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steph07
New Member


Date Joined Nov 2007
Total Posts : 7
   Posted 11/27/2007 9:15 AM (GMT -7)   
Hi, I think I might have crohn's or IBD. I'm 25yo, female. What i thought was "IBS" has been getting worse and worse. It used to be that I could take lactose pills if i wanted to eat dairy, but they don't seem to work anymore, so i (tried) ti completely eliminate dairy from my diet. Also, I' ve been noticing that I'll get sick if I eat meat sometimes.. so i've been trying to avoid that. I usually get a "flare up" at least once a week, with shooting pains in my gut, and then I have to run to the bathroom. It usually lasts a couple hours. 3 weeks ago, I noticed dark black (blood) in my stool, so i made an appointment with my PCP, and she did some blood tests for bacteria and did a rectal exam where she reached up there and then swiped the poop on a piece of cardboard or something, to see if she could find blood. She didn't find anything then. Everything seemed normal--except for my symptoms, so she reffered me to a GI and i have that appointment next tues.

Just last night though, I got sick (i ate an auntie ann's pretzel), and there was bright red blood in my stool-- I've never had that before and I got really scared and started crying. I have my appointment next tues, so I don't know if this can wait until then or not.

Do people with crohn's get this often?

I called the GI office where i will be going, and they said to go to the ER if it gets worse. Does that mean, more of the same, or if it's gushing out?? EVer since last night my gut has felt just sore. I'm scared to death of going to the bathroom again :*(

I'm trying to prepare myself for the line up of procedures/tests that I will have to undergo.. and i'm scared to death!! My husband is trying to be supportive, but I don't think he knows what to do. THis is so crappy because I'm in school, and i'm having trouble focusing when i have to worry about this.

dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 11/27/2007 9:33 AM (GMT -7)   
hi steph - so sorry to hear all you are going through. those lasctose pills were always a crap shoot for me. sometime i did ok, other times, didn't do a darn thing. for years i thought i had food sensativities and tried to figure out what i could and couldn't eat. after awhile it didn't seem to matter. if a certain food that agreed with me one day, it may not the next. most lactose is one thing i still can't have. i am not a bleeder per se but i can definitely relate to stabbing pains. i get them in the top center of my abdomen and i get mild pain (almost like someone is poking me) on my right side. my pains don't usually mean i have to run to the bathroom though. if you do have crohn's or uc, you will find out how different it is for everyone. and don't get too worried about the tests. i drove myself NUTS over thinking about the procedures and tests, all for nothing. i mean, they aren't the funnest things you've ever gone through, some are easy, some are uncomfortable, but none overall are terribly that bad. just keep telling yourself, this is another step to getting better.

so welcome to the board, you can always talk to us! please keep us posted on your condition! and take care!!!
.: stephanie :.
32 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
10mgs prednisone (getting there!), 25mgs 6mp, 4000mg pentasa, vicodin for pain & a boat load of other drugs for sleep and anxiety!


Mac_Gyver
Regular Member


Date Joined Aug 2007
Total Posts : 350
   Posted 11/27/2007 9:40 AM (GMT -7)   
Welcome to the board stephanie there are alot of people your age or around it on this board. Im 22 but will be 23 friday woot! It is good that you have an appointment scheduled so you can figure out what is going on and get it under control. There are alot of tests that you may have to undergo but of all the one I had to do there was no reason to worry. The worst thing for any of them is the prep which usually is just some discusting drink. As far as the blood goes, I am a bleeder. Just keep in mind tat the water makes it look alot worse than it is. Good luck on Tuesday let us know how everything goes. -Jason
Symptoms Of Crohn's June of '06 (21 years old 285lbs). Colonoscopy in Jan '07 no sign of Crohn's.
Surgery for a Fistula in April '07, diagnosed suggestive Crohn's in May '07. August '07 small bowel follow
through, diagnosed with Crohn's (22 years old 160lbs). On HUMIRA, Prednisone

============================================


steph07
New Member


Date Joined Nov 2007
Total Posts : 7
   Posted 11/27/2007 2:21 PM (GMT -7)   
Thanks for your replies :)

I guess i'm here to find support... i don't even know what's wrong yet, but it's all scary to me.

and i guess i just want to know if i'll be able to live a normal life, once i'm diagnosed with something. do you all still work, and do normal things? is this something that gets worse and worse over time, or does it stay the same?

i just got married about 5 months ago... and it seems like we've been having sex less and less.. because my stomach is always upset. it's even upset sometimes when i don't even have to go to the bathroom. it just seems like a big blur between when i have pain and when i'm ok, sometimes i don't even realize how long the bouts of pain are... until my husband reminds me-- "you've been feeling sick the past few days, remember??" and i'm like, wow it's been that long..

steph07
New Member


Date Joined Nov 2007
Total Posts : 7
   Posted 11/27/2007 2:47 PM (GMT -7)   
also, i had a hard time getting through the holiday (thanksgiving). i brought my own semi-safe type food with me. my inlaws were not very receptive, even though my husband had called them prior and told them that i've been having stomach problems and it's not a personal attack!

how do u guys cope with the holidays and food??

angelang40
Regular Member


Date Joined Sep 2007
Total Posts : 160
   Posted 11/27/2007 2:50 PM (GMT -7)   
Thats the only day in the year where i dont care i eat what i want and suffer later lol hell uve got to live (smile)

Smrtgrl96x
Regular Member


Date Joined Nov 2007
Total Posts : 47
   Posted 11/27/2007 5:11 PM (GMT -7)   
First of all, blood with the poo is common. It can be due to a few different things.
As far as food, my friends and family are used to me being difficult, as I not only have Crohn's, but I'm a vegetarian. They've all adapted and I talk to them in advance and ask them if they'd like me to bring something, thereby being courteous AND knowing that I'll have at least one thing that won't kill me.

Like someone else said, each person's disease is different. It may get better, worse or stay the same. Your symptoms will vary and you'll have to figure out what treatment works best for you.

As for the sex...I'm right there with ya. NO sex drive, but luckily my husband is a very understanding man.

Make sure your doctor LISTENS to you and that you understand the answers to your questions!

Best of Luck,
Claudia

dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 11/27/2007 7:13 PM (GMT -7)   
steph - yes, you will have a very normal life. after diagnosis you will need to figure out what drugs are going to work for you. i am still trying new meds to get my symptoms under control. thankfully i took a voulntary lay off from my job while my poor body is still in flare (pain and the d has been returning since i am tapering prednisone). from what everyone tells me this is the most trying time that i am in. i am feeling better but i still feel i am only running at 60%. something has got to give sometime and eventually i will get to remission.
.: stephanie :.
32 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
10mgs prednisone (getting there!), 25mgs 6mp, 4000mg pentasa, vicodin for pain & a boat load of other drugs for sleep and anxiety!

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