Daughter Diagnosed

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ufatbasted
New Member


Date Joined Nov 2007
Total Posts : 2
   Posted 11/27/2007 9:51 AM (GMT -7)   
My 19 year old daughter has been diagnosed with Chron's which seems to be in the Ileum

She had been complaning of stomach pain the past 4-5 years but has alway been able to do what she wants, played high school and college basketball etc.
No symptoms of severe diarrhea, intense stomach pains, bloody stool that I've been reading about here and elsewhere on the net.

What I cannot seem to find and I assume that is because it does not exist is the answer to this question.
Does Chrons's alway get worse and never better with medication.?

We are going to see her Dr Tues and I have a list of questions for him but am afraid to ask this in front of her.

So I'm asking here.


Thanks

Mac_Gyver
Regular Member


Date Joined Aug 2007
Total Posts : 350
   Posted 11/27/2007 9:57 AM (GMT -7)   
The hopeful end result of medication is to get the disease into remission. Meaning no symptoms. Thats what I have always been told by my doctors. -Jason
Symptoms Of Crohn's June of '06 (21 years old 285lbs). Colonoscopy in Jan '07 no sign of Crohn's.
Surgery for a Fistula in April '07, diagnosed suggestive Crohn's in May '07. August '07 small bowel follow
through, diagnosed with Crohn's (22 years old 160lbs). On HUMIRA, Prednisone

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teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 11/27/2007 10:26 AM (GMT -7)   
Hi and Welcome to HealingWell, Medications are to control the crohn's and then in time remission.
I would first let your daughter now what question you would like to ask her doctor. She if she does not mind you asking.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 11/27/2007 10:53 AM (GMT -7)   
Welcome to HW it is a great place for info and support. The best thing to help your daughter is a postive attitude I know you have questions but she will have to learn to take care of this disease. You could go over your list before going to the Dr. with her perhaps there are things she would like to add to it. There are people who are able to be in remisssion for many years on there meds. Some have different severity of symnptoms and disease. Some have fistulizing disease. Has her Dr. started her on meds yet? How was she diagosined thinking she probably had a scaope. Dietatrician may be helpful ,I follow low roughage diet. Hope your daughter gets feeling better soon and if you need more help ask and we will try to help. lol gail

belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 11/27/2007 11:04 AM (GMT -7)   
Medication can certainly get a lot of the symptoms under control and no, crohn's doesn't always get worse. Some people experience long periods of remission when they have virtually no symptoms. Remember, people on these pages tend to be the sickest and those most engaged in their disease. For many others, diagnosis is the point at which they begin feeling better, not worse, because they are finally being treated for symptoms that have been bothering them for years.

This is an unpredictable disease. It doesn't seem to affect any two people the same way, but it sounds like your daughter's case is relatively mild in that it is probably confined to the terminal ileum, doesn't seem to involve fistulas as primary aspects of the disease and has not excessively hindered her lifestyle. It sounds like she has coped very well up to this point with the symptoms of disease -- not everyone experiences symptoms with the same degree of intensity -- and that weighs very positively in her favour. Coping style can really influence how a person experiences this disease.

It is really important, however, that she get the inflammation that is causing her pain under control and that will probably mean medication. The key is to slow as much as possible the formation of strictures.

I suspect given her initial presentation that will be her greatest challenge in living with this disease.

Best Wishes
Belleenstein:

30+ years living with Crohn's.


ufatbasted
New Member


Date Joined Nov 2007
Total Posts : 2
   Posted 11/27/2007 11:42 AM (GMT -7)   
Thanks for the replies. And some good advice and maybe good news.

She was diagnosed after a colonoscopy and just had a barium upper GI xray.


She is on entocort and another med that coats the intestine. Not sure of the dosage of each.
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