Traveling = Anxiety = Tummy aches!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

descrapster
Regular Member


Date Joined Jun 2007
Total Posts : 155
   Posted 12/3/2007 7:18 AM (GMT -7)   
Good Morning Everyone, hope you all are having a good, pain free day!  So I am leaving to North Carolina one week from Friday.  We will be there for 3 days and then we drive up to New York for a week and back down to North Carolina for 2 more weeks.  Now I have tried to stay calm and not think about it because then I get ansy(spelling error possible).  I have been focusing on what needs to get done before we go so I have not had time to get excited.  That is a good thing since the minute I get excited or anxious about something I have to run straight to the bathroom.  Well this morning all we heard on the news was how it was snowing in parts of New York!  I have never seen snow or been to NY so needless to say I got excited!  My tummy didn't like that whatsoever.  Now I am nervous about traveling.  It's a 12 hour drive up to NC. I have not seen my family since May of this year, a very long stretch of time, especially with my mom.  I don't know how I am going to deal with the car ride.  I think I am going to take something to sleep so that I don't feel it as much.  Then there is the whole walking around new york.  I am going to a place I have never been.  They want to take me to so many different places and that scares me.  What if I get a massive tummy ache in the middle of Indian Town?  What if all that walking irritates my fistula?  My last vacation was a cruise where I ended up having an abcess drained and the anesthesia didn't work so needless to say how that went!  I just want to be able to enjoy some time away with my husband and family.  What do I do??
Descrapster
Diagnosed with CD June 15, 2007
Currently 2 Fissures and 1 Fistula...YAY! Seton Drain currently in.
8 Pentasa/day
Had to stop Flagyl because of numbness in my toes!
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/3/2007 7:32 AM (GMT -7)   
I feel your pain. I get the same anxiety any time I travel or even expecting my kids to come into to town to see me. My oldest daughter just came into town this past weekend, I was so anxious that I was going to get sick and not be able to enjoy my time with her. But with much perserverence I did okay and ended up having a wonderful time. Just try as you might to keep yourself calm and think about seeing your family and how much fun you will have with them. I hope you have a wonderful painfree trip and really enjoy yourself. Don't let Crohns win this time!!!

God Bless
Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 12/3/2007 8:33 AM (GMT -7)   
It may not always be the healthiest but I just prepare for the worst case scenario and I am usually ok. I have driven from Mass. to GA during a flare, and back. There are lots of rest stops on the interstate and lots of woods. I never had to use the woods but seeing it there really gave me a sense of relief. Is your doctor ok with you taking immodium when necessary? I just got a short rx for xanax for some upcoming flights. I haven't tried it yet to see how it effects me. But if it works for you could you try something like that for the car rides? Also, I found it really helped me to be the driver. I got a lot less anxiety when I was in control and distracted by everything that goes along with driving. If I think of more suggestions I will let you know. Also, talk to your fellow passengers. A lot of the time I was worried I would be annoying people with all my bathroom stops when in reality they only took a few minutes and they didn't mind at all. Most of them drank a lot of energy drinks on the trip and had to pee anyway. It will be fine. Bring stuff with you for your "worst case" so you have piece of mind and make as many stops as you need and you will be a-ok.
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!
 
 


descrapster
Regular Member


Date Joined Jun 2007
Total Posts : 155
   Posted 12/3/2007 9:45 AM (GMT -7)   
Thanks. Luckily for me my passengers decided to take their own car and just follow us so that was a big relief. It is only my husband & me in the car so I can lean back and sleep. My friends know my condition and they have seen what it does to me so they are completely ok with 20 bathroom stops if needed. I am trying to watch what I eat very carefully as of now just in case. I am also planning to pack my own food instead of the usual mcdonalds breakfast, lunch, and dinner. Today is a very ansy day...I am trying soooo hard not to get excited but hearing the excitement in my moms voice is making it very difficult. My little sister is also calling me everyday counting down the days so it gets hard not to get all jumpy and excited. (I need one of those jumpy emoticons right now in place of this sentence!) Oh to have some cold weather and not this 85 degree south florida weather. It is sooo hot and muggy! We are getting a cold front tonight and it's the talk of the town! We are getting down to 60 tonight with a high of 72 tomorrow. LOL...guess I better break out those scarves and coats!
Descrapster
Diagnosed with CD June 15, 2007
Currently 2 Fissures and 1 Fistula...YAY! Seton Drain currently in.
8 Pentasa/day
Had to stop Flagyl because of numbness in my toes!
 


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 12/3/2007 9:57 AM (GMT -7)   
OK, this may sound odd but, especially if it is only your husband and you in the car, it can give you a little peace of mind. I keep a large disposable container, ziploc/glad type (for a long extended trip you might want several) in the car with a small roll of toilet paper inside. If I have a very urgent need and there are no facilities nearby, I can pull over to the side of the road, use the container as a porta potty, cover it, and then throw it out at the next rest area. I've only had to use it once. I made my husband and kids get out of the car, it did what had to be done and we went on our way. It was better than being in the woods, and at least I didn't have an accident. If you end up not needing the container, you can always take it back into the kitchen after the trip. I also have periods of nausea, so it serves two purposes for me.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


bektold
Regular Member


Date Joined Jul 2007
Total Posts : 456
   Posted 12/3/2007 10:41 AM (GMT -7)   
Try making a list of the things you want to do while you're in NY.  Not everything, just the ones you really want to do or see.  And then try to spread them out as much as possible over the time you're there.  If seeing Indian Town is important to you, try to do it at your best time of day, and if you're tired after, go back to the room and rest while the group moves on.  Don't waste your limited energy on things you're not as interested in.  And remember, there's so much to do in NYC that no one could do it all in one short trip.  It'll all be there next time!

FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 12/3/2007 11:15 AM (GMT -7)   
Bek's suggestion reminded me of one that really helped me as well. A lot of times we dwell on the things that went bad and fear that history will repeat itself (your cruise). I got really really sick at my sister in laws graduation on my road trip to GA and back. It was really embarassing and I felt like I ruined her special day because everyone was focused on me. It made me reluctant to go out again. So I took a piece of paper and made columns or boxes. One was all the things that I have done and just felt perfectly great forgetting I had crohns. That column had very few things in it. One was a column of times I was nervous to go somewhere but it went well or that I may have gotten a little sick but it was totally manageable and in the long run I was glad I did it. That column was very very very long. Another column was times that things went so terribly bad I wished I had never done them. That column was also very short, almost as short as the feel perfect forgot about crohns column. I also made a list of the things I was most proud that I have done despite my disease (hiking the Sierra Nevada in Spain for example.) Then whenever my imagination gets out of control and I start to think that everything is going to be a disaster, I look at my list. I remind myself that while I probably won't feel perfect it probably won't be a disaster either. More likely than not, statistically speaking, I will have a good time and be glad I went despite whatever happens. I looked at that list often and added to it as I accomplished more things. Now, I barely ever look at it and can just remind myself from memories.
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!
 
 


Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 12/3/2007 12:41 PM (GMT -7)   
Hi Des....

I love to travel, now that I have an ostomy it is actually easier, but i know it's different for you...just call your doctor and ask him to call something in for you, make sure you bring plenty of pain medicine and a few ativans or valiums (or whatever you prefer)....take them in the car if you start to get uncomfortable, and you will be fine....

Sometimes, I just drink lots of Ensure, or similar stuff to give me the nutrients I need without upsetting anything....

good luck and enjoy your trip....Wow! never seen snow in real life huh? make sure you are dressed up really warm for the snow so you can enjoy it the way it should be, instead you will be too cold to have fun and enjoy it....

I must say, I am jealous, I have a cousin in NC I have never met in real life, and know another girl from HW that lives there, and I really want to visit one day.
"All we need is love....love is all we need"


gemini kiwi
Veteran Member


Date Joined Nov 2006
Total Posts : 1136
   Posted 12/3/2007 12:43 PM (GMT -7)   
I flew to my hometown a couple of weeks ago for the day with my husband as he was on a business trip, I took my Mom's ashes home. I hardly ate the day before and all week my stomach was off, I also took Codeine to help bung me up and for any pain. I packed some homemade delicious soup and some bread, took my own water bottles, we have our own bore, and we set off. Gosh the plane was tiny, felt really breathless when they closed the doors and the plane, (did I mention it was small) rocked from side to side. The 20 minute flight was long enough I was glad to get back on terrafirma. The meeting went well at the local hospital, I stayed in the hire car and knew exactly where to find the toilets, (right near outpatients)
Looking back I acheive an awful lot that day, scattered the ashes, brief sight seeing trip in the hire car, business meeting for Ian and afterwards we found a lovely Quilters barn where I bought some silk fibre for my art work, I even dared to have a coffee and a small helping of carrot cake in this lovely mud brick/ adobe style cafe. the cake came with about an inch of frosting and a huge spoonful of whipped cream on the side,.........give me a break...........All these places I used to explore as a kid and open farm land is now covered in endless vineyards, Blenheim has changed so much.
I tried to catch up with an old school friend but she was in Australia, perhaps next time. We had time to spare before the flight home and went to pay my respects to my best friends grave, she died of breast cancer about 4 weeks before my Mom passed away. I was OK, it was a beautiful evening, unlike the horrible weather the day of Yvonne's funeral the granite headstone was perfect. The flight home over the Cook Strait was great, different plane not as small, still tiny though as plane go.. I saw seals in the water off the Wairarapa coastline.
That for me was the most I've done in ages. It did me good to have a change of scenery and I felt I did everything in my power to avoid any complications. I will go again, this disease has done enough to me already, that day I was in control.

Have a wonderful trip, take care and just do it.
Tess
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, December 05, 2016 8:03 PM (GMT -7)
There are a total of 2,733,317 posts in 301,103 threads.
View Active Threads


Who's Online
This forum has 151244 registered members. Please welcome our newest member, Wedge.
406 Guest(s), 11 Registered Member(s) are currently online.  Details
Nana 2, Lymepilot, Bloom93, Charmed3, Mexlyme, pressurehead, Wedge, bdavis, iamamess, Broncofan18, NotQuiteAntonio


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer