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megamax
Regular Member


Date Joined Apr 2007
Total Posts : 217
   Posted 11/21/2007 11:27 PM (GMT -7)   
 Hi my computer is now working...lots of catching up to do .....
 
I had my first infusion of abatacept this morning....so far so good :-) no side effect
 
 
hope everyone is doing good
 
happy thanksgiving
 
Jackie
 
 
Megamax
 
 
35 yrs female, dx with crohn's on july 13th 07 increasing my  entocort 9mg 6mg 3mg    . starting imuran 250 mg had a allergic reaction  can no longer take it .  pariet ,dx with depression in 2002 ,effexor tappering off, welbutrin,resperidone and lemotrogine.
 
 


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 11/22/2007 12:35 AM (GMT -7)   

Welcome Back!!

You'll have plenty of reading to do to catch up.

 


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/22/2007 5:56 AM (GMT -7)   
Hi Jackie glad to have you back .So you got your first IV in that is great. How long before your next one and how often do you have them.Is this the first time you had IV meds for CD I guess I was wondering if you took the Rem. Keep in touch . lol gail

dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 11/22/2007 6:19 AM (GMT -7)   
hi jackie - that's great news! have a happy thanksgiving!
.: stephanie :.
32 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
15mgs prednisone (getting there!), 25mgs 6mp, 4000mg pentasa, vicodin for pain & boat load of other drugs for sleep and anxiety!


megamax
Regular Member


Date Joined Apr 2007
Total Posts : 217
   Posted 11/23/2007 11:14 AM (GMT -7)   
thanks guys-Gail I will go every 2 week 3X then every month ....this is my first iv infusion

gail- are you doing the cimza study?
Megamax
 
35 yr old,female,dx with depression 2002,crohn's july 13 07 in a new trial study for orencia( abatacept )
 
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/23/2007 11:46 AM (GMT -7)   
Hi Jackie No I'am not doing it haven't heard from them they were supposed to send me some info. I did get a lung function test done threw my GP and waiting on results for that. Some things seemed to be not too bad I think on my test.. I am just on pred. and no folllow up visit with my GI because he was going to send me off for a second opinion because of the lung issue. As far as the study on that went a person has to go off the pred. for 4 weeks and then start it again so more for those not on pred I guess, time a person weans off and stays off it would be a long haul ,more for those in better shape then me and hoping for a flare I guess.. which I am not It's a ways off to travel too and my teens car is old. So just waiting to see how things go .Keep letting us know how your doing and what differences you notice. lol gail

teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 11/24/2007 3:16 AM (GMT -7)   
Hi Jackie, Welcome back hope you stay around.
TBW
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


megamax
Regular Member


Date Joined Apr 2007
Total Posts : 217
   Posted 11/24/2007 10:51 PM (GMT -7)   

Hi Gail- I hope your lung test comes back good.keep me posted....

I will keep you guys posted on my new treatment


Megamax
 
35 yr old,female,dx with depression 2002,crohn's july 13 07 in a new trial study for orencia( abatacept )
 
 


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 11/25/2007 9:32 AM (GMT -7)   
When I took my FIL to chemo last week, they had an RA patient taking abatacept. So far so good for her, hopefully it will work with CD without all the side effects we seem to be having from the other biologics. Keep us posted.

Gail, I'm sorry you haven't heard back yet. Hopefully your lung issues will turn out to be a non-issue and you can still get into the trial. Lots of trials have late starters.
Judy
Crohn's Disease   
Too many surgeries, ileostomy6MP for maintenance.
 
 

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