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dmc24
Regular Member


Date Joined Aug 2007
Total Posts : 37
   Posted 11/16/2007 9:24 AM (GMT -7)   
I had read on this site once that someone was using different vitamins to help keep the crones at bay. Like Omega 3 and probiotics. Any help would be appreciated.
Diagnosed with crones for 3 years. Pentasa put it in remission. Disease is now active again, going on 6mp. Still able to live every day to it's fullest.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/16/2007 10:29 AM (GMT -7)   
PB4 is the lady you are looking for. She only uses natural meds as she is allergic to all the Crohns meds. Hopefully she will be along soon.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


there's Hope
Regular Member


Date Joined Nov 2006
Total Posts : 145
   Posted 11/16/2007 10:48 AM (GMT -7)   
you know I am vegetarian and very into taking natural routes for healing. I find that taking the probiotics helps as it adds bacteria to help digestion so we can absorb all our vitamins and minerals. The omega3 helps all kinds of people, it has so many benefits. I try to incorporate the natural route with the medical and found the best balance for me. I have heard about people "curing" their Crohn's but I am skeptical, but everyone is different. I was told some people have gotten their CD under control with yoga breathing but I feel like if healing was as easy as breathing a certain way we would not all be here on this message board.
26 year old female. Dx with UC in June 2003. Flare up in June 2006 led to CD dx.
Current Meds: Remicade, Asacol, Bentyl, Phenergan, Reglan, Ultram, Celexa and Seaonale, Fish Oil, Lacto and a Multi Vitamin

"There's Hope. It doesn't cost a thing to smile; You don't have to pay to laugh; You better thank God for that!"


gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4096
   Posted 11/16/2007 10:55 AM (GMT -7)   
What kind of Probiotics do you use? Does the brand make a difference?
48 yr. old female, diagnosed with Crohn's Sept-Oct. 2007


gemini kiwi
Veteran Member


Date Joined Nov 2006
Total Posts : 1136
   Posted 11/16/2007 11:04 AM (GMT -7)   
There is no cure for this disease yet, going the natural route is more another way of managing your symptoms, it requires discipline and commitment but there are some poeple who have suffered with dreadful sides effects from conventional medications and basically its the only other option available to them.
Tess

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 11/16/2007 11:28 AM (GMT -7)   
Hi yes as nanners mentioned I'm either allergic or non-responsive to traditional oral RX so I had to put my skeptisism aside and try the natural route...with surprising results that I'm so thankful for...I've had crohns for almost 17 yrs and for many yrs didn't use anything except on occassion rectal meds when I have issues with proctitis (inflammation of the rectom), my CD has affected my colon my entire time of having crohns, as well as my anus (with perianal crohns skin tags) on and off in the rectom and only for the first couple of yrs my ileum (so I've had CD activity in my ileum, colon, rectom and anus all at one time as I described above.

I use the following:

bee propolis 500 mg caps 2X/day
omegas 3-6-9 caps 3X/day
probiotic (primadophilus reuteri made by natures way) 1/day
Prodiem fibre supplement (recommended by my GI) 1/bedtime
vitamins B12, C-Calcium Ascorbate, A (1/day each)

You can google each of them to learn about their benefits, I also eat very healthy, no processed foods/beverages, fast-foods, caffeine, animal fat, processed sugar (I use Stevia as a sweetner), and I exercise regularly.

I was going as much as 30+ times a day often with bleeding, excessive mucus and lower back pain with every BM...I now go 5 or less times a day with completely formed stools, no blood, no mucus, no excessive gas and no bloating.
 
Not a cure but definitely an improvement.

:)


My bum is broken....there's a big crack down the middle of it!  LOL  :)


Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2831
   Posted 11/16/2007 4:51 PM (GMT -7)   
The single most powerful "natural cure" in my opinion is to grow up in and live in the third world and have some degree of parasites in ones intestines- a.k.a. the "hygiene hypothesis" for why, other than the elites of those countries, the populations of the thrid world, while they have many other illnesses that are virtually unknown in the developed world, have extremely low incidence of IBD. This is a proven fact, not a case of the data being buried by other intestinal ailments, because the immigrants from the third world in countries like Israel have been well documented to be very IBD-free vs their hosts... that is, until those immigrants start living there, parasite free, for some years.

This has led to the development of the still controlversial helminth (intestinal worm egg and worm) therapies. I am currently using TSO, Trichuris Suis Ova, aka pig whipworm eggs and am getting some relief for my UC- it has seriously knocked off my (UC) flare and has caused no side effects. I don't know yet if it will get me off pred.. so far it has allowed me to get much lower on the pred though and I now am in a med/TSO-induced remission.

The double blind palcebo studies showed a 75% significant response rate for CD but only a 55% response for UC. I didn;t get a response until I took double the dose used in studies, and this stuff is EXTREMELY expensive, so I am hurting $ big time, but being allergic to all the 5ASA meds, this is my best hope for finally getting off pred after years on various doses.

As for probiotics, I am all for them too- it is a case of trial and error. Some of the higher quality ones out there are, in my opinion, Culturelle, VSL-3, customprobiotics, primal defense, Natren, Pro-Bio, and there are other decent ones too.

Christopher UC
Pancolitis dx'd 1986, full med-free remission 88-97
Flaring or simmering ever since
10 20 17.5 15 12.5 mg pred, 100 mg Imuran
Probiotics (Primal Defense and others), TSO
Turmeric/circumin, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD)
 
 
 


ozonehole
Veteran Member


Date Joined Dec 2006
Total Posts : 559
   Posted 11/16/2007 5:24 PM (GMT -7)   
Probiotic said...

This has led to the development of the still controlversial helminth (intestinal worm egg and worm) therapies...

...this stuff is EXTREMELY expensive, so I am hurting $ big time


Hi Christopher,

Could you give us some idea of just how much money we are talking about? I would be appreciated.

thanks,
Robert
Crohn's since 1988
3 resections


Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2831
   Posted 11/16/2007 9:27 PM (GMT -7)   
Well, the dose used in the double-blind clinical trials, 2500 eggs every two weeks, costs 300 euros a 2500-egg dose, and 300 Euros is over $450 dollars now (this time next year it'll probably be $600 I predict as the dollar keeps shrinking).  I know, these prices are astronomical and I am praying that I will be able to shift to a maintenance dose within a few months.  In theory, a lower maintenance dose might be used if it gets one into remission.
 
In my case, the 2500 eggs every two weeks didn't have anything other than a mild dampening effect on my active UC, even though as a positive side effect it completely cured me of my annual summer hayfever, which was fairly severe. (I never had to take any antihistamine whatsoever, and had no allergy symptoms, whereas normally even taking them just takes 50% off the severity). 
 
After quitting the TSO for lack of effect on the UC, I flared worse, so out of desperation I decided to try double-dosing as a last ditch test, 2500 eggs every week (a dose is in a small vial, is tasteless and colorless), and that's when it finally seemed to really kick in.  But only time will tell if it gets me off pred, i.e. makes for a pred free remission.
 
There is a fair amount of literature published at the manufacturer's site at http://www.ovamed.de, and the TSO forum there is fairly decent albeit not super-active, and you have to disregard the spam that is lately getting posted there by spam-bots.
 
Christopher UC

Pancolitis dx'd 1986, full med-free remission 88-97
Flaring or simmering ever since
10 20 17.5 15 12.5 mg pred, 100 mg Imuran
Probiotics (Primal Defense and others), TSO
Turmeric/circumin, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD)
 
 
 

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