Ambigous Issues hard to summarize in subject line!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

bkoach2
Regular Member


Date Joined Nov 2007
Total Posts : 24
   Posted 11/22/2007 7:55 AM (GMT -7)   

I have 2 questions: 

 

1) Does anyone know of any information (either acecdotal or research)about taking half doses of BOTH Asacol and Azulfidine (i.e., 3 tabs Asacol in AM and 2 tabs Azulfidine in PM each day)?  I seem to get good results and I can find no published risks or contraindications about this.

 

2) I am being followed both locally and at the Mayo Clinic for lung infiltrates seen on CT scans. The scans are ambiguous, with even some improvement seen between scans. I have had a normal bronchoscopy with no cultures found.  I have no breathing symptoms that I know of.  Since I had been on Remicade, because of the possibility it had contributed to the infiltrates, I am not getting the infusions.  One of my Pulmonologists strongly leans toward an open lung biopsy (partly because my Gastroenterologist understandably needs an okay on the lungs in order to proceed) and the other Pulmonologist leans toward waiting for future scans show improvement. My Crohn's status is marginal through all of this.

 

Any help or referral would be appreciated. //


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/25/2007 8:00 AM (GMT -7)   
Hi don't know much about infiltrates although there are many different reasons for them. Keep in touch and let us know what you decide to do do . lol gail

bkoach2
Regular Member


Date Joined Nov 2007
Total Posts : 24
   Posted 11/25/2007 8:27 AM (GMT -7)   

 

 

gachrons said...
Hi don't know much about infiltrates although there are many different reasons for them. Keep in touch and let us know what you decide to do do . lol gail
      Thanks.  I have long thought that the risks and benefits of Remicade always need to be carefully weighed.  Assuming the lungs are something manageable and not necessarily linked to Rem., I still may try to stay off Rem. The time "window" within which someone can resume an AntiTNF drug after being off it, may close in any case.  No good answers.
Male, in early 60's; diagnosed age 39 with Crohn's although I had intermittent symptoms in
childhood.  Had bowl resection 1989.  Treated with Prednisone and Asulfadine or Asacol, then started Remicade infusions every 8 weeks in 1999.  Clean colonoscopies for most part since then.  Currently, lung infiltrates seen in CT scans (no breathing symptoms) are being evaluated to rule-out possibility they were precipitated by Remicade (off Remicade at present, Crohn's worse).


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/25/2007 9:02 PM (GMT -7)   
Hi Hopefully your lungs will come around sometimes it takes some time to see how things are going to go. I know it is an added worry to you now but hopefully it will get better. At least you are not having breathing problems now so hopefully that is a good thing. There is Humira that you might be able to take if things go good for you. I see you were on the Rem. for a long time with good results for your CD. So what symn. are you getting now with your CD, and how long you been off the Rem.?lol gail

bkoach2
Regular Member


Date Joined Nov 2007
Total Posts : 24
   Posted 11/26/2007 3:11 AM (GMT -7)   
gachrons said...
Hi Hopefully your lungs will come around sometimes it takes some time to see how things are going to go. I know it is an added worry to you now but hopefully it will get better. At least you are not having breathing problems now so hopefully that is a good thing. There is Humira that you might be able to take if things go good for you. I see you were on the Rem. for a long time with good results for your CD. So what symn. are you getting now with your CD, and how long you been off the Rem.?lol gail
Had my last Rem in July.  Thanks.
Male, in early 60's; diagnosed age 39 with Crohn's although I had intermittent symptoms in
childhood.  Had bowl resection 1989.  Treated with Prednisone and Asulfadine or Asacol, then started Remicade infusions every 8 weeks in 1999.  Clean colonoscopies for most part since then.  Currently, lung infiltrates seen in CT scans (no breathing symptoms) are being evaluated to rule-out possibility they were precipitated by Remicade (off Remicade at present, Crohn's worse).  On Entocort and Asacol with Tylenol w/Codene and steriod suppositories as needed.

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 09, 2016 4:33 PM (GMT -7)
There are a total of 2,735,546 posts in 301,315 threads.
View Active Threads


Who's Online
This forum has 151417 registered members. Please welcome our newest member, porkdot.
339 Guest(s), 12 Registered Member(s) are currently online.  Details
imagardener2, THE HAPPY TURTLE, hypoHashimoto, middleaged1, IamColumbo, getting by, magoo2, NiceCupOfTea, ChickNorris, U B Tough, Fairwind, multifacetedme


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer