need some support and have a couple questions

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ArtsyChick
New Member


Date Joined Nov 2007
Total Posts : 5
   Posted 11/25/2007 9:58 PM (GMT -7)   
I'm 24 and I've been learning to deal with this disease for a year. It's been such a roller coaster, and I actaully have a fairly mild case. at least right now. I'm currently having a really bad week. I haven't eaten anything but soup, instant mashed potatoes and jello since thanksgiving. The pain is pretty much constant, and gets really sharp anytime I eat or drink anything. I spent last monday night in the er with severe pain, and was knocked unconscious with benadryl. I'm trying to stay out of the hospital. I have a colonoscopy coming up on tuesday. I'm hoping that something gets tweaked. My primary physician takes care of my pain meds and has recently informed my mother that she doesn't want to be an "enabler". meaning a lot less pain medicine. I don't like to be hopped up on narcotics all the time. I really don't, and I only take is when I need it. in fact, I was completely off pain meds and steriods in september and october. but I"m in practically in constant pain right now, and don't feel like I can go to my doctor. The GI group I go to don't do pain meds, as policy. THe good news is my doctor has a wonderful partner in practice with her, adn she doesn't like me to be in any pain at all, so I'm going to try and get in with her.
 
Has anyone started losing their hair with Asazan or Imuran?
 
Anyone have costocondritis? I get a lot of joint and muscle pain with the crohn's and was diagnosed with costocondritis a couple weeks ago. Not fun at all.
 
Diagnosed with Crohn's July 2006
Pentasa 1g 4x's a day, protonix 40mg twice a day, Asazan 150mg, Prednisone 20 mg, remicade every 4 weeks, cymbalta, B-50, Calcium, Folic Acid, Zinc, digestive enzymes.
Gallbladder removed in 2005.
Lortab 10 prn for pain. I usually take two.
Hospitalized 6 times since January 2007.


potatoqwn
Regular Member


Date Joined Jan 2006
Total Posts : 355
   Posted 11/26/2007 12:03 AM (GMT -7)   
I am sorry to hear of all your pain. My doctor would not give me anything at all for the pain, ever. It can get so bad though, I know. Have you tried to go on an Ensure or Boost only diet for a little while to help things calm down? I found that this helped me with the pain. It's very easy on the digestive system.

Hair loss with Imuran was a problem for me. Also I think the pred and just having this disease can cause that. Sorry I don't know about costocondritis. Joint pain goes along with Crohn's for sure.

Others will come along soon with more help I am sure. Good luck.

malakai
Regular Member


Date Joined Aug 2007
Total Posts : 277
   Posted 11/26/2007 4:21 AM (GMT -7)   
I'm sorry to hear that you are in a lot of pain. I hope they can find something for you to manage it. I am on imuran and have been on it since oct 3rd. My hair fell out for 6 weeks consistently but then finally stopped. It was more thinning all over than falling out in clumps and I had 2 haircuts that pretty much masked it so I can tell when I get out of the shower but for the most part, people can't once it's all blow dried and fixed. =0)

Good luck
Newbie - 35 yrs old Diagnosed: 08/03/07
Meds:
Asacol 3x day
Imuran 50MG 3 x day
Lamictal 125 MG/day for bioloar II

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