I see a surgeon Monday!

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Regular Member

Date Joined Nov 2007
Total Posts : 114
   Posted 11/29/2007 9:51 PM (GMT -6)   
I know it probably seems odd that I am sooo excited about seeing a surgeon this coming Monday, but I have been in pain and dealing with this flare forever, and I am ready to just cut out the diseased part. I have already tried the meds: Asacol, Imuran, Cipro, Flagyl, Prednisone, Entocort, Methotrexate, 6-MP, Remicade...among other things. I saw my new GI on monday, and she is incredible. I called yesterday because my stomach is being rediculous and I have already spent 16 days in the hospital for crohns flares, and I wanted to know what to do. She set me up for a CT scan and then an apt with a colo-rectal surgeon on Monday so we can get the ball rolling. I am so excited. Any advice about ileum resection surgery....do all cases require a temporary ostomy?
Diagnosed: 2003, age 18 (had issues with it since I was 12)
Meds for crohns: 20mg Prednisone, 9mg Entocort, 400mg Remicade, 50mg 6-MP, 40mg Prilosec, 1mg Folic Acid, 5/325 Percocet.
Other medical issues: Hereditary Spherocytosis (hemolytic anemia) iron deficient anemia, polyarthralgia, ovarian cysts, Migraines
Surgeries: Spleen and gallbladder out at age 6, Tonsils and Adenoids out at age 21. Looking at resection surgery this year.

Veteran Member

Date Joined Dec 2006
Total Posts : 1986
   Posted 11/29/2007 10:00 PM (GMT -6)   
No, most cases don't require an ostomy. Only if you have major fistulas and/or abscesses or if you choose to (sometimes it's better than all the D).

Good luck to you, I hope it buys you many, many years of remission.
Crohn's Disease   

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 11/30/2007 6:59 AM (GMT -6)   
Wishing you the best and hope it gets you feeling better in no time. Sounds like you are loving your new GI .Best Wishes and let us know how things are going. lol gail

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 11/30/2007 7:06 AM (GMT -6)   
Hi Wishing you the best and I hope you will feel better. I had surgery back in the 1990"S and had no
ostomy. My prayers with you.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007

Veteran Member

Date Joined Sep 2007
Total Posts : 565
   Posted 11/30/2007 12:01 PM (GMT -6)   
that's excellent news then! surgery will be my next step if 6mp doesn't help with my symptoms (which i just started last week). i mean, my gi even said, you are going to feel much better after surgery. he just hates to start with resections now and is trying to prolong my surgery as much as possible.

good luck and definitely keep us posted!!!
.: stephanie :.
32 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
10mgs prednisone (getting there!), 50mgs 6mp, 4000mg pentasa, vicodin for pain & a boat load of other drugs for sleep and anxiety!

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