Menstrual Periods - Girls, any thoughts?

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wednesday77
Regular Member


Date Joined Oct 2007
Total Posts : 390
   Posted 11/24/2007 4:31 PM (GMT -7)   
Long story short, I stopped getting my period - this happened last year (see below) and is happening again. 
 
I have Crohn's colitis, diagnosed last year - up until that point it was diagnosed as colitis but my GI dr put me into the hospital when I got really sick (they said Crohn's at that point).  I couldn't eat and could barely swallow from the pain and lost over 30 lbs, I was on Prednisone, 6mp, morphine, etc and it took me about 6 weeks to fully recover.  I was on TriLevelin (the pill) before but stopped taking it when I couldn't keep any food down.  I didn't get my period for about 3 months, and when I went back on the pill it started again.  I also gained about 20 lbs back.  (side note: also last year my hair started falling out too and my dermatologist said it was tellogen effluvium, basically from the trauma of being sick.  It is growing back now)
 
I am currently getting over an flare-up, I stopped taking the 6mp and all my problems started again, so I am now back on 6mp, weaning off prednisone (currently 25 mg, down from 60 6 weeks ago), and just stopped cipro and flagyl. (I also take a multivitamin, calcium, folic acid & ambien to sleep).
 
This is my question: has this happened to anyone else?  I lost about 15 lbs this time and am not sure if this is why my period stopped or the shock of what my body goes through with the Crohn's or from the prednisone or what.  At this point I would rather not go back on the pill but don't want to just wait to see when my periods come back.  There is no chance that I am pregnant, and my weight is about 115 (I am 5'1 so am thin right now but not Lindsay-Lohan-lollipop-stick).
 
Any thoughts? 
 

dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 11/24/2007 4:54 PM (GMT -7)   
I usually miss 1 period a year but I did notice some interesting things. I went on Imuran when I was about 13 and my period was very heavy sometimes lasting over 7 days. When I got married (my first marriage) I went on the pill my period did get lighter and the length of time lessened as well. I have been on BCP for 7 years. I started at the lowest dose BCP out there back in 2000. I had a flare and was on pred after starting that pred (just the medrol dose pack ...6 days of pred tapering) I was getting my period every other week. My GYN then switched me to a different low dose BCP I have not had the every other week issue since. In January of 2007 I had been in remission for a few months and had been tapering off CD meds and I had bronchitis badly and it wouldnt go away so my pulmonologist pulled me off imuran he told me for a cpl weeks but I had to see my GI soon after he took me off the imuran. After stopping Imuran my period is now 7-8 days in length again heavy however not as heavy as it had been prior to BCP.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


Smrtgrl96x
Regular Member


Date Joined Nov 2007
Total Posts : 47
   Posted 11/24/2007 5:09 PM (GMT -7)   
I had no period the ENTIRE time I took 6mp.

Sarita
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Date Joined Mar 2005
Total Posts : 2486
   Posted 11/24/2007 5:30 PM (GMT -7)   
Since I've been really ill I've stopped getting my periods, even though I've been on the same birth control for years.  I haven't had a period in 3 months or so.  The not-having-a-period thing is usually multifactorial...stress, malabsorption, other illness, diet, birth control, exercise, etc. can all affect it and so it's really hard to come up with one thing that is likely causing it.  I would get a CBC (complete blood count), folate, and B12 checked out to make sure you're not anemic or have an active infection.  And then try to eat as best you can and hope for the best!

Co-moderator - IBS Forum


beca123
Regular Member


Date Joined Jan 2003
Total Posts : 224
   Posted 11/24/2007 8:35 PM (GMT -7)   
Hello, my name is Rebecca and im 18 years old. I was diagnosed when i was 12 and i had JUST started my period when i was 11. about 6 months after i started i began to lose weight drastically and i STOPPED having my period. When i was diagnosed i asked my docter and he said hopefully when i began to gain weight i would start having them again. I went 6 years without a period. My doctor said that when your body starts losing weight or dealing with any kind of infection or illness it stops doing things like producing estrogen(which is needed to start you period) because when you produce estrogen your body thinks you could support another life(a baby) but when your sick you really cant. Does that make ANY sence at all? My GI said it alot better..but that was a while ago. Well i finally had to go to a Gynocologist( i was getting alittle worried about getting older and not being able to have children) and i started taking estrogen in a pill daily and when i fially started having my period i had to also start taking birth control to regulate them. I hope my story could help you. Good Luck and keep us posted.
 
 
 
Beca
 "The Lord wont give me more than I can handle,i just wish he didnt trust me so much!"
  "let people be people before they are patients"


wednesday77
Regular Member


Date Joined Oct 2007
Total Posts : 390
   Posted 11/24/2007 8:48 PM (GMT -7)   
Thanks for the posting!  Last year I talked about it with my GI dr and my Ob/Gyn - the GI dr (who is awesome) didn't know, and my Ob/Gyn said it could be a number of things (like losing weight, stress, etc) - so I went back on the pill and I did get it again, so I could do that but I am 32 and don't want to rule out not having kids so would rather figure this out now.  I am going to have to be on 6mp (or something) for the rest of my life, per the GI dr - is not having a period a listed side effect?  I feel like there are so many side effects anyway.  I personally do not like taking 6mp, I feel lousy when I am on it, completely drained and constantly have the feeling like right before you get a cold - I can feel the medicine in my body and it makes me feel toxic.  I am on 75 mg, which the dr says is based on my weight so I guess I can't have a lower dose.  So aside from the worry about the whole fertility issue, it is also worrisome about the effects of 6mp on a baby. 
 
Gosh, it was so much easier just having run-of-the-mill colitis with no meds.    

mindiemonster
New Member


Date Joined Nov 2007
Total Posts : 4
   Posted 11/24/2007 9:30 PM (GMT -7)   
My period has been spotty since I first got sick. I sometimes skip a month, and it's never regular.

I know I'm new, and everyone else here probably knows this, but you say you were diagnosed after you were hospitalized, but only cause you were so sick. Have you had a colonoscopy? Or is your doctor just guessing?

wednesday77
Regular Member


Date Joined Oct 2007
Total Posts : 390
   Posted 11/25/2007 8:22 AM (GMT -7)   

I was diagnosed by my GI dr with the colonoscopy, they put me in the hospital right after that, I have had a few of them before and they said colitis, but this time it was colitis with symptoms of Crohn's (I had ulcers in my throat and an eye infection and a random bruise on my leg and few other markers of Crohn's).  I just had another colonoscopy this past time too.

I think the problem is that before last year this didn't effect my life that much - I would have problems here and there but until I got really sick and a new diagnosis and am on lots of medicine it seems to just be a lot going on.  I know they say you can go for years with just colitis and they don't know why but something can happen to trigger a flare up to Crohn's. 

I am just trying to figure out if not getting my period (which has always been regular but maybe due to being on the pill) is a side effect I can either fix or expect to come back (i.e. when I stop the pred, if I gained more weight, if my body just needs time to regulate, etc) 

 


cosmicsnail
New Member


Date Joined Nov 2007
Total Posts : 9
   Posted 11/25/2007 9:37 AM (GMT -7)   
I haven't had my period for 4 months now. I am waiting for an appointment with my doctor to see if it's hormonal or Crohn's related. I haven't had a flare up recently and am a healthy weight.

If you have been sick, you may be right and it could have stopped because of the sudden weight loss and your body trying to get better.

inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 11/25/2007 6:41 PM (GMT -7)   
Mine would stop when I lost a lot of weight. It would return when I got things under control.
Currently in remission!


wednesday77
Regular Member


Date Joined Oct 2007
Total Posts : 390
   Posted 11/25/2007 6:49 PM (GMT -7)   
cosmicsnail said...
I haven't had my period for 4 months now. I am waiting for an appointment with my doctor to see if it's hormonal or Crohn's related. I haven't had a flare up recently and am a healthy weight.

 
How do they tell if it's hormonal or Crohn's related?  Basically, I want a test done to see what is causing it, is there a test they can do? 

broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 11/25/2007 9:10 PM (GMT -7)   
Bingo Wednesday...you just hit the mark on my problem. I'm 46, peri-menopausal, diagnosed in Jan. 2006 & had my first major weight loss (30 lbs) & intestinal resection in July of 2006. My periods were always clockwork & normal prior to my Dx. Having said this...It is my feeling it's "mostly" the predinsone that messes with me. Prednisone can mess up several female hormones, one of which is progesterone. Progesterone would need to be tested 2-3 days prior to starting your period. Well, since the prednisone I've been on in the last year has ranged from 60mg to 10mg daily(which I'm currently on), I have gone up to four months without a period to a period that lasted 7 freaking weeks straight, to no period for 2 more months and this month I've had 2 periods. This last one is very heavy and very painful. I've seen my Gyn and she has done several vaginal ultrasounds and CT scans to watch a reoccuring ovarian cyst(s) throughout the last year. Everything has come back normal or at least within range. Sigh! She now feels that my options are down to two...surgery to remove everything but the ovaries or NATURAL hormones to stop the irregular periods and/or constant bleeds. She won't put me on birth control pills or estrogen because of the Imuran and cancer risks. The GI says she'll only endorse the surgery if cancer cells are present. Sigh! So ....in response to your question, If the prednisone is messing with my cycle and progesterone levels, how the heck am I suppose to know what 2-3 days before my period really is and when to test the progesterone! I know this doesn't necessary help your situation, however, I thought you may want to see where "the elder" stands now. I am fortunate enough to have had my children before I started all the drugs and wish you all the best in your decision to become pregnant! I was suppose to have my GYN appt. in the morning for the annual pap & exam and to discuss where to go from here...but of course...I'm bleeding to heavy for that! SIGH!
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.


cosmicsnail
New Member


Date Joined Nov 2007
Total Posts : 9
   Posted 11/26/2007 4:49 AM (GMT -7)   
I don't know if they can tell, but I guess if they do a test on my hormones and that proves to be unusual, it's probably that causing the problems and not my Crohn's
Crohn's Disease diagnosed 2003
Complex anal fistula since 2002
Resection 2004
Current meds: Azathioprine 150mg
Citalopram 40mg (depression)

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