I had pain pain pain and finally went the ED. I was so used to the ovary/crohn's pain I kind of just let it go for a few days. When I went there they found my inflamed appendix AND a grapefruit sized cyst and removed both. FUN TIMES!

It is a bit suspicious... I take metformin for the PCOS and it seems to be better while I have been on it. Everyone talks about how metformin makes them lose weight but of course I don't have that side effect. lol. I can't take birth control because it makes me way too weepy and *****y!
Finally Dx- April 13 2007 (age 26) ilio-crohn's-colitis. Surgeries:appendectomy, cholecystectomy, tonsillectomy, pinidal cyst removed,emergency abdominal surgery for hemorrhaging ovary from burst ovarian cyst, LEEPcervix, emergency abdominal surgery for grapefruit sized ovarian cyst removal, D and C of uterus, lumpectomy of breast.
MEDS: remicade, prednisone, Asacol TID, protonix, metformin, buspar, trazodone, multi V, B complex, flaxseed. Vegetarian, leaning towards vegan. no nuts, seeds, or wheat.
Many allergies. Polycystic ovarian syndrome, anxiety, depression, ITP 
Every tool is a weapon if you hold it right ~ Ani Difranco
 
 


AnneS
New Member


Date Joined Nov 2004
Total Posts : 11
   Posted 11/17/2007 5:27 PM (GMT -7)   
Ive just found out I have 2 ovarian cysts 7cm each,was told they would have done a Laparotomy but because of surgeries ive had are very reluctant to do,so now to have another CT scan,but wondering what they will do next confused

potatoqwn
Regular Member


Date Joined Jan 2006
Total Posts : 355
   Posted 11/17/2007 7:35 PM (GMT -7)   

Krysta-

I am so lucky to have only had the one surgery even after 16 years of this disease.  I am surely one of the lucky ones.  Even at that, the surgery did not involve my Crohn's at all.  My cyst was not nearly as big as yours -- more like an egg.  The most annoying part of the whole thing was that I was in quite intense pain for over a month.  I kept going into the doctor or calling and they didn't seem concerned.  Even when I went into the ER, they kept telling me that appendicitis pain is not like the pain I was describing (lower right pain radiating into my back, nausea, vomiting, inability to stand up straight,  & constipation which I never have).  The problem was that I didn't have a fever like they expected.  Anyway, I got the long low c-section type cut because they didn't know what was happening inside me for sure.  In the end it was the appendix (like I suspected in the first place) and the cyst.  I understand that they were touching each other and both were inflamed.  Perhaps that's why my back was hurting.  The good part was that they said my intestines looked good with no sign of disease in the parts they looked at.  I credit that to Humira! 


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2205
   Posted 11/17/2007 8:03 PM (GMT -7)   
Krysta said...
Potatoqwn:

That sounds exactly like my last emergency surgery! I have had 4 emergency surgeries, 3 of which were ovarian cysts. One of them was exactly like yours. I had pain pain pain and finally went the ED. I was so used to the ovary/crohn's pain I kind of just let it go for a few days. When I went there they found my inflamed appendix AND a grapefruit sized cyst and removed both. FUN TIMES!

It is a bit suspicious... I take metformin for the PCOS and it seems to be better while I have been on it. Everyone talks about how metformin makes them lose weight but of course I don't have that side effect. lol. I can't take birth control because it makes me way too weepy and *****y!

I had a doctor give me Metformin, but I read how one of the main side effects is D. Certainly not something I need more of! They told me to eat a lot of fruits and veggies. Uh yeah, can't do that with my Crohn's! They don't seem to have a very good treatment for this to me.
~Jennifer
 
Diagnosed with mild Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Asacol and Questran.


