I so agree with rootsmith. Communication is the hardest thing to be clever at. Yes, I am sure there are people that don't get a clue, and that don't care to know what is going on. But the closest family does. Your sister do care a lot. This IS a difficult disease to understand. It' s also difficult to talk about
it. Some people can't stay it when we talk about
the intestines, the poops and the diarrheas. For us it has been a natural thing to talk about
. Don't lose focus, you need to have a positive attitude and learn to choose to whom you will share this information. The closest family needs to know. Much people wants to know just a little part of the story, and if they want to know more, they will come back and ask. Tell them they are welcome to do so, and that you just feel that it's ok for you to tell a short version of it at first. Don't vent or stay negative when you tell them about
What can you expect in return?
If you KNOW that some are talking negative about
you and your disease, confront them in a calm and friendly way and ask them if they need more information about
you or your disease. Don't confront anybody with a negative attitude. The only one who will lose then - is you. People don't understand. Not all. Some are slow learners. You need to be patient with those.
Don't turn their negative reaction against your self. They have a problem - they are the ones that is reacting negative to you. You don't have a problem as far as you don't want to make it yours.
As of what to do to get a better future. Please, start to think that you are the only one that are able to take care of your own health. There are other ways to do it than only eating conventional medicines.
I changed my diet, I cut sugar, wheat, milk and learned how to cook. There are good diets for inflammated intestines out there: The Makers Diet. The SCD diet. You need some 5 -7 months to get better and better, but if you make up your mind to do this, you'll make it. You have to use your energy in this area, not in being sad and depressed cause ppl. don't support you as much as you want.
I changed my diet and started to use low dose naltrexone, a medication that calmed down my Crohns and got me in remission. Some ppl need half a year before the medicine works, some with Crohns needs shorter time. It's a medication with small side effects. Those lasts for some weeks. Then it's over and your immune system is at a normal level.-
Ppl. like us have often too low endorphine levels. Low dose naltrexone regulates this and helps the immune system to work 100 %.
Why not give yourself a chanse? Aren't you worth it?
With all the best from Ingrid
Diagnosed CD June 2007. Have been on a minor prednisone medication. Did make a difference while max dosed. Got my problems back when tapering.
Using Low Dose Naltrexone from sept. 2007. See yahoo.com. A member in the group "lowdosenaltrexone" at yahoo. A mixed group, members with MS, Crohns, Colitis Ulcerosa, psoriasis, other autoimmune diseases.