Luglug, Don't feel like you don't belong. Judy should have added not only severe disease but also people who are new to it and are looking for information and support. I know she didn't mean it to come out that way.
Every ones course of disease is individual. I'm 48 years old and diagnosed last year. But my daughter is 27 and was diagnosed when she was 12. My disease is also considered mild only because I had half of my colon removed last year because of a fistula to my bladder. Lucky me. That is when they found the disease. Only a small percentage of Crohnies even get fistulas but they are possible.
It is possible to have related genes to predispose someone to IBD but it is not a given. So I wouldn't worry about
you children but do keep a close eye on them.
There are many new drugs that you can take if you should need to and there is always the surgery option if necessary. I'm only on pentasa, which is a sister drug of asacol. Just keep up on it and maybe you can have many many years of symptom free disease activity.
There is another website called www.IBDsucks.com that is trully terrific. Lots of information about
everything and friendships that have formed with other sufferers. So if anyone wants to check it out......do so.
Vicky / 47 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
Daughter (26) also has Crohn's since she was 12.
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor