Ok I am scared!

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Regular Member

Date Joined Nov 2007
Total Posts : 497
   Posted 11/28/2007 4:42 PM (GMT -6)   
Hi everyone,
This is my first time on here and I have not been officially diagnosed with Crohn's.  I have had episcleritis of the eye for about 5 months now--been using different corticosteriod drops now and that clears it up but it comes right back when I quit.  I have seen different Opthamologists and I finally went to see a new Internist who said that episcleritis is very common with Crohn's.  I have also had some other symptoms as well--I get bad diarrhea off and on, flatulence, acid relfux, nauseau that comes and goes, weird mouth sores that last for about a week or longer.  Sometimes (like yesterday) I get really bad anal pain that comes and goes.  I have bled from there before as well. 
Anyhow, Friday I get to have an upper endoscopy and a colonoscopy.  I am so scared!  Maybe I am just wimp but I really am scared!  I am scared it will hurt and I am scared of what they might find! 
Anyone else had or have any of the above symptoms or fears? 
Oh my bloodwork all came back normal.  But I guess that can be normal even with Crohn's?

Regular Member

Date Joined May 2005
Total Posts : 213
   Posted 11/28/2007 4:49 PM (GMT -6)   

Firstly welcome and know that you are not alone with your feelings. Many of us went through the same when we first started getting tested. I will say this, the worst part of the scopes is the prep. After that, it's cake!!

Take all of this one step at a time. Get the tests on Friday and see what they say. There is a tremendous support group that can help get you through this.

Again, welcome.
The funny story of my first abscess

The paper about the apheresis study

"I've got a fever and the only prescription is more
cowbell." --Christopher Walken

Regular Member

Date Joined Nov 2007
Total Posts : 497
   Posted 11/28/2007 4:54 PM (GMT -6)   
Thanks UKpup!  It helps to know the prep is the worst!  I am looking forward to the tests being over with!

Regular Member

Date Joined Nov 2007
Total Posts : 165
   Posted 11/28/2007 4:58 PM (GMT -6)   
Yes I agree..the prep is awful..but the actual tests arent bad at all. The drugs they give to go to sleep are wonderful..that's the part I always look forward to when I know I have to have something done. It's better to know what's going on and be able to treat it than to suffer and not know. GOOD LUCK!
Fibromyalgia DX March 2003
Crohn's DX Jan 2006 (Symptoms since 96-Misdiagnosed as "female" problems-Major flare during pregnancy in 05 which lead to DX)
1st resection July 2007
Currently on Remicade/8 weeks

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 11/28/2007 5:14 PM (GMT -6)   
First off, welcome and I'm sorry you find you need to be here, but you are not alone. You can come here anytime you need advce or support. As said above, take things one step at a time. The prep is far and away the worst part of all of this. Just set your mind to getting through that, and the rest will follow. Once the doctors have figured out what is going on, you can take the next step. And along the way, if you have questions or just need a shoulder, we're here.

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Regular Member

Date Joined Jul 2007
Total Posts : 456
   Posted 11/28/2007 5:27 PM (GMT -6)   

I totally understand being afraid of what they might find.  I ignored some clear warnings for several years because I was too afraid to find out what was really going on.  Now that I've been diagnosed, I have to say that knowing is much less scary than not knowing.  Everyone else is right- the tests themselves are no big deal.  The stress and prep leading up to the tests are the hardest part.

Good luck to you.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 11/28/2007 5:50 PM (GMT -6)   
Hi and welcome to HW a great place for help and support .I know that it is worrisome having scopes done but then they will be able to treat your conditon it is the first step to better health. Don't be afraid you need to know so you can get help. I was asleep during my scope so didn't know a thing. Lots of us have had some of your symnptoms you mentioned I had IBS for years before CD diagnosis and had D for many years. as well as acid reflux and some other things I don't get the bleeding but lots of people with CD do . It is good your blood work is coming back good. Just hang in there you"ll be fine. Best Wishes and let us know how you make out. lol gail

Regular Member

Date Joined Nov 2007
Total Posts : 497
   Posted 11/29/2007 3:16 PM (GMT -6)   
Thanks everyone! I will let you know how things turn out tomorrow for sure!

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 11/29/2007 4:50 PM (GMT -6)   
Just wanted to add that the blood tests coming back normal doesn't necessary mean anything. I have had Crohns for 32 years and just had some bloodwork done and it was normal and I was vomiting anything that went in at the time. Good luck tomorrow with your scopes, its good to get them both done at the same time, that way they are both over and done with.

God Bless,
Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Veteran Member

Date Joined Mar 2005
Total Posts : 4305
   Posted 11/29/2007 7:19 PM (GMT -6)   
Welcome,we are glade to have you,I am so sorry that you are having to go through all of this I know or should I say we all know what you are going through.i was scared my self when I had my first colonoscopy I chose to be awake no meds to make me sleep while they were doing this and I saw every thing on the monitor this is when I got my diagnosed of crohns.It was some what uncomptable,but I wanted to see what was causing me so much pain.Please know that we are here for you any time.

Regular Member

Date Joined Nov 2007
Total Posts : 497
   Posted 11/29/2007 8:01 PM (GMT -6)   
It is so nice to be able to talk to others and relate about things!

I am going through the prep right now and oh man! I have only had one dose of the Fleet Phospho Soda and I am wondering how I will do with the second dose I get to take in a couple of hours!

My bottom is very, VERY sore! Maybe this is a dumb question, but is that normal? I think I might even have a hemorroid down there now (sorry)! Anyone else had that just from the prep?
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