Crohn's Disease and the Eye

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

pebbles
New Member


Date Joined Nov 2007
Total Posts : 8
   Posted 11/29/2007 8:04 PM (GMT -7)   
  
 
    Hi!  I am a newbie to the crohn's family.  Does anyone have information on or if crohns affects the eyes and vision?  Is there anything special we need to do to take care of our eyes?
Thank you so much, Pebbles

keepingthefaith
Regular Member


Date Joined Aug 2006
Total Posts : 331
   Posted 11/30/2007 10:38 AM (GMT -7)   
Hi Pebbles, Since May I've been battling eye inflammation & dryness.  I'm still being treated for it.  CD can affect the eyes.  The way that the doc explained it to me is, when they do a study with CD patients, there is a high rate of patients experienceing eye inflammation.  They don't know why or the cause, like CD, but, since most CD patients have or had eye inflammtion, then it is listed as possible extraintestinal complications.  With me, I have other factors...not to be personal but...even though I still have a monthly cycle, a blood test showed  I was "post menapausal", which overall dryness of the body is normal including the eye ducts. I'm definitely not post meno, but, thats what the blood test said.  Also, medications can cause dryness & decreased vision.  I am not allowed to wear my contacts now & had to get glasses.  It stinks.  I put over-the-counter eye ointment in 2x day, an antibiotic only in the right eye 2x, & lubrication drops throughout the day. I've had CD since early 1980's & just in the last 3-4 years am I experiencing all the extra problems. God Bless, hope this helps.
Dx with CD 1987, 3 resections, 3 abcess sx, OA back & hips, bulging disk, Major depression/anxiety, kidney stones & sx to remove, now 44 yrs old.  Still trying to figure this disease out & of course all the little extra complications that come with this rollarcoaster of a life with CD. 
 
Meds:Humira 40mg every other wk, Imuran .75 daily, welchol 625 x 3 daily, cymbalta 60 mg daily, norco 10/325 x 4x, fish oil, vit e,folic acid,Vit B12,inject monthly,
 
         
 
 


Dave D
Regular Member


Date Joined Aug 2005
Total Posts : 404
   Posted 11/30/2007 3:36 PM (GMT -7)   
The answer is YES! I'll say it again in all caps: YES.
Have your eyes checked regularily and if you have any issues, fix them then. Otherwise you might end up like me, blind in one eye.
Assuming I have your attention, I have scleritis of the eye an autoimmune syndrome. It started 10 months ago when I began losing vision and getting pain in that eye. Now, after this long, one retina specialist has given up and handed me off to another expert at the Baskom Palmer Eye Institute, connected with the University of Miami. I will meet with her on 12/17.
Meanwhile, the retina has torn and detached twice. The first time my vision went from 20/20 to 20/300, legally blind. Last Friday I broke my old record as I am now 20/400 which is the real thing. It all comes from an autoimmune inflamation, maybe or maybe not connected with Crohns, building in the back of the eye, pushing the retina forward, tearing and detaching the retina. crap happens!
Thank God I still have the other eye. Google Scleritis or Postier Scleritis. That's what I've got. Don't take eye problems lightly.
Dave D


Retired male in late 60's. Perforated Colon in 92. Diagnosed as Ulcerative Colitis in 93. Uncontrolled flareup in 97 dictated J-pouch surgery. 04 Capsule endoscopy diagnosed as Crohns not UC. Emergency surgery in 05 to remove lodged camera capsule. Biopsies positively diagnosed Crohns at that time. 12/06 Unsucessfully tried Naltrexone(LDN). 2/07 developed scleritis of the eye, tearing and detaching the retina. Treated with high doses of Prednisone. 6/07 Eye is healing and currently taking Entocort counting on the residual (non-systemic portion) treating the eye. In October if eye is stabilized, will need cataract removal (obviously old steroid associated). Then surgey to the back of the eye to remove scare tissue caused by the detachment.  11/07 Started Remicade to try and reduce the ocular inflamation of the Scleritis since I have been requiring more and more Prednisone to keep the eye quiet.
Married with 4 grandkids.

Post Edited (Dave D) : 11/30/2007 3:37:43 PM (GMT-7)


inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 12/1/2007 6:31 AM (GMT -7)   
I recently had a bout of kerititis-- inflammation in the eye. Crohn's was implicated as the cause. I was really uncomfortable for the first 2 days but drops cleared it up pretty quickly. I was told not to ignore any eye irritation or pain and to get it treated right away in the future.
Currently in remission!


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 12/1/2007 8:18 AM (GMT -7)   
My eyes have been acting up and I am schedules to see my eye doc next week.
Forum Moderator 
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...


keepingthefaith
Regular Member


Date Joined Aug 2006
Total Posts : 331
   Posted 12/1/2007 12:41 PM (GMT -7)   
My problem too is that all the inflammation is going on in my right eye.  My left eye is already legally blind & I'm very afraid to losing my vision in my "good" eye. 

Dx with CD 1987, 3 resections, 3 abcess sx, OA back & hips, bulging disk, Major depression/anxiety, kidney stones & sx to remove, now 44 yrs old.  Still trying to figure this disease out & of course all the little extra complications that come with this rollarcoaster of a life with CD. 
 
Meds:Humira 40mg every other wk, Imuran .75 daily, welchol 625 x 3 daily, cymbalta 60 mg daily, norco 10/325 x 4x, fish oil, vit e,folic acid,Vit B12,inject monthly,
 
         
 
 


Mac_Gyver
Regular Member


Date Joined Aug 2007
Total Posts : 350
   Posted 12/1/2007 1:36 PM (GMT -7)   
I Use to get cellutis of my eye lid almost once a year prior to diagnosis, I have not noticed it now that Im on meds. Anyone else get cellulits of the eyelid?
Symptoms Of Crohn's June of '06 (21 years old 285lbs). Colonoscopy in Jan '07 no sign of Crohn's.
Surgery for a Fistula in April '07, diagnosed suggestive Crohn's in May '07. August '07 small bowel follow
through, diagnosed with Crohn's (23 years old 165lbs). On HUMIRA, Prednisone

============================================

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, December 05, 2016 7:38 AM (GMT -7)
There are a total of 2,732,933 posts in 301,069 threads.
View Active Threads


Who's Online
This forum has 151224 registered members. Please welcome our newest member, alexben667.
303 Guest(s), 17 Registered Member(s) are currently online.  Details
cupcakespinkgal, scifigal2k, tickbite666, Serenity Now, ntzguy, Huddie, pmm73, GingerGirl, blksteeda, fibrocushie, PA_grandma, Traveler, eat2bwell, Nosila, ljimd, racquetball74, LanieG


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer