I completely understand your frustration, but now is not the time to lose your patience. I have been on remicade for 3 years now every 3-4 weeks at the max dosage. When I first started, I received my infusions every 2 months. This worked for a little while, but then I began to develop antibodies toward it. My doc upped the dosage to the max dosage and eventually changed my infusions to every month. The remicade now only works for about 2 weeks dispite adding 6-mp and now methotrexate to it. I tried changing over to Humira, but got very sick and had to go back.(Very unusual) Now, I have no other medicine options after remicade and I can not up the dosage or frequency of the infusions. I am the only one at my hospital getting this large of a dose every month.
My point in all of this is that you need to let the doctor extend the remicade out as far as he can. Just like pain medication, we grow immune to its effects and the potency that it carries. I wish that i could stall my infusions out more in order to increase my time that I will be able to use this medicine in the future. Remicade is not a light drug and you need to realize that your doctor knows what he is doing. All to often we want answers and results right now. This disease is a dreadful one with no quick solutions. There is a reason that there is not a cure yet and that is due to so little known about it. Be patient and let the medicine do it's intended purpose. The best thing that you can do, is to be honest with your doctor and let him know exactly how you are doing. Please remember that this medicine carries some extreme side effects, and the less that you can put into your body the better.