Question for the ladies--recto-vaginal fistulas?

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RK
Regular Member


Date Joined Oct 2006
Total Posts : 153
   Posted 11/19/2007 12:33 PM (GMT -7)   
For those of you out there with recto-vaginal fistulas: can you tell me what your symptoms were. I'm trying to figure out what is going on with me lately and my next GI appointment isn't until Dec 20th.

31 year old female diagnosed with CD in 2001. Currently taking Pentasa.


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 11/19/2007 3:35 PM (GMT -7)   
I had multiple vaginal infections (thought they were yeast) with discharge, and eventually I felt air escaping through there. I had a doctor at the time that told me I'd know if I had one, well I didn't, had to have another doctor find it.

I even had a couple GYN's looking around in there and didn't have a clue what it was, took biopsies (which really hurt, lol) and told me it was probably herpes. I fired them when I fired my GI that told me "I'd know."

It was absolutely diagnosed using dye injected through my rectum, and I believe it was a CT scan they used to watch where the dye went.
Judy
Crohn's Disease   
Too many surgeries, ileostomy6MP for maintenance.
 
 


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 11/19/2007 4:10 PM (GMT -7)   
I had pain, a lot of pain. This was before I became a more agressive patient and really pushed for answers. The doctors couldn't find anything and the pain eventually went away, maybe 6 months. But since I wasnt agressive I now have a permanent R/V fistula, which causes multiple infections over the course of each year. The pain is gone, but it is a very strange sensations to pass gass through your vagina.

Push for a DX and a treatment.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 11/19/2007 7:42 PM (GMT -7)   
Gas coming out your vagina, drainage....

RK
Regular Member


Date Joined Oct 2006
Total Posts : 153
   Posted 11/20/2007 9:38 AM (GMT -7)   
Thanks ladies. I'm not really having any symptoms other than a little bit of gas coming out. But I've had several abnormal pap tests over the last two years and have had to have colposcopies (like a pap but they use a magnified camera to look at the cervix) every 3 months to rule out cancerous cells. The colposcopies have always been normal but they can't explain the abnormal pap tests. I read a couple of articles where they said that a fistula could cause abnormal pap tests. I guess I'll have to talk to my doc about this. Great! Something new to worry about. Oh the joy never ends.........
31 year old female diagnosed with CD in 2001. Currently taking Pentasa.


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 11/20/2007 9:51 AM (GMT -7)   
I did forget to say that I had a few abnormal pap smears when I had my RV fistula. I eventually had a total hysterectomy, so not sure about long term.
Judy
Crohn's Disease   
Too many surgeries, ileostomy6MP for maintenance.
 
 


knottedup
Regular Member


Date Joined Oct 2007
Total Posts : 33
   Posted 11/26/2007 9:50 AM (GMT -7)   
When you had drainage, could you tell the difference between that and a yeast infection?

JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 11/26/2007 10:09 AM (GMT -7)   
Not really. I do remember being sore down there, but I was also diagnosed with pelvic floor and perianal fistulas so that could have had something to do with it.
Judy
Crohn's Disease   
Too many surgeries, ileostomy6MP for maintenance.
 
 

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