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bkoach2
Regular Member


Date Joined Nov 2007
Total Posts : 24
   Posted 11/22/2007 2:40 PM (GMT -7)   
confused  Does anyone with Crohn's have night sweats, so much as to need pajama changes?  There is no measurable fever ... upon waking and taking temperature, the temp is normal or below normal.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/22/2007 2:49 PM (GMT -7)   
Hi You betcha we do had them for 2 years and they finally stopped after my doseage of Rem. was doubbled .I used to keep extra PJ's on the bed for changing in the night. I know there are lots of people on here who are having them seems to go with CD. My temp is always below normal and it did not go up with the sweats. lol gail

bkoach2
Regular Member


Date Joined Nov 2007
Total Posts : 24
   Posted 11/22/2007 2:53 PM (GMT -7)   
gachrons said...
Hi You betcha we do had them for 2 years and they finally stopped after my doseage of Rem. was doubbled .I used to keep extra PJ's on the bed for changing in the night. I know there are lots of people on here who are having them seems to go with CD. My temp is always below normal and it did not go up with the sweats. lol gail
      Thanks much.

curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 11/22/2007 6:32 PM (GMT -7)   
I had night sweats a lot when I was first diagnosed still do but not as offten now.
Curley
.........
 


gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4096
   Posted 11/22/2007 6:36 PM (GMT -7)   
It could be your night sweats are medication induced. I have noticed the night sweats to be worse since I started Prednisone, but I'm also peri-menopausal, so it's hard to figure out if it is really just hormones. I do change pajamas and sometimes even my pillow case!
48 yr. old female, diagnosed with Crohn's Sept-Oct. 2007


clavman
Regular Member


Date Joined Sep 2007
Total Posts : 39
   Posted 11/22/2007 8:02 PM (GMT -7)   
Had the night sweats when I was first diagnosed also. Think they may have been due to the prednisone the doc put me on. Went away after I tapered off .
Bob
47 years old
Dx 3/07 Moderate Crohn's in terminal ileum-Probably had it for years earlier
Rx Prednisone initially for 8 weeks-40mg/day then tapered down to 0
    Currently on Pentasa-2000mg/day


mkl11
Regular Member


Date Joined Jul 2007
Total Posts : 494
   Posted 11/22/2007 8:03 PM (GMT -7)   
Hm, I've had a problem with night sweats over the past few months and never really connected it to the crohn's until now...i sleep with a huge fan blowing right on me, otherwise my hair is drenched when i wake up.
19, College Student, just diagnosed June 2007
Prednisone, Remicade


bkoach2
Regular Member


Date Joined Nov 2007
Total Posts : 24
   Posted 11/22/2007 8:07 PM (GMT -7)   
Glad mkl11 and clavman reminded me of relationship of sweats to steroids ... I'm on Entocort.

rkilcher25
Regular Member


Date Joined Jul 2006
Total Posts : 144
   Posted 11/23/2007 8:05 PM (GMT -7)   
yeah, i too had the night sweats off and on.  i would check my temp before going to bed, in the middle of the night, and in the morning.  all came back normal.  (i kept track of temp to find out if that was the culprit).  i too was confused, but for me it's opposite.  I was on no meds at the time and now that i'm on entercort i've been fine, so go figure  =]

26 years old
dx with crohn's at 23
Fistula seton surgery 2006
Advancment Rectal Flap surgery 2007
Fisula seton surgery 2007
 
 


bkoach2
Regular Member


Date Joined Nov 2007
Total Posts : 24
   Posted 11/23/2007 8:27 PM (GMT -7)   
rkilcher25 said...
yeah, i too had the night sweats off and on.  i would check my temp before going to bed, in the middle of the night, and in the morning.  all came back normal.  (i kept track of temp to find out if that was the culprit).  i too was confused, but for me it's opposite.  I was on no meds at the time and now that i'm on entercort i've been fine, so go figure  =]


Thanks, I've had it on and off regardless of what I'm on. //

jenngrl81
Regular Member


Date Joined Oct 2007
Total Posts : 208
   Posted 11/23/2007 11:08 PM (GMT -7)   
I had them so bad last night, along with pain that woke me up, i had to change my pjs and my sheets...seriously! I'm on skin is on fire but I'm still cold and covered in blankets...i hate this disease!


Pentasa 500mg/8x daily; Entocort 3mg/3x daily; Percocet/Ultram for pain; Protonix 40mg
Neurontin, 300mg/6x daily
Probiotic
Bentyl for cramping-3x/10mg
Ferrous Sulfate 325mg/daily for anemia
Azathioprine 150mg


bkoach2
Regular Member


Date Joined Nov 2007
Total Posts : 24
   Posted 11/24/2007 6:22 AM (GMT -7)   
jenny26_1981 said...
I had them so bad last night, along with pain that woke me up, i had to change my pjs and my sheets...seriously! I'm on skin is on fire but I'm still cold and covered in blankets...i hate this disease!

Thanks for the feedback ... a crummy disease. // bkoach2

atxbomber
New Member


Date Joined Feb 2007
Total Posts : 7
   Posted 11/24/2007 7:14 PM (GMT -7)   
When I'm in the middle of a flare, my night sweats become so bad that I'll wake up drenched from head to toe. My fingers and hands are actually pruned like I've been in the pool and my hair is soaking wet. Usually when this happens I have to wake up and change sheets twice a night. blah.

bckley07
Regular Member


Date Joined Nov 2007
Total Posts : 41
   Posted 11/24/2007 8:57 PM (GMT -7)   
im on prednisone and  its not rare for me to wake up with less clothing on then i went to bed with.... i have 3 fans in my bedroom at all times of the night. no good.

mindiemonster
New Member


Date Joined Nov 2007
Total Posts : 4
   Posted 11/24/2007 9:26 PM (GMT -7)   
Been there, done that, got that tshirt. It went away when I went on remicaid, thank god.

snowy c
New Member


Date Joined Nov 2007
Total Posts : 3
   Posted 11/24/2007 10:25 PM (GMT -7)   
I'm not on drugs yet, as I'm newly diagnosed and waiting for a colonoscopy (yes, I probably spelled it wrong again.) but yes, I've been getting night sweats ever since the symptoms got really bad. I just sleep nekked and keep a towel by the bed.

keepingthefaith
Regular Member


Date Joined Aug 2006
Total Posts : 331
   Posted 11/27/2007 2:04 PM (GMT -7)   

I have the night sweats everynight.  I now have 5-6 shirts & pj bottoms next to my bed.  In the past week, I have had to change 5-6 times.  I'm not kidding, I don't know what to do???  I'm like the others, wet as could be, but, freezing at the same time.  Does anyone know of anything to stop it, even if its our medications?  God Bless


Dx with CD 1987, 3 resections, 3 abcess sx, OA back & hips, bulging disk, Major depression/anxiety, kidney stones & sx to remove, now 44 yrs old.  Still trying to figure this disease out & of course all the little extra complications that come with this rollarcoaster of a life with CD. 
 
Meds:Humira 40mg every other wk, Imuran .75 daily, welchol 625 x 3 daily, cymbalta 60 mg daily, norco 10/325 x 4x, fish oil, vit e,folic acid,Vit B12,inject monthly,
 
         
 
 

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