The theory that's going is as follows:
It is a bacterial infection...no one is positive on which is causing it (even though there is a strong following towards MAP).
The normal process of our bodies to fight a bacteria is, the immune system takes the offending bacteria to the terminal ileum to put it into a macrophage and learn how to kill it (deprive it of oxygen, and nutrients). However, whatever bacteria is causing the problem, it is very resilient, it multiplies in the macrophage (which it would normally die). Now, the inflamation is being caused because our immune system is attacking the macrophages...which is part of our body...i.e. it comes across as an immune system disorder to the "specialists" when in fact it's just a bacterial infection...I've tried numerous herbal remedies, nothing has been 100% effective yet.
The ones that were the most beneficial were the new roots herbal purge parasitis kit, and the primadopholus optima probiotics.
Tests I've had:
5-6 colonoscopies (lost count), Barium follow through, Barium enema, 2-3 CT scans, plenty of xrays (lost count)
Prednisone (started at 40mg stepping down) been on this one 3-4 times
Tried Imuran, no good
Would try remicade if I had coverage ($2500 per 2 hour IV :P)
Herbal remedies tried:
4Life Transfer Factor Plus (2 bottles at 3x recommended dosage)
Primal Defense (3x dosage recommended...yuck)
Many different probiotics including:
VSL #3 (450 billion live bacteria!)
PRIMADOPHILUS REUTERI PEARLS
Omega 3 Oils (caps and liquid)
GNC liquid multi (had to get this one from the US)
Paraway Parasite Cleanse (2 in a row)
New Roots Herbal Parasitis Kit (2 in a row)
Liquid Aloe Vera Juice (2x1oz. per day)
Just ordered Mastic Gum capsules (120x1000mg) and Mastic Gum pure from the tree (10gr. bag)