Initial Doses of Humira

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

mindyk81
Regular Member


Date Joined Oct 2007
Total Posts : 54
   Posted Today 11:40 AM (GMT -7)   
For those of you who take Humira, did you do all of your 4 initial doses on the same day, or did you split them between 2 days? Did you have any side effects from taking those 4 doses? That seems like a lot of medication to me.
 
I'm going to get my TB test in the morning. I also have to get a nurse to show me how to inject because I've never done it before. I'm getting anxious to get this started so that I may get off the pred.
 
Thanks!
Diagnosed with Crohn's in 1995.
Have used Prednisone, Flagyl, and Pentasa in the past.
Now on Imuran/Prednisone - waiting to start Humira.
One stricture in distal ileum.
No surgeries yet.


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted Today 2:38 PM (GMT -7)   
I had all 4 on the first day the nurse at the doctors office did 2 of them and I was made to do the other 2. I had the same reactions both with the 4 in the 1 day and the 2 in one day. I think I had worse headaches with the pen since I knew that it stung lots and I had no control over the speed at which the meds went in. I am now on one dose of HUmira a week finally got it approved last week. I was still symtomatic when I did 1 every other week. I still have the fistula and it wont heal any other way now it was close before which is why they increased my dose of humira. Unfortunatly I have to have a scope, fistulagram and then my surgeon will remove the fistula and any more diseased portion of my intestine. When he reversed my ostomy all tests showed there was no active CD. Three weeks after the reversal I started with LLq pain and when I press on that area that is when feces oozes from the fistula so it didnt take too long for it to remanifest itself. I was placed on Pentasa after the pain in that area had set in prior to that I had been on no CD meds since February which was when I had 2 emergency surgeries.

I hope that after my surgery ( probably will be in January the sooner the better but I want to make sure I am home for the holidays being it will be tough this year since we lost 4 family members this year one being my grandmother) that humira will work for me. I hope that once the bad area is chopped out that the humira will keep me well even if it is just long enough so my husband and I get the okay to start a family and then have a healthy pregnancy...that is my hope and goal...granted I would love to be in remission much longer than just to have a family but I'll take what I can get at this point. So I am hoping for the best I figure all the bad luck is getting out in 2007 so 2008 better be a better year or I will scream lol.

GL with your HUmira some people have no burning sensation when the meds go in while others like myself find it burns a lot no matter how long I ice my leg before and after the injection and I actually hold the syringe iin my hand to warm it up before injection. Another tip the nurse gave me was to make absolutely sure the alcohol is dry before injecting since tht can add to the burning sensation....yes the kit even comes with the alcohol wipes. The GI office should give you a kit when you go in for them to teach you how to do the injection. I got a mini ice pack to place on the injection site, a travel kit if you must travel with the injection and that came with a mini ice pack as well. it comes with a dvd and other booklets on how to inject the pen and the syringe. It is in a gray box like thing and has the med name embroidered on the front in maroon thread. One of the booklets has a number on it so you can have the pharmacutical company send you a small sharps bucket. My GI office gave me a little sharps bucket and a paper where they locally accept the bucket and will trade you a new one.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted Today 3:57 PM (GMT -7)   
My GI, and the others in his office, have actually decided against the 4 loading doses and instead opt to do a 2 dose one. He told me they all attended a recent seminar right before it went on the market for Crohns and that studies were showing results from just 2 instead of 4 and they were opting to not overmedicate unless necessary. Since the man has been nothing but brillant for me, we discussed it and I went with his recommendation.

I had both doses in one visit in the office - within a week I was eating solid foods again, so evidently it worked.

tinglebell
Veteran Member


Date Joined Apr 2007
Total Posts : 531
   Posted Today 4:33 PM (GMT -7)   
I took 2 on a Sat night and 2 on Sun morning. I thought 4 together was a little much. I gave them to myself, and yes they do burn for a few seconds after the med goes in. More when I press on it. But I can tolerate pain fairly well. I don't ice the site, but I do let the humira come to room temp.
DIANNE
Diagnosed at age 19 with CD.
3 small bowel resections, 1 for perforation, 2 for strictures 
 


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted Today 4:53 PM (GMT -7)   
I was eating and all and my GI is a Crohns specialist Dr Samir Shah was just highlighted in the CCFA newsletter, not sure if each chapter has its own newsletter but mine was highlighted in the flyer.

I initially started on humira for my joints which years ago that was why I started remicade I had more joint issues with my CD than belly issues. Then a few days before my 1st dose that fistula I have appeared and since my doc saw a difference with how I felt etc he has since decided that I need one shot each week. Having the 4 n 1 day was what I needed I could have done 2 one day then 2 the following day but I just had them all done in 1 day.

I fully trust this GI more so than my old GI who didnt believe I was in a flare for 6 months prior to my ileum perforating even though I had tests proving I was in a flare. This GI does research he does many conferences on CD UC the meds and pregnancy etc which I know when I am back to feeling better I want to start a family. My old GI even when I was in remission kept telling me you are too young you dont want kids. My husband is 13 years older than I, I was in remission from about 1 month before we got married in 2005 and started to flare the last week in August 2006. My husband and I had even gone to see the high risk obgyn docs for a consult prior to us getting married to find out about the meds, what they knew so far about pregnancy and the meds etc.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


mindyk81
Regular Member


Date Joined Oct 2007
Total Posts : 54
   Posted Today 8:32 PM (GMT -7)   
Thank you all so much!
 
I think it's funny that I can't wait to start injecting myself... what I would give for relief!
Diagnosed with Crohn's in 1995.
Have used Prednisone, Flagyl, and Pentasa in the past.
Now on Imuran/Prednisone - waiting to start Humira.
One stricture in distal ileum.
No surgeries yet.


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted Today 9:37 PM (GMT -7)   
When I stared Humira I was taking it for my RA and my Rhuemy did all four shots at once.

Curley
.........
 


Spifficial
Regular Member


Date Joined Oct 2007
Total Posts : 33
   Posted 12/4/2007 4:08 AM (GMT -7)   
I took the first four shots at once, in the tummy. I've still yet to inject myself, though. To me, they hurt, and I don't inflict pain upon myself too well.
Diagnosed CD in Dec 06'
Currently on: Humira, Yasmin (9 week intervals), multivitamin, calcium +D & magnesium

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 02, 2016 5:17 PM (GMT -7)
There are a total of 2,731,847 posts in 300,972 threads.
View Active Threads


Who's Online
This forum has 151131 registered members. Please welcome our newest member, veris.
313 Guest(s), 14 Registered Member(s) are currently online.  Details
Celeste15, F27, elkcaller, dizzydaisies, Helgramite, Wilderness, Michael_T, ASAdvocate, JFL1957, Duffykani, Mustard Seed, Sam1996, multifacetedme, joee


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer