2nd Time Being Hospitalized

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Matty G
New Member


Date Joined Dec 2007
Total Posts : 19
   Posted 12/1/2007 5:04 PM (GMT -7)   
My name is Matthew and I was diagnosed with crohn's disease about 8 years ago. My GI doc put me on Asacol, and I have had much success with it. With the occasional flare-up every year, I had been keeping the disease, relatively "in check". But in august, I was first hospitalized with a flare-up. My symptoms were the usual ones. Extreme abdominal pain, vomiting, not being about to pass any stool. The doctors at the ER said that I was close to having a blockage, but that they caught it in time. And after being in the hospital for 3 days, they sent me home. The usual rounds of pred, flagyl and cypro were used.

On November 23rd, I once again awoke to having some stomach cramps. Nothing I couldn't manage on my own, but the cramps became worse throughout the day, to the point of almost being in the fetal position. I was still able to go to the bathroom, but not have as much being passed. I grew concerned when I started breaking out in sweats (like I had been running miles) and almost feeling like I was about to pass out. Around 2pm, I started vomiting. Then I knew that I had to go to the hospital. The sweats continued when I was in the waiting room, and I almost passed out a second time. I threw up in the triage waiting for the anti-nausua meds and the demoral. The doctors did a CT scan...and then put in a NG tube (god that was horrible). I was admitted that night and just got out of the hospital this Tuesday. My girlfriend keeps saying that it wasn't a flare-up, that it was food poisoning. But she ate the same food. I would think that if it was food poisoning that she would get sick, even though she didn't eat as much as I did

Have any of ya'll experienced sweats during a flareup?

vadreamer1
Regular Member


Date Joined Aug 2006
Total Posts : 196
   Posted 12/1/2007 5:19 PM (GMT -7)   
Have they done tests to see if you have a blockage? Your symptoms sound quite like mine when I was obstructed.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/1/2007 8:13 PM (GMT -7)   
Hi Yes I had a night of vomitting and pain Wed. of this week and I broke ut in a sweat.Was very weak at the time. When I had the partial blockage the pain did not go away and I did not have bowel movements or pass gas. I was having a bowel movement on Wed. and it passed thank goodness .It can be worrisome at times when those espisodes come along that's for sure. Hope your feeling better. lol gail

Matty G
New Member


Date Joined Dec 2007
Total Posts : 19
   Posted 12/1/2007 10:15 PM (GMT -7)   
They only did the CT Scan. In august, they did CT scans and rounds of xrays. I assume I was almost blocked, since my symptoms were similar, except for the sweats, which I had this time.

When ya'll suffer from the vomiting and not being able to have a bowel movement, when do you think its "time" to go to the ER. These $900+ dollar hospital stays are killing me. But when I started vomiting this time, I may have freaked a bit and rushed going to the hospital when I could've probably stuck it out and stayed home. Maybe I rushed the gun...I dunno.

JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 12/2/2007 8:01 AM (GMT -7)   
Are you seeing a GI? Has he done other tests like a colonoscopy to see what's really going on in there? After 2 trips to the ER for possible blockage, it's time for a change in your treatment plan, it's obviously not working.
Judy
Crohn's Disease   
 
 
 


Matty G
New Member


Date Joined Dec 2007
Total Posts : 19
   Posted 12/2/2007 9:11 AM (GMT -7)   
yes, I see my GI doctor tommorrow. He did a colonoscopy in may, and said that my crohns was actually very good. I had a few ulcers and a fistula, but he (the dr) was very pleased with how the disease was being kept.

But that was 3 flares and 2 hospital stays ago.

JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 12/2/2007 9:26 AM (GMT -7)   
Good luck at the GI's tomorrow. Hopefully he'll want to look into this more, unfortunately for you it will probably mean more tests, but it's better to have answers so you can treat it appropriately. Let us know what he says.
Judy
Crohn's Disease   
 
 
 


Matty G
New Member


Date Joined Dec 2007
Total Posts : 19
   Posted Yesterday 1:11 PM (GMT -7)   
He said at first it sounded like a bug, but when I said I was having some pain in my lower right abdomen yesterday, he began to think it may have been a blockage. He wants me to check into Humira (sp?) but I dunno about trying "experimental" drugs...and not to mention he said it costs over a grand for each of the injections.

My doc is still waiting on the results of the CT scan they took on the 23rd. He did say that I could cut back on the prednisone, 20mg (I was taking 30mg).

I didn't know that you could have a blockage and still be able to have a bowel movement. That was news to me.

bektold
Regular Member


Date Joined Jul 2007
Total Posts : 456
   Posted Yesterday 2:12 PM (GMT -7)   

Humira isn't experimental- it's an approved treatment for Crohn's in the US. http://www.humira.com/CrohnsDisease/Default.aspx

From what I hear, it is expensive, though.  Just in the last week or so someone here was talking about a discount program from the manufacturer.  Maybe you could qualify for that?  (I'm guessing you don't have insurance?)


Matty G
New Member


Date Joined Dec 2007
Total Posts : 19
   Posted Yesterday 6:21 PM (GMT -7)   
I do have insurance...just not any drug coverage. After reading all the side effects from the Humira...I dunno if I am comfortable taking it. Of course, all the drugs I am on now, have a ton of side effects (pred), so I guess you're darned if you do..and darned if you don't.

Have any of yall been on predinsone and have increased amount of urination? I'm going to the bathroom like 15+ times.

bektold
Regular Member


Date Joined Jul 2007
Total Posts : 456
   Posted Yesterday 7:15 PM (GMT -7)   
Pred can screw up your blood sugar.  Has anyone checked that for you?  Diabetes can cause increased urination.  Fortunately, for a lot of people it's temporary and goes away once you're off.
 

JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted Yesterday 9:17 PM (GMT -7)   
What about immunosuppressants? Have you tried Imuran or 6MP? Bigger guns, not as expensive, works great for a lot of people, but does take time to take effect.
Judy
Crohn's Disease   
 
 
 

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