RxCrohnie
Regular Member


Date Joined Sep 2006
Total Posts : 145
   Posted 11/19/2007 10:26 PM (GMT -7)   
I just went back to my OBGYN today and still have a 4cm Cyst on my Right ovary. She told me that my cysts keep coming and going because my periods are irregular from my crohns. (or atleast that is what she thinks)..I have the functional cysts. Because of all the pelvic pain I have been experiencing I was referred to this gyn for a hystectomy and then my fistulas need repairing at the same time.
35 yo--Crohns since 2000, Granuloma cysts in mouth-oral surgery X2 in 2000, Fistula colon 2006, Rectovaginal Fistula 2007, Joint pain. Kidney Stones. Dx with Migraines in 2002 and Ovarian Cysts with Endometrosis 2001.  Dx with Fibromyalgia in 2007.  Now receiving Humira, Topamax 300mg daily, Cymbalta 120mg daily, Prevacid 30mg, Maxalt, Vicodin and Ultram as needed, Fish Oil, and Multivits   
 
RxCrohnie 


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 11/20/2007 10:13 AM (GMT -7)   
Okay, gals. I'm 65. At 61 they found a 4+cm cyst on my left ovary. (Evidently, no one told my ovaries that they aren't supposed to form cysts after menopause!). It was found "by accident" when they did an abdominal CT scan due to my Crohn's. Right away my ob/gyn recommended surgery. BUT during web searches on simple ovarian cysts (which is what mine is, a simple cyst) I did manage to find one site that said 8 cms was the upper limit for a wait and see approach in post-menopausal women. There wasn't all that much info to begin w/on simple ovarian cysts in post-menopausal women and all the others set the upper limit at 4 cms. So, my ob/gyn referred me to an gyn oncologist. I was able to get an appointment sooner at Cleveland Clinic w/a doctor Belinson (sp?) who was a gyn onco who had a special interest in women w/Crohn's disease and gyn problems. He concurred w/8 cms being the upper limit as long as the cyst was causing no symptms. HALLELUJAH! "Just" what I had been hoping to hear! The local gyn onco concurred. That was in 2003. The recommendaton was a transvaginal ultrasound one month after finding it, if no change then 3 months, and as long as no change 3 months, 6 months, 6 months and annually thereafter. Well, the little darling has managed to grow and is about 7 cms now. Of course, radiologists being what they are now days every local transvaginal states no change from previous ultrasounds. Their "reasoning" being different ultrasound machines and techs, etc. FORTUNATELY, it so happens that every April I go to the Rolex Horse Event at KY Horse Park in Lexington and the U of KY is in Lexington. The U of KY has been conducting an ovarian cancer screening program since 1987. I e-mailed the lead doctor of the screening program and sent him my ultrasound films. Long story shortened, I now have a transvaginal ultraound done once at year at U of KY whilst I am there for the Rolex and then my insurance pays for one local ultrasound in October every year. U of KY has noticed and commented on the slight, slow growth of the simple cyst. The dummies here haven't noticed it yet. Hmmm. From 4+ cm to 6+ cm and the locals can't tell the difference.

Whatever. I don't happen to believe there is a connection between Crohn's and ovarian cysts and I am grateful mine is a simple cyst and causing no problems or symptoms!!! Oh yeah, I do happen to have a few (think 3 or maybe 4) tiny simple cysts (measured in mms instead of cms). If I remember one is on the left ovary and 2 or 3 are on the right ovary. (Oh, and one local ultrasound they couldn't even find the right ovary, much less any tiny cysts on it). I gotta tell you, I am ever so grateful for the U of KY ovarian cancer screening program 'cause I sure have no confidence in the local radiologists!!! (And then folks wonder why I take off for Mayo Clinic or Cleveland Clinic,etc. when I'm not comfortable w/the answers I get from the locals!!!!). Duh! And why I insist on a copy of the film CDs for myself. While I can't see these minute changes in size I "can" see if it continues to be clear inside w/a thin regular outline, 2 indications that it is a simple cyst and not a complicated or cancerous one. But, of course, we ALL know that patients wouldn't understand these things, don't we? Snort!


Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

Post Edited (CrohnieToo) : 11/20/2007 9:20:04 AM (GMT-7)


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1651
   Posted 11/20/2007 11:20 AM (GMT -7)   
I had PCOD 20+years ago and had a total hysterectomy. there was little written about it back then and I never met anyone with it. I was just talking to a coworker and she said her daughter has it and has lots of gut issues and that there is talk about a connection between the two (guts and ovarian cysts) anyone know anything about that? yp
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and began Humira 9/07.


sum_freak41
New Member


Date Joined Jan 2009
Total Posts : 1
   Posted 1/29/2009 1:50 PM (GMT -7)   
I have had problems with both PCOS and Crohns since i was little. I've always known I was going to have fertility problems as well. I have been on the pill to control symptoms of both, but I am worried about how it can cause clotting because my uncle has recently had a deep vein thrombosis and crohns increases risks for clotting too.. so I think I'm going to go off the pill. Thoughts? Also, has anyone else experienced fertility problems and how have they over come it.

