I'm 24 and I've been learning to deal with this disease for a year. It's been such a roller coaster, and I actaully have a fairly mild case. at least right now. I'm currently having a really bad week. I haven't eaten anything but soup, instant mashed potatoes and jello since thanksgiving. The pain is pretty much constant, and gets really sharp anytime I eat or drink anything. I spent last monday night in the er with severe pain, and was knocked unconscious with benadryl. I'm trying to stay out of the hospital. I have a colonoscopy coming up on tuesday. I'm hoping that something gets tweaked. My primary physician takes care of my pain meds and has recently informed my mother that she doesn't want to be an "enabler". meaning a lot less pain medicine. I don't like to be hopped up on narcotics all the time. I really don't, and I only take is when I need it. in fact, I was completely off pain meds and steriods in september and october. but I"m in practically in constant pain right now, and don't feel like I can go to my doctor. The GI group I go to don't do pain meds, as policy. THe good news is my doctor has a wonderful partner in practice with her, adn she doesn't like me to be in any pain at all, so I'm going to try and get in with her.
Has anyone started losing their hair with Asazan or Imuran?
Anyone have costocondritis? I get a lot of joint and muscle pain with the crohn's and was diagnosed with costocondritis a couple weeks ago. Not fun at all.
Diagnosed with Crohn's July 2006
Pentasa 1g 4x's a day, protonix 40mg twice a day, Asazan 150mg, Prednisone 20 mg, remicade every 4 weeks, cymbalta, B-50, Calcium, Folic Acid, Zinc, digestive enzymes.
Gallbladder removed in 2005.
Lortab 10 prn for pain. I usually take two.
Hospitalized 6 times since January 2007.