Very Very Scared

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Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 11/19/2007 7:07 AM (GMT -7)   
My crohns is active again. Tis feels awful bad. I really CANNOT go through another resection even though I only had one. I am too ill with other illnesses etc.
I was having diaorea for months and still couldnt control it. I was taken off Pentasa about two weeks ago and told to up the Questran which I tried to do.
I am now having diarrea with URGENT calls to the loo but also very, very crampy in my stomach and very hard to pass anything bar little slivers of you know what plus an horrendous amount of mucus, sometimes just the mucus.
I have never had this before.
I feel bloated, achey and it feels as if it is 'womby' but I am past the menopause.
I have a very bad pain in my lower back.
My doc says he will take me in for a scope when there is a cancellation of another appointment
I am very scared.
xAnn confused sad
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Hypothyroidism, Pes Cavus, Crohns Disease, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder (?parkinsons) movement disorder, ? another autoimmune disease.
Excema.

150mcg tyroxine, 20mg pantoprazole, 10mg Cipramil, 500mg 2 3times a day Mesalazine, 3mg Entocort, 62.5 Sinemet, 30mg Tamazipam, mystatin, sudocream


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 11/19/2007 8:58 AM (GMT -7)   
Hi Ann,
Sorry you are feeling real bad, I think maybe you need to go to the ER. asap. If you go to
the ER they can do a colonoscopy. My prayers are with you.
teddybear
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


gemini kiwi
Veteran Member


Date Joined Nov 2006
Total Posts : 1136
   Posted 11/19/2007 11:31 AM (GMT -7)   
Ann, If your felling dreadful go the emergency, perhaps they can tweek your meds, and help you out.
Take care, sending healing vibes from NZ.
Tess

Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 11/19/2007 11:36 AM (GMT -7)   
I am not in much pain, nothing like it was during the resection 'saga' just awful back pain on waking and all this heavy, bloating, sicky, mucusy, discomfort and the diarrea and the diffiuclty in passing the compo of mucus and poo.
I can't eat but am trying to keep up the water and fortijuice.
I keep consoling myself that if I pass 'stuff' I am ok and wont need a resection. I am just scared of it all.
Has anyone else had these symptoms. As for feeling dreadful, sure I feel dreadful most of the time with all the other complaints on top of this.
I was just never meant to be a 'patient' certaintly not a 'patient patient nor a holy one either!
xxAnn
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Hypothyroidism, Pes Cavus, Crohns Disease, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder (?parkinsons) movement disorder, ? another autoimmune disease.
Excema.

150mcg tyroxine, 20mg pantoprazole, 10mg Cipramil, 500mg 2 3times a day Mesalazine, 3mg Entocort, 62.5 Sinemet, 30mg Tamazipam, mystatin, sudocream


gemini kiwi
Veteran Member


Date Joined Nov 2006
Total Posts : 1136
   Posted 11/19/2007 11:40 AM (GMT -7)   
I know what you mean Ann, I don't DO sick either.!
Tess

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/19/2007 11:42 AM (GMT -7)   
Hi Ann sorry your not well but if you are having alot of problems you should go to emerg and maybe they can give you something .They could probably check your blood to see if you are dehyrated and for other things. I know we all get afraid at times but I find going to emerg. helps and lots of times I feel betteerafter because waiting and worrying make me worse. Let us know how things go. lol gail

Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 11/19/2007 12:08 PM (GMT -7)   
You in Ireland Gail!!!!? NO you WOULD NOT like to go to emergency! Last time I went I spent three days on a trolley - in the corridor and never even had a blood test for DVD which I why I went to see if I had cos I was in hellish pain in my lower leg. In fact on first night was discharged at midnight with no bloods taken and told to come back next day - I did but not having keys to my apartment I spent the night in a hotel and mostly in a bath with the pain then back to the trolley in the corridor of A&E or ER in America. Nope not in this country would I like to go to A&E unless I was in a state of near collapse.
xx Ann
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Hypothyroidism, Pes Cavus, Crohns Disease, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder (?parkinsons) movement disorder, ? another autoimmune disease.
Excema.

150mcg tyroxine, 20mg pantoprazole, 10mg Cipramil, 500mg 2 3times a day Mesalazine, 3mg Entocort, 62.5 Sinemet, 30mg Tamazipam, mystatin, sudocream


njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 11/19/2007 3:37 PM (GMT -7)   
Hi Ann,
 
If you are this sick, maybe you need to increase the dose of Entocort or go back on Pentasa (4 grams)...or both? 
 
Your experience with health care in Ireland sounds horrible...and I thought we had it bad here in the US. 

Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 11/19/2007 3:56 PM (GMT -7)   
I have upped the entocort in the past few days.
We have a two tier system, public for everyone and private for those who can afford.
Our public health system is in crisis, we have along way to go and its because we started from an economic poverty base decades ago.
I BELIEVE in public health care or the ideals of such but its so bad I am glad I have insurance but then again we have so few consultants eg 11 neurologist for over 4million , our population and they have to work for both sectors.
We are short on everythihng from Haemotologists to rheumies, you name it we are short of.
Even the neurosurgical unit in cork has a computer in the theatre operating room that is 10 years old and recently a surgical proceedure had to b e delayed because of a faulty lead to it!!!
And we are supposed to be awash with money.
It all has to start with whose job it is to put in the light bulbs when they go - that was a strike a few weeks ago in one part of the country in our hospitals, and surgical proceedures were cancelled cos the electricians refused to take calls and replace faulty lightbulbs.
xx Ann
I do think though we havent reached a point that when you enter a hospital that they ask you your insurance number first and refuse to treat you if you have not got one, I hear that can be the case in US. What they might do here is treat you in the public and then move you to private if you have insurance and request the move. But all can be treated in public and the private hospitals depend on the public ones when there is an emergeny anyway.
xx for now,
\ann
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Hypothyroidism, Pes Cavus, Crohns Disease, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder (?parkinsons) movement disorder, ? another autoimmune disease.
Excema.

150mcg tyroxine, 20mg pantoprazole, 10mg Cipramil, 500mg 2 3times a day Mesalazine, 3mg Entocort, 62.5 Sinemet, 30mg Tamazipam, mystatin, sudocream


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/19/2007 6:19 PM (GMT -7)   
Hi Ann I am in Canada. I can understand your reluctance not to go with the corridor thing going on . You sound like you had quite a time of it. I sure hope you feel better soon. Keep in touch and let us know how things go .lol gail
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