first Remicade infusion tomorrow- scared

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bektold
Regular Member


Date Joined Jul 2007
Total Posts : 456
   Posted 12/4/2007 10:16 AM (GMT -7)   
I have my first Remicade infusion tomorrow.  I'm scared.  I know it will be fine.  I know that if anything happens I'll be surrounded by people to help me.  But I'm still scared.  What if I have a reaction?  What if it doesn't work?  I'm trying to just breathe and keep calm, but it's not working.  I've already had 6 rounds in the bathroom today, and it's not even noon yet.

CrohnieYogi
Regular Member


Date Joined Oct 2006
Total Posts : 367
   Posted 12/4/2007 11:10 AM (GMT -7)   
Hi bektold. I'm sorry you are so anxious. But truth be told, I would be nervous, too. Just know that thousands of people have taken this medication. There is some risk, but the benefits will far outweigh them. Try to engage in some sort of activity--organize your sock drawer if you can't think of anything else. Get your mind off of tomorrow. Just try to relax. Breathe.

paintedsongs
Regular Member


Date Joined Jul 2005
Total Posts : 207
   Posted 12/4/2007 3:04 PM (GMT -7)   
I have had 3 infusions of Remicade. I was very nervous before hand also. The whole idea of sitting somewhere having this mystery medication slowly infuse in me made me feel so sick and awful. i had no side effects, no pain other than the tiny needle over in a second. And then you get all the benefits that it has to offer, it put me in remisssion and has been wonderful for my Crohns.. i would get another one in a second if I needed it... Take things to do with you a book, crosswords, I take my mom or hubby so I have someone to talk to also ..that helps b/c it takes a while.. I would wish you luck but I know you do not need it, things will be fine. take care.
28 Year old Female. Dx with Crohns 2005. Currently take Imuran 50 mg.
Dx with Pyoderma Gangrenos (PG) Nov '07, currently on Prednisone 40mg for PG, slowly tapering from 60mg ...  most importantly the taper is in effect !


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted Yesterday 3:16 AM (GMT -7)   
Hi, I have been on Remicade for over 2 years and I am doing fine and I have no-side effects. I hope the drug works good for you. My prayers will be with you.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted Yesterday 3:46 AM (GMT -7)   
Just like teddybearweiser, I have been on the stuff for years with no side effects. The worse thing about it for me is being very tired the next day for having sat still for that long. Let us know how things go and heres hoping it makes you feel better...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


bektold
Regular Member


Date Joined Jul 2007
Total Posts : 456
   Posted Yesterday 6:20 PM (GMT -7)   
Thanks everyone!  I made it through with flying colors.  I was a little nervous at first, but the nurse was great and my best friend was allowed to sit with me through the treatment.  No reactions at all.  My veins aren't great, so I've been given a few suggestions on how to improve them, and hopefully that will get easier, too.  (She only had to stick me once, but it took some searching to find a vein.)  I don't know if it's already the Remicade, or the Pred finally kicking in, or just a coincidence, but the bloody mucous that I've been leaking since Thanksgiving quit this afternoon.  Yay!  Whatever the reason, I'll take it.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted Yesterday 8:10 PM (GMT -7)   
Great news so glad things went good for you it is always good to get that first one done. So glad you have stopped passing the bloody mucous!!! lol gail

Zazucat
Regular Member


Date Joined Dec 2006
Total Posts : 177
   Posted Yesterday 8:21 PM (GMT -7)   
Glad to hear it went well! Just curious, what suggestions did the nurse give you to improve your veins? I actually made a nurse cry once at an infusion because she had to stick me 4 times to find a good vein and she was a perfectionist and saw that as a failure :-)
 


Erik45
Regular Member


Date Joined Oct 2007
Total Posts : 149
   Posted Today 7:31 AM (GMT -7)   
I hope you have good luck with this medication as i did, you will feel much better. This drug saved me from another resection. yeah
Crohns for 11 years
1 surgery so far
2 times in hospital for blockages
MEDS:
Remicade
Imuran
B12 Injections


bektold
Regular Member


Date Joined Jul 2007
Total Posts : 456
   Posted Today 7:51 AM (GMT -7)   
I don't think I've ever made anyone cry, but I'm pretty sure I've made them want to!  My veins are deep- hard to see and difficult to feel.  And apparently not quite where they seem to be even when you find one.  More than once in the last eight months or so I've had someone just stick the needle in where they think it should be and then dig around hoping to find it.  Fortunately, my Remicade nurse is a lot better than that.
 
Her suggestions were to get a stress ball and regularly exercise my hands and to drink a couple of glasses of water the morning of my infusion so that I'm properly hydrated.  I started working on the water when the infusion was scheduled because I knew that I was dehydrated, but I've been so queasy that it's been hard.
 
One of the first things my boss said to me this morning was "So, do you feel any different?"  Um, no.  It hasn't even been 24 hours yet.  Remicade is supposed to be good, but it's not magic.
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