ImAud
Regular Member


Date Joined Jul 2008
Total Posts : 113
   Posted 1/29/2009 3:29 PM (GMT -7)   
i just got diagnosed with crohn's this summer and over the past couple months have started to suffer from ovarian cysts..never had them before!!!...i dont it's directly related to the crohn's but i bet it is possibly indirectly related at some level...is anyone with these cysts on remicade too??? i heard some scary stuff that remicade could possibly mess with your ovaries...not sure how true that is tho..but it would be interesting to find out!!

21 year old female
Diagnosed with Moderate to Severe Crohn's August 2008 (hospitalized for over a month right after)
Taking...asacol 1 2xs/day, 6mp, nexium, miralax, benefiber, and Remicade every 6 weeks
As needed...zofran, lortab, tylenol 3, bentyl
Off of Prednisone!!!


MichelleR
New Member


Date Joined Jan 2009
Total Posts : 3
   Posted 1/29/2009 4:09 PM (GMT -7)   
I have had trouble with cysts since being diagnosed with Crohn's. I can't remember if it was while I was on Remicade or Humira though!
Diagnosed with Crohn's 7/2007. Tried Entocort, Humira, Remicade, Cimzia, and Imuran. GI recently suggested research studies.


hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 1/29/2009 4:53 PM (GMT -7)   
I have had cysts as well. Lots of pain that I thought was cysts, but when I had surgery to remove a cyst that got large & also septated, it had burst & was not there, but the pain still was....
Live for today, for tomorrow you might just get hit by a semi.


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 1/30/2009 7:42 AM (GMT -7)   
Ah, a subject I'm familiar with... I can't say whether Crohn's and ovarian cysts are related... but I, too, have had my fair share of trouble with cysts...

Particularly one of my cysts developed into a big infected mass on my right ovary... which led to me having to have surgery to remove the mass AND the right ovary as well as the phillopian tube (filopian? Ehh, I have no idea, I should look that up sometime)...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6923
   Posted 1/30/2009 8:18 AM (GMT -7)   
yes, it can happen more often due to the inflammation in the area
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


Artesana
New Member


Date Joined May 2010
Total Posts : 2
   Posted 5/22/2010 1:54 PM (GMT -7)   
I am 32. I was first diagnosed with PCOS when I was 16. I had a large cyst rupture after a soccer game that sent me to the ER. Once there, they drained another one the size of a grapefruit. I am adopted, so I learned about my medical history later when I was in my 20's. I found out that my biological father had advanced ulcerative colitis. And another condition, irritable bowel syndrome (IBS), also runs in my paternal family's medical history. I sometimes have symptoms of IBS.

Thank you all for your posts. It is good to hear your stories and learn more about what's going on. Although I haven't had any symptoms of crohn's condition yet, it's good to have a heads up. Especially since it seems to be hereditary. I just wanted to mention this so that you all could count me too as having both things going on at the same time. After reading this forum, I will do more research into how PCOS could effect the development of crohn's symptoms later on.

leysa
Regular Member


Date Joined Oct 2009
Total Posts : 111
   Posted 5/22/2010 6:49 PM (GMT -7)   
I've also had cyst trouble. I had an infected one rupture when I was 13 which did a lot of damage to my tube on the right side, and that can still cause me pain when things are flared up.

I have an IUD now, which apparently can also provoke cysts. My last CT, which was done in the ER, showed a 2mm cyst on my left ovary, but they weren't too concerned with it, given the severity of my colitis symptoms at the time. I guess I get to wait and see.
30/f
chronic active colitis/possible Crohn's - unspecified IBD - waiting on a PillCam
Lialda 1.2 mg 2x/day
Prednisone 20 mg taper in progress
Darvocet or Lortab as needed for pain


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6923
   Posted 5/23/2010 8:37 AM (GMT -7)   
Ladies,
Please just do not forget to get your CA-125 done every couple of years as part of your gyn exam. As you all know my Mother died at 60 about 18 months ago from ovarian cancer. While it is less common then BC, it is not something that is commonly tested for.
Take Care,
Navy
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

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