extremely tired

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New Member

Date Joined May 2007
Total Posts : 13
   Posted 12/5/2007 1:28 PM (GMT -6)   
Hi Everyone!
I very rarely post here, but often read your questions which are usually quite the same :)  I often find comfort that you guys are going through what i am, it doesn't make you feel like your alone! I really appriecate that.
I do have a question about feeling really tired most days. sometimes I have to close my office and just close my eyes.  When I get home from work all I want to is sit on the couch and take a nap. I can do a few things, then in bed by 10 up at 7:30.  It's a crazy tired feeling.
I'm on 150mg of immuran, and mulivitiams don't sit well with me, I am sure that part of problem, but does anyone else on immuran experience fatigue?

Veteran Member

Date Joined Dec 2006
Total Posts : 1986
   Posted 12/5/2007 1:40 PM (GMT -6)   
If you have active disease, it takes a toll on the body, and the drugs don't help either. Also, depending on what kind of diet you're on, which a lot of us are on the low residue (usually means high carbs, lol) you may be having carb crashes on top of it.

Sometimes I feel like I was born tired. Even when I was on Prednisone I didn't get all the energy others have reported, just more anxiety.

Anyway, you are not alone and I'm sure many others will be along to tell you so.

It may be a good idea to get some blood panels done also, you may need B12 shots (although they aren't helping my energy level much, lol), but it may tell you if you're deficient in anything.
Crohn's Disease   

Veteran Member

Date Joined Mar 2005
Total Posts : 4305
   Posted 12/5/2007 4:39 PM (GMT -6)   
I deal with this issue my self,I find a lot of times that I will have to take a short nap in the early afternoon just so I can make it the rest of the day.It seems to go hand in hand with Crohns.There could be several different reasons as to what is causing this one being your B-12 may be low if so you can give your self B-12 shots. Yhe best thing to do is to get your GI to do blood work and see if he/she can get some insite as to what is going on.Let us know what you find out.

Regular Member

Date Joined Jun 2006
Total Posts : 326
   Posted 12/5/2007 5:31 PM (GMT -6)   
I'm having similar experiences. Lately, in the morning I'll get up and have breakfast and then feel like I have to go back to bed. Several times I have! Fortunately, my job has flexible hours and my boss doesn't care if I come in later as long as the work gets done. She's also aware of my health problems and is very understanding in the regard as well. I learned in October that I do have iron deficiency anemia. I've been taking iron pills, but can't tell much difference so far. Have you had a CBC, folic acid, B12, and iron panel done? They're all simple blood tests. If any of those tests show problems there are pill forms of folic acid, B12, and iron that you can take, but many find shots are easier to "stomach" and are more effective. I hope you can get the fatigue straightened out. Good luck.

-Formal diagnosis of Crohn's Disease in ileum in July 2005.
-Experienced what were most likely flares for 12-15 yrs.
-6-MP, protonix, cymbalta, wellbutrin, trazadone, miralax, allegra, celebrex

New Member

Date Joined May 2007
Total Posts : 13
   Posted 12/7/2007 10:49 AM (GMT -6)   
Thanks everyone!
I think I will ask to get some panels done. I've been anemic in the past but recently I had a test and it showed I wasn't.  Iron has been low too, but they said that I shouldn't take any iron supplements.  What is a girl to do! You know Judy, you said if your disease is active your tired, well it's weird because there are weeks where I feel great and I can eat anything but still tired, and weeks that I am sick as a dog....so I don't know when my disease is active or not...all I know when things get bad, I call for my steriods and then I'm wide awake for a month :)
Thanks again! I'll let you know what happens!!

Veteran Member

Date Joined Apr 2006
Total Posts : 1884
   Posted 12/7/2007 11:28 AM (GMT -6)   
Why did they say you shouldn't take iron supplements? I understand that many GIs are afraid to prescribe oral supplements because they MIGHT irritate the intestinal tract. However, no studies have proven that they make Crohn's worse. I emailed the researcher of a study trying to prove oral iron could make Crohn's worse, but she replied that the results were still being analyzed.
Low iron affects your immune system and even affects your learning and memory skills. Some docs wait until you have anemia to treat low iron. This is a mistake, because by the time you are anemic, harm has already been done.
If your doc is doing just a knee-jerk, "I'm afraid to prescribe iron because it might make Crohn's worse," response, then it might not be a good enough reason to deprive you of the benefits of oral iron supplementation.
My daughter's health has never been better, since she has been taking iron supplements - Solgar's Gentle Iron, 25 mg daily with OJ. (Don't take with food or other vitamins, and don't take within two hours of other vitamins, meds, or food because they tend to interfere with iron absorption.) 
Daughter (20) Dx'd Crohn's 3/06. Misdiagnosed for two years, including by top pediatric Crohn's specialist as stress and needing more fiber but landed in hospital in 3/06 with cramps, vomiting, stricture. Now in remission with Entocort 3 mg (one pill), SCD multivitamin, yogurt, vit D3 1800IU, 900+ mg calcium, 50 mg B complex vit, 25 mg iron. No longer on SCD diet.   

New Member

Date Joined May 2007
Total Posts : 13
   Posted 12/10/2007 8:44 AM (GMT -6)   
Thank you for the advice, this is good info!!!!

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 12/10/2007 7:57 PM (GMT -6)   
Hi Tish I have had times where I slept alot and was totally worn out to bed by 7 or 8 that was when I had the abcess brewing but I have had times off and on in my life when I would have to nap . I am good now and I try to keep a watch on my bloodwork. I used to have a nap after work and I remember once I got up at 6;30 and got dressed and went to work but it was not 7:30 in the morning now that was some nap so I got to go home and sleep the night away. I also find that if I keep myself in a postive mood it helps to not let depression seep in. So glad you are feeling like talking about it. Your boss sounds great. lol gail
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