humira / fistulas

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biloxigirl
Regular Member


Date Joined Feb 2007
Total Posts : 56
   Posted 11/21/2007 4:44 PM (GMT -6)   
I don't know if anyone has asked but my doctor wants me to start Humira to close 3 fistulas I have.
My question is will Humira close them?  He is not sure since this is new to him also. 

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/21/2007 5:36 PM (GMT -6)   
Hi I have no expericence with Humira but did get results with the Remicade .Hopefully others on Hum. will be on shortly. I know what the Fistula's are like I didn't like them much. Be waiting to hear how you do with it . lol gail

biloxigirl
Regular Member


Date Joined Feb 2007
Total Posts : 56
   Posted 11/24/2007 8:00 PM (GMT -6)   

yes I hope I do get some replys.  I don't want to start it if its not going to help.

 

thanks

june


crohnie42
Regular Member


Date Joined Dec 2006
Total Posts : 371
   Posted 11/24/2007 9:17 PM (GMT -6)   
mine are closing as we speak....even the recto-vaginal one. Take it. It is a lifesaver
Michele
~~~~~~~~~~~~~~~~~
 
Female Dx'ed with Crohns Disease in 1992
Been on every med for crohns that exists
Several Fistula surgeries
Dx'ed with Colon Rectal Cancer March 2007
Dx'ed with Stage 2 Vulvar VIN
On Chemo and Radiation for 6 weeks
Using Humira with excellent results
IN REMISSION~~~!!!!


bckley07
Regular Member


Date Joined Nov 2007
Total Posts : 41
   Posted 11/24/2007 10:53 PM (GMT -6)   
I recently started humira because of my fistulas. dr. says it should help... we will see. no change yet =)

biloxigirl
Regular Member


Date Joined Feb 2007
Total Posts : 56
   Posted 11/24/2007 11:16 PM (GMT -6)   

Michele,  how long did it take before they closed? 

 

bckley07,  how long have you been on it?  Maybe it takes a while.

 

I sure hope it helps that is the worst of my crohns is these dang fistulas.


crohnie42
Regular Member


Date Joined Dec 2006
Total Posts : 371
   Posted 11/25/2007 9:31 AM (GMT -6)   
i started feeling better after a month.They started closing then.
I can defiantely tell they are closing. I am feeling better and eating better. I am doing much better with Humira than I ever did with Remicade
Michele
~~~~~~~~~~~~~~~~~
 
Female Dx'ed with Crohns Disease in 1992
Been on every med for crohns that exists
Several Fistula surgeries
Dx'ed with Colon Rectal Cancer March 2007
Dx'ed with Stage 2 Vulvar VIN
On Chemo and Radiation for 6 weeks
Using Humira with excellent results
IN REMISSION~~~!!!!


cosmicsnail
New Member


Date Joined Nov 2007
Total Posts : 9
   Posted 11/25/2007 11:50 AM (GMT -6)   
I would be really interested to hear if Humira works. I've had fistulas for 5 years now (that's how my disease manifested itself). They make my life a living nightmare, what with pain and embarrassing leakages. I tried Remicade for about 18-24 months, but with no change. I was even on Thalidomide for a while, but that didn't help either and I was reluctant to stay on it, partly because you can't get it here in Switzerland and also because my husband and I would like to start a family soon, obviously something we can't do if I'm taking Thalidomide.

bckley07
Regular Member


Date Joined Nov 2007
Total Posts : 41
   Posted 11/25/2007 10:51 PM (GMT -6)   
i started humira the end of Oct. im sure it takes a while to kick in and everyone is probably different.  i will update if there are any changes.  i have 2 dr. appt.s on tuesday. We will see. =)
biloxigirl said...

Michele,  how long did it take before they closed? 

 

bckley07,  how long have you been on it?  Maybe it takes a while.

 

I sure hope it helps that is the worst of my crohns is these dang fistulas.


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