Biopsy results wait time, etc.

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Sarita
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Date Joined Mar 2005
Total Posts : 2486
   Posted 11/29/2007 11:36 PM (GMT -7)   
Just wondering...I had my scopes two weeks ago and haven't heard a thing.  I called and the MA said that the doc had my chart on his desk.  Meanwhile, I'm sitting here the first week into my second quarter of school and wondering how much longer I can hold out without some sort of massive intervention beyond the b.s. that I call Immodium...I still went 8 times today and that was a relief!
 
P.S. Tomorrow we have our white coat ceremony, where they "cloak" us with our new student doctor outfits.  Should be a riot.  Maybe I will get up there and poop on the administration's shoes. 
 
P.P.S. I did end up seeing my clinical medicine professor in the clinic.  He excised part of an ingrown toenail for me and was impressed with my pain tolerance :-)   I was like, "You have no idea..." Then I asked him, "Hey, so, sometimes I need IV fluids and that's the only thing that'll keep me going.  Can you hook me up?" to which he replied, "We have a long way to go if you're needing IVs." Ya think?  Golly.  I need somepin'!
 
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gachrons
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Date Joined Mar 2007
Total Posts : 4527
   Posted 11/30/2007 4:28 AM (GMT -7)   
Hi Don't know how long it takes but just wanted to say congrs. on your white coat ceremony .We"re all so proud of you . Hope you get the results back soon. lol gail

Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 12/1/2007 3:27 PM (GMT -7)   
Hey guys,
Well, I saw my FP at the white coat ceremony yesterday and he pulled me into the library just beforehand and handed me a script for cholestyramine (a bile-acid binding resin, usually used to lower cholesterol but has the effect of reducing bile salt overload in the small intestine). He said that he'd talked to my GI for 20 minutes over the phone and the GI said my biopsies were normal. He said he noticed an abnormality in my bloodwork - low carotene - which can imply malabsorption. But if you don't know the cause of malabsorption, you can't treat someone for it; you can only treat the symptoms.

I feel defeated, once again. I'll try this cholestyramine again and hope for the best...I just don't know what it will take to get back in the saddle again. I was thinking of trying another round of Flagyl, or asking about going on an ASA, but I, like my docs, am also completely stumped.

This is an incredibly alienating feeling. At least if you have a diagnosis of some sort, it's something to go by...something to lead your treatment. But there is no explanation. It makes me feel like a total freak of nature.

On the bright side, I managed to get through the white coat ceremony without having to flee for any major dumping episodes!
Co-moderator - IBS Forum


FitzyK23
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Date Joined May 2005
Total Posts : 4219
   Posted 12/1/2007 4:50 PM (GMT -7)   
Yay for making it through the ceremony. Did you have to wear white pants too? That must have been scary!! I was undiagnosed for a long time and totally agree with you. My biopsies were normal too Sarita but they still said it was crohns based on my promesthus test, and a little inflamation they saw during the scope. Did you have the promesthus?
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!
 
 


Ides
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Date Joined Nov 2003
Total Posts : 7077
   Posted 12/1/2007 9:52 PM (GMT -7)   
All I can say is HANG TOUGH! At some point, some doctor has got figure out what is going on with you. The waiting and dealing with the gastric symtpoms has got to be hard on you. I hope the cholestyramine helps. Did the give it to you in powdered or pill form? I could not tolerate the powered stuff but then my gag reflex is overly sensitive. [Linda Lovelace I am not.]
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 12/1/2007 10:23 PM (GMT -7)   
Thanks ladies...NO, thank goodness there were NO white pants involved, LOL.

The only "good" thing about being a freakin' conundrum is that I've done a lot of research, and now I am a pro when it comes to diagnostic tests. I know exactly what to order for a patient. I might have been burned by histology, but watch out when I go on my GI rotation, ha!

I think they gave me the powdered form. I'm going to have to print out the proof that cholestyramine actually exists in a pill form (neither my GI nor my FP believe it).
Co-moderator - IBS Forum

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