Entocort - how long are you on it for?

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Honeybun
Regular Member


Date Joined Aug 2007
Total Posts : 28
   Posted 11/30/2007 8:36 PM (GMT -7)   
Hi,
 
I'm wondering how long typical Entocort treatments are.  I was hoping that I would be tapering off them, and my doctor just told me that I have at least 4 more months.
 
Thanks!
 

njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 12/1/2007 12:37 AM (GMT -7)   
The FDA has approved Entocort to be used to achieve remission -- up to 8 weeks at 9 mg a day. After the remission is achieved, then Entocort is also approved as a maintenance med...clinical trials show 6 mg, taken daily for another three months after the initial 8 weeks, can extend remission significantly.

However, my daughter is in full remission on Entocort and has taken it pretty much nonstop since April 2006. Flared in July 2006 only when she tried to go off the last pill of Entocort.

Two Mt Sinai GIs say they have patients who have been on Entocort for years.
Daughter (20) Dx'd Crohn's 3/06. Misdiagnosed for two years, including by top pediatric Crohn's specialist as stress and needing more fiber but landed in hospital in 3/06 with cramps, vomiting, stricture. Now in remission with Entocort 3 mg (one pill), SCD multivitamin, yogurt, vit D3 1800IU, 900+ mg calcium, 50 mg B complex vit, 25 mg iron. No longer on SCD diet.   
 


Malibu05
Regular Member


Date Joined Sep 2007
Total Posts : 98
   Posted 12/1/2007 4:27 PM (GMT -7)   
I've been on it since September. Started on 9 mg and I've been taking 3mg for about a week now.

JUMPER
Regular Member


Date Joined Feb 2007
Total Posts : 74
   Posted 12/1/2007 4:58 PM (GMT -7)   

Hi,

 

I have been on Entocort for bout 1 1/2 now got it down to 3 mg a day GI says I should stay on this med.  Used long term remmision here in Canada.


That which does not kill us makes us stronger.
Friedrich Nietzsche

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