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dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 12/4/2007 10:21 AM (GMT -7)   
I know you are into this ENT treatment. Following my colonoscopy yesterday I really don't feel like eating.
I could do with some tips....
Vicky

Too many years with CD
Two bowel resections, several obstructions.


Laughter is the brush that sweeps the cobwebs from our hearts


Writer
Regular Member


Date Joined Aug 2006
Total Posts : 443
   Posted 12/4/2007 10:46 AM (GMT -7)   
Well, there's lots of different enteral nutrition formulas, but the one that's probably easiest for you to get right away is Ensure because most pharmacies sell it. Boost is another option. I would tend to start with Ensure because it's actually been tested in Crohn's in published studies, whereas Boost hasn't, but I do know people who've done really well with Boost. If cost is a factor, you could also look at the store- brand products that say on the label at their ingredients are the same as those in Ensure or Boost. I recommend choosing one product, and sticking with it because that seems to be most effective in reducing inflammation and inducing remission.
 
Since you're cleaned out from the colonoscopy, it would probably be a good idea to start slowly. Sipping one can over half an hour, for instance, and then sipping another a little later if the first sits well. Because it's a lot of calories in a small package, some people get nauseated if they try and drink these too fast. If you choose to continue beyond say a day, and you want to see if this helps put you in remission, than the goal is to drink enough calories of the formula to equal what you would consume in a regular solid food diet -- say, 1800 calories per day if you're an average-size women -- or more if you need weight gain. If it's going to work for you, you'll probably notice improvement within a few days (less pain, more energy, etc.), and substantial improvement within 10 days. It works best for small intestinal disease or mixed small intestinal and colonic disease; somewhat less well for Crohn's colitis.
 
Anyway, I hope this gives you some ideas and answers some of your questions. Feel better!

dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 12/4/2007 11:32 AM (GMT -7)   
Thanks for replying so quickly. I'm assuming that you drink only ensure and nothing else. My question is, do you get hungry?
I ask this because the feeling of hunger tends to make me nauseous. 2nd question, how many per day would you suggest?
I'm a small woman 5' and weighing about 110....
Vicky

Too many years with CD
Two bowel resections, several obstructions.


Laughter is the brush that sweeps the cobwebs from our hearts


CrohnieYogi
Regular Member


Date Joined Oct 2006
Total Posts : 367
   Posted 12/4/2007 11:38 AM (GMT -7)   
One more question to add (I realize this may be a dumb question :)

How many BMs should one expect per day/week? Since it's liquid, I wouldn't expect many, but Boost/Ensure is really thick......

Writer
Regular Member


Date Joined Aug 2006
Total Posts : 443
   Posted 12/4/2007 12:12 PM (GMT -7)   

Yes, you're right, Ensure only.The regular Ensure (that is, as opposed to Ensure Plus, which you could also use) is 250 calories per bottle (the US version anyway). I would guess you would need about 6 1/2 bottles per day (1625 calories) if you are sedentary (if you are mainly lounging around the house because you don't feel well, for instance). However, I see from your signature line that you have had two resections. If you have lost a fair amount of small intestine, or have active small intestinal disease at the moment, you could potentially need considerably more calories. Let your stomach guide you. You shouldn't be hungry if you are eating the appropriate amount of formula. It fills you up like regular food does.

If your stomach bothers you when it's empty, you may do best to split the amount of formula into six or more meals per day, so you always have something in there. One caution: because the formula is sweet tasting, sometimes you'll want more even though you aren't really hungry (just like if you eat a cookie than you want another). If you think from the calorie count basis that you have probably had enough, try brushing your teeth and waiting 15 minutes, and then see if you are still hungry or whether it was just the sweetness you were craving.Brushing your teeth and tongue regularly isn't a bad idea anyway, because the formula tends to build on both without the chewing of solid food to rub it away.

CronieYogi, not a stupid question at all. Bowel movements can be liquid or soft, and may be as frequent as three times a day, or only every few days, depending on the person. The occasional person gets profuse diarrhea after starting enteral nutrition. That's usually a sign that you are intolerant of the particular formula you chose, and that you need to switch to a different one. Unfortunately, it's impossible to predict in advance what will be the best formula for any given individual. But don't worry too much about this, because most people don't have that reaction.
 
Hope this answers the questions.

Writer
Regular Member


Date Joined Aug 2006
Total Posts : 443
   Posted 12/4/2007 3:48 PM (GMT -7)   
One last thing I should have mentioned. It's a good idea to drink several glasses of water per day while you're on a liquid diet to avoid dehydration and constipation. You'd think since you were having nothing but liquids, that would be enough, but in fact some water is usually still necessary.

FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 12/4/2007 5:23 PM (GMT -7)   
Dunny - since I am lactose sensitive I do my own liquid diets. I use slim fast powder sometimes other times just yogurt, ice, banana, etc. and blend. I guess this probably isn't enough calories but I am sure you could get meal replacement powder to throw in and make your own shakes.
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!
 
 


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 12/5/2007 8:49 AM (GMT -7)   
They do have an ensure that is lactose free, sometimes it's hard to find.
Judy
Crohn's Disease   
 
 
 


Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 8/16/2009 11:14 PM (GMT -7)   
Um, the regular Milk Chocolate Ensure reads Lactose free as it is now in bottle/can form. I've been alternating them for meals (some meds require solid food with them or tummy hurts). Still, from what I've seen of all the Ensure titles, they all have a new heading of lactose and gluten free.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Allergies and Asthma my whole life
OTC Wal-Zyr D 12-hour
Depression after surgeries and illness of 2003.
Crohns Dx'd: February 2008.
Pentasa
Fibromyalgia Dx'd: July 21, 2009
Lyrica
Cymbalta
Hydrocodone
Prenatal Vitamin


gemini kiwi
Veteran Member


Date Joined Nov 2006
Total Posts : 1136
   Posted 8/17/2009 12:18 AM (GMT -7)   
Dunny,
I was on ensure plus for about a year after my operations, I struggled with it to be honest, but tired my best to comsume the strawberry, and chocolate flavoured cans. They do a coffee flavour but its nasty, so don't bother. The stuff used to go through me so fast you could smell the flavour in the toilet bowl no matter how slowly I drank it. I looked at the can one day and saw corn syrup and various oils and sugars, it did me in I made better progress making my own soup mixes blitzed then sieved my safest foods to this day.
feel better soon,
hugs,
tess.

gemini kiwi
Veteran Member


Date Joined Nov 2006
Total Posts : 1136
   Posted 8/18/2009 10:35 PM (GMT -7)   
OMG, I just realized this post from dunny was from May 2007. LOL. I saw Judy's name and thought she ewas back with us. has anyone ever heard from her, she was always so very helpful.?
GK
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