so tired all the time

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crohns37
New Member


Date Joined Nov 2007
Total Posts : 9
   Posted 12/3/2007 11:40 AM (GMT -7)   
I would like to know if anyone else feels tired all the time.
I do sometimes I feel like I'm not gone be able to get through the day with out a nap, so I was wondering if there was any help for this???

mindyk81
Regular Member


Date Joined Oct 2007
Total Posts : 54
   Posted 12/3/2007 11:53 AM (GMT -7)   
The fatigue came first when I went through my last flare. I knew something was wrong. I was working out 4 times a week and feeling just fine. One day, I woke up, and all of my energy was gone. The cramping/nausea came later. I tried to tell the doctor how tired I was, but he blamed it on the fact that I have a year and a half old baby to run after all day. They just don't get it sometimes!
 
Since my flare got under control, I've been feeling so different. I have tons of energy, but I think it's the prednisone. It gives me so much energy that I can't sleep at night. I'm scared that when I get off the prednisone, I'll start feeling sluggish again.
 
I've heard that B-12 shots may help. I wish I had more advice!
Diagnosed with Crohn's in 1995.
Have used Prednisone, Flagyl, and Pentasa in the past.
Now on Imuran/Prednisone - waiting to start Humira.
One stricture in distal ileum.
No surgeries yet.


Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 12/3/2007 1:21 PM (GMT -7)   
Fatigue is probably my worst symptom right now. I have a doctor appointment tomorrow so I plan to bring it up then. Before my surgery and dx last year I could bare function. After my recovery I felt like a totally different person. Fatigue is one of my biggest fears.
Vicky / 47 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (26) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor


RFWrangler
Regular Member


Date Joined Nov 2007
Total Posts : 38
   Posted 12/3/2007 1:32 PM (GMT -7)   
While I am still waiting for them to figure out what is wrong with me I do understand the fatigue issue. Since I have been having this latest flair I have no energy at all I used to stay up until at least 11:00pm or later and was fine and was able to get up in the morning and get going pretty easily. Now I am ready for bed by 7:00 or 8:00pm but I force myself to stay up until 9:30pm. When I wake up I feel like I haven't slept at all. I try to get up and force myself to do something but the more I do the more tired I become.

I am so tired of being so tired. I am hoping that when they figure out what is wrong with me that I might be able to control the fatigue.
Still not diagnosed. Problems since 2003
________________________________________________________________

Current meds Prednisone 5mg every other day, Donnatol 12.5mg as needed for cramping (doesn't help), Prevacid 30mg daily
________________________________________________________________

Other issues
Depression taking paxil 30mg daily
Injured Right knee with 2 failed surgeries
Herniated disc t11-t12 being treated

________________________________________________________________

I am currently on disability for my knee awaiting retraining.
________________________________________________________________


Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 12/3/2007 1:44 PM (GMT -7)   
I know I have a problem when I want to lay back down after I take a shower.
Vicky / 47 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (26) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 12/3/2007 2:15 PM (GMT -7)   
You might try B6 supplements. about 2 years ago I started taking them 2X a day and after about a month I no longer needed a nap every day. That's not to say I couldn't take a nap every day, but I didn't NEED it. I do get B12 shots every 2 weeks also. If you haven't had recent blood work and this is a newish issue you might want to have some done to check for anemia and B12 levels too.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


MishBall2
Regular Member


Date Joined Apr 2007
Total Posts : 345
   Posted 12/3/2007 2:32 PM (GMT -7)   
I find that I feel a zillion times better when i take a multi-vitimin.   I ususally take it before bed so that I'll have enough energy to get up in the morning. (And to not lay back down after a shower LOL)
32 years old. Diagnosed in 2002ish. 
Taking Asacol, Lomotil TID, and on Remicade since 2004. 
Lower Bowel area only, except for the short stint (about 2 weeks) that I had mouth sores.  Also have external/anal fistula and anal/vaginal fistula. 
 


ProfCrohny
Regular Member


Date Joined Sep 2007
Total Posts : 44
   Posted 12/3/2007 3:36 PM (GMT -7)   
I'm so exhausted that I have to take naps every day on the floor of my office (I should really buy a mat), but apparently my exhaustion is due to prednisone withdrawal.
Female, 30. Diagnosed August 2007 with Crohn's Colitis. Asacol 400 mg 12 x day. Canasa, Cortifoam, just finished Prednisone (tapered from 60 mg). Orthotricyclin Lo, Calcium, Trinity (probiotics), and multivitamin.


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 12/3/2007 9:51 PM (GMT -7)   
There are a lot of times that I have to take a nap.I have times that I feel like I can't put one foot infront of the other.
Curley
.........
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 12/4/2007 3:27 AM (GMT -7)   
Hi I was really tired when I had my large abcess would sleep every day in bed real early too .Once I got DX and had surgery for abs. and got on meds I felt better . My B-12, protien, and potassium were low. I now take a multi vitamin and yesterday the DR. put me on calcium and Vit. D bacause of the long term use of pred. so I found the multi vit. has brought up my energy alot now I am doing more housework .So you should discuss vitties or get some it might make a difference. lol gail

HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 12/4/2007 5:31 AM (GMT -7)   
B12, iron, potassium.....mine were all drastically low and i couldn't drag myself off the couch. I was panting if I tried to mow the lawn-got one strip done and would have to take a break.

I have been on iron daily, increased the number of B12 shots and am eating a banana each day. I can't tell you how much better I feel! it is a joy to be able to do simple things again--like more than one load of laundry, walk thru a few stores to shop, walk from the car to the movie theater all without having to rest.

Get your iron/B12 levels checked and consider nutritional supplements. It really helps.
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


clavman
Regular Member


Date Joined Sep 2007
Total Posts : 39
   Posted 12/4/2007 6:04 AM (GMT -7)   
I agree with HabsHockeyFan. Have your vitamin levels checked. As I was first being diagnosed, my doctor found somewhat lower than normal levels of iron and B-12. Not terrible, just on the low side of normal. Slight internal bleeding probably led to slight anemia. Between the prednisone, iron, and B-12, My energy level gradually came back. Not sure if any one in particular did the trick or if it was the combination of them. Good luck
Bob
47 years old
Dx 3/07 Moderate Crohn's in terminal ileum-Probably had it for years earlier
Rx Prednisone initially for 8 weeks-40mg/day then tapered down to 0
    Currently on Pentasa-2000mg/day


malakai
Regular Member


Date Joined Aug 2007
Total Posts : 277
   Posted 12/5/2007 12:25 AM (GMT -7)   
Sorry that you feel tired.  Yep I feel tired too.  After I tapered off the prednisone, I REALLY felt it.  Definately get your stuff checked. 
 
However, sometimes the results come back and show that there is nothing off balance so it can be frustrating.  Before I was diagnosed, I slept maybe 6-8 hours a day.  Now I sleep at least 9-10 and then sometimes need to take a nap.  Guess it's part of the crohn's.  I emailed my GI and my PCP and they ran blood tests on me and nada.  Thyroid is fine, I'm not anemic, B levels are fine.  I take multivitmins daily and occasionally do B complex shots every 3 weeks.  I just try to gage my day on how I feel.  Occasionally I overdo it and then try to recoup the sleep.  I slept 13 hours last Monday cause I went to a zoo on Sat, got insomnia so I slept for 6 hours and then had to work my regular 10 hour shift.  =0\  The vitamins and the B shots help though because I have no idea how I would be putt putting without them. 
Newbie - 35 yrs old Diagnosed: 08/03/07
Meds:
Asacol 3x day
Imuran 50MG 3 x day
Lamictal 125 MG/day for bioloar II

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