Malibu, definitely feel free to vent away here, that's what the forum is for. Because I think we all know what it's like to acutely feel alienated from the most important people in our lives because of the burden of a chronic illness. It seems so wrong that the ones closest to us sometimes act the most inhumane. I remember when I was a little younger than you, I was dating a boy who had one of the most severe cases of Crohn's I ever remember; he was constantly in the hospital for surgery, could not eat solid foods for close to two years...it was awful. His family suffered, all of us suffered with him. It's an anxiety-provoking time not only for the patient, but for the loved ones. And sometimes, because of that anxiety, they end up saying things that are hurtful, or they shrink away; that produces hurt and hostility in us, the patients. It's a vicious cycle.
I think that having a chronic disease, when it's bad, really turns people around. It can be so burdensome at times, and yet at other times I wonder, what can having this illness teach me? It teaches me a lot, every day. And sometimes the best lessons are learned in very painful ways.
Hang in there. We're here to listen!
Post Edited (Skjura) : 11/30/2007 6:21:54 AM (GMT-7)