Severe Allergic Reaction to HUMIRA

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Lauren21
Regular Member


Date Joined Jan 2007
Total Posts : 200
   Posted 12/4/2007 8:34 AM (GMT -7)   
Hi everyone,
 
I have been taking Humira since the middle of September. I never felt that it has helped much and every time I take a dose of it, my hands and feet tingle a lot.
 
So last Saturday I took my shot. My mom noticed that my face and neck were breaking out and they became very itchy to me. The tingling sensation in my hands and feet became worse. My whole face felt like it was swelling and my body ached with the most horrible pain. Then, the scariest thing happened. My throat started closing up.
 
I got rushed to the ER and they took me in right away and started giving me all sorts of medicines. Even having the rubber band tied around my arm for the IV was unbearable.
 
I finally started returning to normal. I'm still pretty tired from the whole ordeal even though it's been a few days.
 
I contacted my GI doctor and they don't want me to take that anymore, obviously. So now I'm waiting back to hear from him, and where do we go next.
 
 
22 year old female
Crohn's Disease (diagnosed 2006) taking Humira & Pentasa
Polycystic Ovarian Syndrome
Anxiety Disorder
Psoriatic Arthritis
Costochondritis
Using Darvocet & Lortab for Pain
Tigan for nausea
 
 
 


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 12/4/2007 8:53 AM (GMT -7)   
Sorry to hear it Lauren. There's always a risk with any of these drugs. I'm not sure where you go from here, hopefully your GI will come up with a plan. Please keep us posted.
Judy
Crohn's Disease   
 
 
 


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 12/4/2007 9:25 AM (GMT -7)   
Hi Lauren, sounds as though you were having anaphalaxis. This happened to me while having my 4th remi infusion. I didn't get
the hives, but my breathing and heart rate went crashing, the alarms on the monitor all went off. I felt like I was fainting, all I
remember was a lot of drugs being given me. I guess I was lucky I was already in a hospital setting, but I feel for you, it's very
scary. I hope your energy starts to build again. Take care...
Vicky

Too many years with CD
Two bowel resections, several obstructions.


Laughter is the brush that sweeps the cobwebs from our hearts


Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 12/4/2007 9:55 AM (GMT -7)   
I"m so sorry =(

starrnr
Veteran Member


Date Joined Dec 2005
Total Posts : 1782
   Posted 12/4/2007 12:23 PM (GMT -7)   
I had an anaphylactic reaction (sans the hives) to my Remicade the Wednesday before Thanksgiving. Scariest thing I've ever experienced and I was on Remicade for 1-1/2 years. It took me 4-5 days to start feeling normal again. I think the humongous dose of steriods really affected me, I had the worst case of jitters. Stinks, doesn't it - now we get to try something else. Good luck.
Some days you're the bug, some days you're the windshield

RA, AS, intolerance/sensitivity to gluten, wheat and dairy.

Remicade every 6 weeks, Methotrexate weekly, Folic Acid daily


Terry in Virginia
New Member


Date Joined Oct 2007
Total Posts : 9
   Posted 12/5/2007 9:02 AM (GMT -7)   
Lauren:

Thanks for posting, and sorry to hear about your ordeal. I too had a severe alergic reaction to Humira after about 7 weeks.... similar to yours. I had a rash on my neck, shoulders, torso, arms...and it took 2 weeks (and massive doses of Prednisone at 70 mg per day) to get rid of the rash. Once the side-effect of the Humira subsided, the side effects from all that Prednisone took over -- bloating, "moon-face," zoned-out "stoned" feeling, and glucose levels reaching diabetic levels....

Obviously we are both allergic to Humira. I'm glad it works for some people here, though.

Good luck to you. For me, I've just started Remicade.

Terry in Virginia
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